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No More Cookies!
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I guess I've been playing with fire, letting my regulars bring cookies to the jam sessions here. I'm always good about washing my hands before I eat, but I got glutened the other day, and I know it was a stray cookie crumb that got me because I've not eaten anything different from my usual fare.

They get crumbs on the table. Then I touch the table. Then I play my guitar. The crumbs get on my guitar strings. Then I touch my face.

I'm so miserable right now. I was sick to my stomach the other day and thought it might be a bug. A few hours later my psoriasis started to flare so I knew it was gluten. Now my jaw problem is flaring up really badly. I am in SO much pain! I can't open my mouth to even brush the inside of my teeth, I'm mashing my sweet potatoes so I can suck them through my teeth, I'm talking funny as if I had my jaw wired, and the pain is almost unbearable.

Another sure sign of a glutening for me is temper. This morning a friend came in for a lesson and I had to move an open package of cookies out of the way. A couple fell out and I flung them to the floor. I looked at my friend and told her THAT'S why my jaw looks like a hampster's. Then I threw the whole package across the room. (It's a good thing she is a friend.)

I spent the whole day in bed yesterday and wish I could be in bed today. I need to get started putting my huge Christmas tree up here at the shop because it takes days, and I want it up for Black Friday. But I'm just not up to it right now.

I am going to tell everyone that from now on, no cookies are allowed unless they are gluten-free and soy-free. I hate to do it, but I WON'T go through this again! :angry:

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Awww you poor thing! This is not a good time to have to deal with this. I get the grumps too and probably would have responded the same way to the cookies. I agree that it is time to stand up to the cookies and protect yourself. It simply isn't worth the risk. Do try to get some extra rest tonight. (((HUGS)))

And backatcha:

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Oh Adalaide, THANK YOU! I love that video, and the fact that someone sent it to me when I'm feeling so down has made me cry. (((((HUGS)))))

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GAH! That is the opposite of the intended effect! On a dark gluteny day in August when you shared it with me you said it always cheers you up. :P Okay, I'll stop being a dorkus. Feel better!

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They are just going to have to suffer with the Lara bars, the Kind bars, the coconut macaroons, the enjoy life chocolate chips melted on crumbled rice cakes with coconut flakes, the bananas, apples, etc.

Cookies sound so horrible right now. Something other than gluten is kicking both me and my spouse's guts a bit from the salads we had for lunch. I made myself exercise, because otherwise I was pretty loose- jointed, but I barely got thru it. (have to catch it while you can, as we are entering the rainy season) drinking ginger in club soda water.... Ugh.....

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Oh Bartful,

I am so sorry you are feeling horrible...UGH :ph34r: Hope you can get good nutrition in your stom and get some rest -- You are right!!

No more poisonous cookies to be brought in to your store! Hang in there... :)

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Dear Bartfull,

I"m sorry your feeling a little under the weather, hope you have a super speedy recovery. I have no idea why i stopped by to read about your cookies, but i"m sure glad i did. How else would i ever found out about the coconut macaroons and the enjoy life chocolate chips melted on coconut flakes to make my own mounds bars!!!

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I just responded to a suffering soul in another post with some tips on how to feel better. I've learned that with celiac disease you've got to watch out for things you never thought of. You may have a yeast infection. My gums hurt so bad and I have to really scrub my mouth 3X daily. And throw away the brushes frequently. I buy cheap children's tbrushs so I can get into nooks and crannies. Even gluten-free flour can cause problems and things like vinegar can upset your PH. Good luck.

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I always worry about cookie crumbs. I help with tea at my meditation centre, and try to be very careful when handling the cookies and other gluteny things, wash hands afterwards, etc, but I always worry that something bad might happen (obviously not worried enough to stop helping out though).

If you got that sick just from cookie crumbs, then indeed, for the sake of your health and sanity, no cookies (or other crumbly gluteny items) allowed! Maybe you can switch to some gluten-free chips or another snack instead. If these are people you jam with often, and come to your store, they should want to keep you happy and healthy, so I see no reason not to put your foot down.

Feel better. The tree can wait.

Peg

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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