Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

Need Assistance With Testing

5 posts in this topic

I've been struggling with digestive problems for the last few years. My doctor has said IBS, lactose intolerance, and a few other things. I noticed that it was gluten-containing foods and brought this to his attention. He did blood tests, which showed negative. Went to the gastroenterologist in the same practice. She said I had too low of a negative to say not celiac, so she wanted to test me for everything GI related under the sun, then return to the endoscopy for celiac. I decided to try eliminating gluten from my diet and it worked. It even cleared up things that I never were thought to be gluten related. So, I went back to the gastroenterologist. The first one was out on maternity, so I saw an associate. He looked at the labs, said it has nothing to do with gluten at all, since the labs were negative. He said my problem was residual from a childhood bacterial infection and that gluten was a coincidence. He told me to continue gluten free and come back if anything changes.

Here are the labs, so hopefully someone here can help:

IGA .99 Normal <45.0

IGG 14.05 Normal <45.0

tTG 2 Normal 0-19

Reticulin <1:5 Normal <1:5

Endomysial IGA Negative

IGA Total 65 Low 68-378

IGD Serum <.07 Not sure on this one, since it lists <=15.3. Does that mean less than or equal to in this case?

IGG Total 1310 Normal 768-1632

IGM 141 Normal 60-263

Some co-workers had mentioned that they should have done an anemia panel as well as a total antibody count panel as well. Does it sound like they missed tests here that could have shown the real picture? And does anyone have any tips for finding a gastroenterologist, since I feel like I need a better one?



Share this post

Link to post
Share on other sites

Ads by Google:

Were you gluten free or light prior to the blood draw? You need to be ingesting gluten to produce the antibodies measured in celiac blood work.

I'm not sure, but it looks like the only celiac antibody tests were:


EMA-IgA = Endomysial

you also had low total IgA which means the above two tests were likely inaccurate even if you were eating gluten.

your total IgG looks strong so celiac antibody IgG based tests are a better indication of celiac disease - if you are eating gluten.


AGA-IgG = Gliadin

DGP-IgG = Deamidated Gliadin Peptide

Yes, nutrient testing is an important part of celiac diagnosis. Bs, D, K, Iron, Ferritin, Copper and Zinc are what my doc orders at Dx and check ups.

As far as finding another GI - check with a local celiac support group or try a google search for your city+celiac+ gastroenterology. When you call to make an appt - ask the scheduler if this doctor specializes in Celiac Disease.

Hang in there :)


Share this post

Link to post
Share on other sites

Once I had an idea of what it was, I tended to eat whatever I could that had gluten in it, since I had the mindset that I wouldn't be able to eat it much longer. I recall that the GI I went to first said that I was only tested for celiac markers, but offered no additional insight into that.


Share this post

Link to post
Share on other sites

I recall that the GI I went to first said that I was only tested for celiac markers, but offered no additional insight into that.

This, unfortunately, is quite common. A second opinion would be a very good way to proceed.


Share this post

Link to post
Share on other sites

He said my problem was residual from a childhood bacterial infection and that gluten was a coincidence.

What? How old are you? A residual problem from a childhood bacterial infection? That makes NO sense, residual symptoms from even the worst infections should last no longer than a year. What was the infection and how long ago was it?


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Yes, GFinDC you've got the gyst of what I am after. If I am reading your response correctly then, you think that inflammation in the gut caused by gluten ingestion is enough to trigger diarrhea, quite apart from the state of one's mucosa? That would be good news for me. More information on this inflammation reaction in the gut with gluten ingestion is precisely what I am after, but cannot seem to find. Because, as stated, as far as I know, D is mostly if not only, caused by flattened villi. OTOH, how interesting to hear from you, cycling lady, that you had flattened villi and no D! RMI, the link is quite depressing. Many appear not to have healed mucosas after a gluten-free diet. A repeat endoscopy is what is so clearly needed by many of us, but honestly I am a little wary of the risks.
    • No, they didn't test my ttg igg, which I was surprised about considering the low IgA and positive DGP Igg. (The tests they did were IgA serum, Ttg IgA, DGP Igg and IgA and gene testing) If he ever returns my call, I was going to ask him about that.  He initially wanted to set up a endoscopy, but I told him I had one last year (with my prior GI) and he said he'd take a look at it and we'd go from there, except that was two weeks ago and I haven't heard from him.  My prior GI did take biopsies, I believe to rule out H.Pylori and I was told biopsy results were normal, however, I didn't receive a pathology report or anything like that.
    • What GEE EFF said!  Look for incubators, some business schools and even community colleges will have classes  about starting your own business & info about financing one.   There is a lot more to a business then just making and selling and getting someone else to buy the food  Taxes - paying and collecting in different cities or tax zones, health department codes, liability insurance (vehicular and general business ), renting a health dept approved kitchen,  a small business lawyer to help you "become a real company", permits, "booth fees", etc.  You can probably avoid some of it right now, just selling at a local farmer's market.   add- You might check with your state.  Some states have funds or low interest loans.  It helps if you are a "minority".  
    • i've researched a little about the genes i have you can find out if they are assosciated with other illnesses/autoimmune diseases. but i don't think knowing the details of every gene is going to help diagnose you any futher than just knowing you have the gene becuse either way it just means you have an increased chance.  if you're iga deficient did you have ttg igg as well?
    • I don't know if there are any grants specifically for gluten-free products Ennis.  But the SBA in USA deals with small business startups and may have information to help you.   There may be small business incubators in your area also.  Sometimes they are associated with university business schools and the SBA.  Marketing a product commercially and labeling it gluten-free is a possible issue though.  There are now FDA rules on labeling products gluten-free.  So you need to study those before getting to far into it.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member