Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gluten Challenge
0

8 posts in this topic

I have a question about a gluten challenge. I am celiac assumed (positive DNA, symptoms on gluten diet and positive response to gluten-free diet). I didn't have the biopsy as I started on the diet, saw a response and my GE said there was no point if I was feeling better and just to assume I had celiac and remain gluten-free. He did say I could do a gluten challenge but didn't see the point as my symptoms had disappeared.

Now, I am the curious type, and while I know that even if I had a negative biopsy nothing would change, I feel better off gluten so I would continue to eat gluten-free, sometimes my mind just asks what if? So tonight, after being 100 percent gluten-free for 4 months I ate a slice of bread to see if I would have any response. I expected nausea, stomach ache, basically all the things I had when I was eating gluten before. However nothing. It's been a a couple of hours and not even one cramp.

My question is, for those of you who are celiac confirmed via biopsy, do you always have a negative response to gluten? How sensitive are you guys? And is it the same for everyone? I know I won't go back to eating a gluten diet again, however sometimes I wish I had a biopsy for confirmation.

Thanks in advance :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

It can take time for a reaction to occur. I did an elimination diet, doctor guided, as part of my diagnosis process. It takes me 3 days for the digestive issues to show up and the doctor said it can take up to a week to have a reaction. If you are determined to do a challenge then eat gluten at at least a couple meals a day for at least a week before you assume you are not reacting. Also keep in mind that in some, usually younger folks, there can be some time before a reaction happens. Reactions can show up a fatigue, irritability, headaches, balance issues, sore muscles and joints etc before digestive becomes evident. If you are looking for a doctor derived diagnosis through blood work and biopsy you may need a lenghty challenge before the antibodies are in large enough numbers to show up in the blood. Some of us will have negative blood work even on a full gluten diet.

0

Share this post


Link to post
Share on other sites

Took me about five days to a week to respond when I was accidentally given wheat bread rolls, then took me out for a couple of weeks, and 2 more to fully recover.

I have been trying to work out if I have been really good at avoiding gluten, or I am not super sensitive. I don't have a spare month or so to find out.

Good luck whatever you decide.

(Self diagnosed, failed to last gluten challenge)

0

Share this post


Link to post
Share on other sites

I'm not biopsy diagnosed but wanted to add my two cents anyway :P . I'm in kind of a similar boat... "assumed celiac," as you put it, by my doc, since I couldn't have a biopsy at the time (also negative ttg but high anti-gliadin IgA).

I did a mini-gluten challenge two weeks ago because we wanted see how my glutening symptoms might be differing from other possible food issues. I ate gluten at one meal only and was surprised (and a little scared) by an allergy-like reaction less than an hour later.... but THEN my standard gluten intolerance (in the gut) kicked in a day or two later... lasted most of these two weeks! So yes, it can take a while to kick in... how are you feeling now?

0

Share this post


Link to post
Share on other sites

I am in the same boat you are... no biopsy done beacuse I was already gluten-free, positive response to diet, etc.

I am also curious and did a challenge last year: it took 3-4 days for my symptoms to show up and the first thing that happened was a rash (hives) on the inside of my knees and thighs. It took another 48 hours for the GI stuff to start and I was also extrememly depressed by the end of the week (after about 6 days eating gluten). That was enough for me... still no biopsy and I am off the stuff for good.

0

Share this post


Link to post
Share on other sites




I am a diagnosed celiac. I was off gluten for four months and then had my biopsies done so started my gluten challenge. I actually made a list of the things I wanted to enjoy one last time (I believe there were 87 things on the list - many, in retrospect, are now in my gluten free repetoire). So, I literally pigged out on gluten for three entire months. To be honest I enjoyed it very much. I did not get sick even once. I felt no different whatsoever. BUT after my biopsy results came back I went gluten free strictly and have been doing so now for about 20 months. Sometimes I still wonder, too. But I will not stray because I know the damage it gluten can cause inside, even if I did not get sick. (Who knows? Maybe now I would.) Anyway, I keep thinking of my future. I do not want other diseases or illnesses as a result of consuming gluten.

I DO get sick from eating soft cheeses and milk so I drink lactose-free milk and no longer eat soft cheeses. Sometimes I wonder whether the villi damage was due to that instead... :mellow: It does bother me from time to time to be honest. :huh:

0

Share this post


Link to post
Share on other sites

I am a diagnosed celiac. I was off gluten for four months and then had my biopsies done so started my gluten challenge. I actually made a list of the things I wanted to enjoy one last time (I believe there were 87 things on the list - many, in retrospect, are now in my gluten free repetoire). So, I literally pigged out on gluten for three entire months. To be honest I enjoyed it very much. I did not get sick even once. I felt no different whatsoever. BUT after my biopsy results came back I went gluten free strictly and have been doing so now for about 20 months. Sometimes I still wonder, too. But I will not stray because I know the damage it gluten can cause inside, even if I did not get sick. (Who knows? Maybe now I would.) Anyway, I keep thinking of my future. I do not want other diseases or illnesses as a result of consuming gluten.

I DO get sick from eating soft cheeses and milk so I drink lactose-free milk and no longer eat soft cheeses. Sometimes I wonder whether the villi damage was due to that instead... :mellow: It does bother me from time to time to be honest. :huh:

Hi love2travel, from my understanding the only thing that causes villi damage is ingesting gluten, then lactose intolerance as well as fructose intolerance (I have this) can occur. It's in-tact villi that are needed for these sugars to be broken down. Once the villi heal you can go back to enjoying those things again, but sometimes the healing may not be 100 percent so you would need to be careful with lactose and other sugars more permanently.

I never had lactose intolerance until this year, when all my symptoms became magnified (when I believed my celiac started). Now one serve of milk sends me running.. :huh:

Thanks to the other responses, I was of the impression that I needed to be violently ill for eating one slice of bread. It obviously isn't that simple, and as someone said above (I'm not quite sure how to directly reply to more than one post) I would need to eat gluten for an extended period of time. Which when I was, before going gluten-free, I was unwell everyday.

1

Share this post


Link to post
Share on other sites

Hi love2travel, from my understanding the only thing that causes villi damage is ingesting gluten, then lactose intolerance as well as fructose intolerance (I have this) can occur. It's in-tact villi that are needed for these sugars to be broken down. Once the villi heal you can go back to enjoying those things again, but sometimes the healing may not be 100 percent so you would need to be careful with lactose and other sugars more permanently.

I never had lactose intolerance until this year, when all my symptoms became magnified (when I believed my celiac started). Now one serve of milk sends me running.. :huh:

Thanks to the other responses, I was of the impression that I needed to be violently ill for eating one slice of bread. It obviously isn't that simple, and as someone said above (I'm not quite sure how to directly reply to more than one post) I would need to eat gluten for an extended period of time. Which when I was, before going gluten-free, I was unwell everyday.

That is my understanding, too. However, I have read that lactose can actually cause villi damage but have no clue where I have read that (here??). Either way, I am definitely not willing to eat gluten, especially now! One serving of milk would make me run, too. I finally found a great brand of lactose-free milk - the others have been too sweet. Just wait a sec - let me run to the fridge to see what it is called. OK - I'm back. It's called Natrel.

Celiac is a wild and crazy game. It is so individual and extreme! I believe a few of my family members have it as they exhibit many symptoms but they are nervous to get tested. Actually, they did get bloodwork done but it was all negative. And that was a year ago. I try to explain the high negative rates but they are satisfied they must not have it. They just do not *want* to have it and are in denial.

It is true that it is recommended that a gluten challenge should be three months for adults. Some would become so violently ill that the thought of a challenge would be absolutely mortifying. Now that I know more than I first did it would make me feel that way, too, even if I did not get sick.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,618
  • Topics

  • Posts

    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • Thanks cyclinglady! I will!
    • You could ask the allergist to give you a starting point for an elimination diet. You would start out with 5 or so foods and then add in one new food a week to see if you react. If you react you of course drop that food. It is a bit of a pain as everything has to be basically single ingredient to start.  My allergist felt that was the best way to go and more accurate than blood testing.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined