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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Going Back To Gi, Negative Blood Results, Is This It?
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4 posts in this topic

Here are my test results

TISSUE TRANSGLUTAMINASE AB, IGA < 1 (Range: <4 no antibody detected)

IMMUNOGLOBULIN A 179 (Range: 81-463)

B-12 and folate were normal. Ferritin 37 (Range was 10-154)

Still leg cramps, eroding teeth and tummy rumbling, explosions, and fluffy stools (undigested food, not D).

Are more blood tests needed? I am worried that if an endoscopy is done it will show no damage.

Ideas?

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They didn't do enough...more tests are needed. The following list is what you want:

Tissue Transglutaminase IgG (TtG IgG)

Anti-Endomysial Antibodies (anti-EMA) You could ask for both IgG and IgA, though the IgG version is almost never done.

Deamidated Gliadin Peptides (DGP) Ask for BOTH versions...IgG and IgA

I'm not sure I'd go to the endoscopy with negative bloodwork, I chose not to do it thought I had one positive test (TtG IgG).

But, there are MANY here who have been blood-negative but turned out to have significant intestinal damage and are indeed celiac.

If you don't have a need for medically supported diagnosis you could see what happens on a good gluten-free trial of at least a month. If you symptoms abate, your body has told you what you need!

Best to you.

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They didn't do enough...more tests are needed. The following list is what you want:

Tissue Transglutaminase IgG (TtG IgG)

Anti-Endomysial Antibodies (anti-EMA) You could ask for both IgG and IgA, though the IgG version is almost never done.

Deamidated Gliadin Peptides (DGP) Ask for BOTH versions...IgG and IgA

I'm not sure I'd go to the endoscopy with negative bloodwork, I chose not to do it thought I had one positive test (TtG IgG).

But, there are MANY here who have been blood-negative but turned out to have significant intestinal damage and are indeed celiac.

If you don't have a need for medically supported diagnosis you could see what happens on a good gluten-free trial of at least a month. If you symptoms abate, your body has told you what you need!

Best to you.

Agggh. So frustrated my doc didn't run all those tests! He seems pretty confident on doing the biopsy to not only rule out celiac but other issues. I guess it is a good next step, right??!!???

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It is a good next step to let him see what's going on in there. I wouldn't hesitate on an endoscopy at all if I were you.

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