Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Pre-Diagnosis
0

5 posts in this topic

Hi guys I name is Andy and in 4 days I find out if I have Celiacs disease. I began showing symptoms about 5 or 6 months ago, and recently discovered my brother has Celiacs. I am currently in the process of having my blood tested, and I get the results this Friday.

Since the blood test I have been following a strict gluten/wheat free diet and already have some symptoms fading. This to me is my body's way of saying 'Yes you do have it'. At the moment I've gotta say I'm not having the best of time coping with what I'm no longer allowed to have!

I've joined this site today in an attempt to be able to talk to people who also have this condition just so I've got some support to hand. I hope to hear from people soon, and ill also post hear on Friday regardless of results.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Come on in Andy, glad you found us.

I am about 3 months in now, and it does start to make sense what you CAN eat.

Lots of people find a fairly simple diet to start works well, meat, fish, veg, fruit.

There are a ton of gluten-free foods out there, but maybe go a bit easy to start, and use these as treats rather than swap everything like for like. Try it and see what works.

Most people get loads of questions as they go, the folks here are amazing with answers.

Let us know how it goes. Great news you are getting some relief already gluten-free.

0

Share this post


Link to post
Share on other sites

Sorry to hear you've been unwell, but that's great to hear that you are already showing improvements on the gluten-free diet.

Those first weeks are pretty hard, especially if you go through a withdrawl of sorts which can make you feel pretty poorly on top of deprived. My advice would be to treat yourself to gluten-free treats over the next few weeks when you want them. I know it made me feel better (emotionally) to eat yogurt covered pretzels when I knew I couldn't eat a muffin, or some gluten-free cookies instead of oreos, M&M's instead of licorice... and I actually lost weight. LOL

I would also advise you to clean out your kitchen of as much gluteny stuff as you can. It makes cooking much simpler, and it's nice to know you can eat almost anything in your own home.

When your tests are in, you might want to check your vitamin and thyroid levels too. Many celiacs are low in vits and a bit malnourished. Vitamin D, B12, K, ferritin and calcium levels aregood to check... I think there are others... TSH and free T4, free T3 and TPO Ab are good to check; most doctors just check TSH but patients with thyroid issues (which are fairly common amoungst celiacs) often have a TSH that falls in the normal range so problems can be missed.

Good luck with the tests! :)

0

Share this post


Link to post
Share on other sites

Hey guys thanks for your messages.

Unfortunate I don't have my results yet, the doc said ill hear back in the next couple of weeks. Only thing she did say was that my cholesterol was kinda high, but apart from that there was nothing remarkable about my bloods. So ill guess ill have to wait and see about Celaics. I'm on a full wheat/gluten free diet at the moment, even got a mini cupboard of snacks and treats I'm allowed :-)

0

Share this post


Link to post
Share on other sites

Is your doctor recommending and endoscopy too? Remember you need to stay on gluten until after that if you are having one.

It is really worth posting your results here when you get them, lots of the folks are experienced enough to pick up bits doctors miss (though fingers crossed you have one of those good docs we occasionally hear about).

Also, there will be plenty of advice if you test negative but still want to try gluten-free. There's a lot of us about...

Mw

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined