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Discrimination Against Celiacs?
#1
Posted 19 November 2012 - 02:31 PM
The link is a petition and I would strongly urge anyone to read it and sign it if they want to help get the right thing done. It doesn't take long and it is an important issue and has to do with all of us. Here it is:
http://www.change.or...om-her-contract
#2
Posted 19 November 2012 - 09:05 PM
"Dark and difficult times lie ahead ahead - soon we must all face the choice, to do what is right, or what is easy..." - Albus Dumbledore (Harry Potter)
Diagnosed Celiac in May 2012 by TTG level and endoscopy
Acid reflux/GERD (stopped since eating gluten-free)
Syncope
Raynaud's Syndrome
Iron Deficient
#3
Posted 19 November 2012 - 09:29 PM
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#4
Posted 20 November 2012 - 02:14 PM
Thanks for posting this! I was absolutely appalled by the article - I signed and re-posted on Facebook to get more people to sign.
You're welcome. I was glad to post it because it angered me as well.
#5
Posted 20 November 2012 - 06:24 PM
#6
Posted 20 November 2012 - 06:41 PM
It would be pretty bad, if someone exploited our disorder for financial reasons. BUT, I will withhold my thoughts until more information appears.
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#7
Posted 20 November 2012 - 06:43 PM
If she's following a gluten-free diet, why would she be prone to "passing out"?
Perhaps I am misinterpreting this statement - I have been as gluten-free as possible in the world we live in for over three and half years and still have serious health problems stemming from decades of undiagnosed celiac disease. From what I've read, Ms. Esposito was yet another of us that doctors misdiagnosed for years and she has made every attempt to heal by living gluten-free.
I am not saying there are not two sides to every story - just that if you have Celiac Disease - how can you assume another Celiac's diet would be responsible for a situation such as this - have you never been accidentally glutened? If so, count yourself fortunate.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#8
Posted 20 November 2012 - 06:55 PM
I know someone here in Canada who was diagnosed years ago, and has been gluten-free for at least seven years. She is still unable to work and is on full disability due to refractory celiac disease. Most of us fully recover on a strict gluten-free diet, but not everyone.
We don't know all the facts, so let's not pass judgement.
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
#9
Posted 20 November 2012 - 08:08 PM
Perhaps I am misinterpreting this statement - I have been as gluten-free as possible in the world we live in for over three and half years and still have serious health problems stemming from decades of undiagnosed celiac disease. From what I've read, Ms. Esposito was yet another of us that doctors misdiagnosed for years and she has made every attempt to heal by living gluten-free.
I am not saying there are not two sides to every story - just that if you have Celiac Disease - how can you assume another Celiac's diet would be responsible for a situation such as this - have you never been accidentally glutened? If so, count yourself fortunate.
I agree with this completely.
I’ve thought about it and Jennifer Esposito has had a very successful career so far. One must question why she would throw that away and risk her job on the show if this wasn’t a serious case of her being treated unfairly because of her celiac. She has even stated that CBS implied that she was not truly ill, and that it was a scheme to get a raise. To me, that alone is unacceptable and it shows the lack of awareness out there about this serious disease. Celiac disease is probably the only disease that you can tell somebody you have, and not know what type of response you will get from them. I bet that if this incident had to do with diabetes instead, there would NEVER have been any question about her actually having diabetes. It shows the level of ignorance out there when it comes to celiac, and that has to change. I would expect people, especially celiacs, to have some compassion for her in this situation.
#10
Posted 20 November 2012 - 11:32 PM
Found the show's full episodes web page. The show will be available in two weeks. So December 2.
http://www.foxnews.c...v/1886747599001
Edited by Adalaide, 20 November 2012 - 11:34 PM.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#11
Posted 21 November 2012 - 03:47 AM
There are many articles out there, with more appearing all the time. What they all seem to have in common is that they are based on interviews or quotes from Jennifer Esposito. I have not seen anything that offers the story from the producer's perspective.
I know someone here in Canada who was diagnosed years ago, and has been gluten-free for at least seven years. She is still unable to work and is on full disability due to refractory celiac disease. Most of us fully recover on a strict gluten-free diet, but not everyone.
We don't know all the facts, so let's not pass judgement.
That's true but I also would not be so hasty to file a complaint about this either. She may or may not be being discriminated against but even if she is, we don't know that celiac is the cause.
#12
Posted 24 November 2012 - 06:50 PM
There was an excellent piece on Fox Files Sunday evening. It covered three different people who have celiac. Jennifer happens to be one who was mistreated and misdiagnosed by the medical community for pretty much her entire life. As we all know, healing is a process and even the least bit of CC can lead to serious complications. The piece focused on the struggles she's had through her life rather than the current issue which it only briefly touched on. Unfortunately I can't find the entire piece as a video, it was a half hour long, but if I do I'll post it. (BTW, it also had Dr. Fasano for those who are fans.)
Found the show's full episodes web page. The show will be available in two weeks. So December 2.
http://www.foxnews.c...v/1886747599001
I found out the segment is up on vimeo --->
#13
Posted 24 November 2012 - 07:34 PM
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#14
Posted 24 November 2012 - 07:36 PM
And yes, regardless of your feelings about Fox, it is a well done piece that doesn't fall into the nonsense that makes me want to bash my face on my desk like most of the pieces I see.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#15
Posted 24 November 2012 - 08:21 PM
I found out the segment is up on vimeo --->
Thank you for sharing this - I copied it to my FB with the following:
Finally...an accurate portrayal of Celiac Disease in the media rather than the more common commentary that repeatedly calls a very serious autoimmune disease "trendy" or a "fad weight loss diet" or that "gluten free is a dietary choice" -- I have never said these words before - Thank you Fox News.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
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