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Discrimination Against Celiacs?


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#16 IrishHeart

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Posted 25 November 2012 - 07:17 AM

Perhaps I am misinterpreting this statement - I have been as gluten-free as possible in the world we live in for over three and half years and still have serious health problems stemming from decades of undiagnosed celiac disease. From what I've read, Ms. Esposito was yet another of us that doctors misdiagnosed for years and she has made every attempt to heal by living gluten-free.


I know someone here in Canada who was diagnosed years ago, and has been gluten-free for at least seven years. She is still unable to work and is on full disability due to refractory celiac disease. Most of us fully recover on a strict gluten-free diet, but not everyone.

We don't know all the facts, so let's not pass judgement.


Exactly!
I do not understand how someone can "assume" anything about her diet or if she is compliant or if she is trying to get more money (she isn't. She was interviewed about this subject and she said that was not the issue. She wanted to keep her job, but if she could not meet the demands of the schedule, she wanted them to let her out of her contract. .)

I do not understand how anyone with celiac can criticize anyone else with celiac, period.

If you know anything about this disease, you know it comes with consequences from going undiagnosed as long as she did.


And finally, some celiacs have OTHER issues develop, like microscopic colitis or pernicious anemia--- and this can cause weakness and feeling faint. I know 2 celiacs with these additional AI diseases and they are 100% dietary compliant.

Not everyone with complications from celiac is able to work full time. Those who can should rejoice at their good fortune --and refrain from passing judgement on those who cannot.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


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#17 alucard4545

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Posted 25 November 2012 - 09:49 AM

Thank you for sharing this - I copied it to my FB with the following:

Finally...an accurate portrayal of Celiac Disease in the media rather than the more common commentary that repeatedly calls a very serious autoimmune disease "trendy" or a "fad weight loss diet" or that "gluten free is a dietary choice" -- I have never said these words before - Thank you Fox News.


Beautifully said :)
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#18 alucard4545

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Posted 25 November 2012 - 10:17 AM

Exactly!
I do not understand how someone can "assume" anything about her diet or if she is compliant or if she is trying to get more money (she isn't. She was interviewed about this subject and she said that was not the issue. She wanted to keep her job, but if she could not meet the demands of the schedule, she wanted them to let her out of her contract. .)

I do not understand how anyone with celiac can criticize anyone else with celiac, period.

If you know anything about this disease, you know it comes with consequences from going undiagnosed as long as she did.


And finally, some celiacs have OTHER issues develop, like microscopic colitis or pernicious anemia--- and this can cause weakness and feeling faint. I know 2 celiacs with these additional AI diseases and they are 100% dietary compliant.

Not everyone with complications from celiac is able to work full time. Those who can should rejoice at their good fortune --and refrain from passing judgement on those who cannot.


I could not have said it better myself. I found it a little disheartening to see some of the previous posts, especially ones that are from Advanced Community Members. People who, by the very fact that they are on this site, should have a clearer understanding that gluten free doesn't automatically mean the problem is solved for all celiacs. I too can not understand how anyone with celiac can criticize another celiac...

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#19 Celiac Mindwarp

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Posted 25 November 2012 - 11:29 AM

Me too.

When I read some of the stories here I am so grateful for my own improving health and that I caught it when I did.

I am a full time Mum now, but I am terrified at the prospect of working again. I could probably do 20 hours most weeks, but not on regular hours. The thought that if I was in the public eye my fellow celiacs would attack me is dreadful.
  • 1
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#20 IrishHeart

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Posted 25 November 2012 - 11:29 AM

I could not have said it better myself. I found it a little disheartening to see some of the previous posts, especially ones that are from Advanced Community Members. People who, by the very fact that they are on this site, should have a clearer understanding that gluten free doesn't automatically mean the problem is solved for all celiacs. I too can not understand how anyone with celiac can criticize another celiac...


Going gluten free is not a magic bullet that instantaneously heals everyone. When leading celiac specialists say" It could take 2 years or longer..." I think they are being realistic. Those of us who take longer and who have complications wish we could "hurry it up already". :)
but patience is essential.
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#21 alucard4545

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Posted 25 November 2012 - 04:03 PM

Me too.

When I read some of the stories here I am so grateful for my own improving health and that I caught it when I did.

I am a full time Mum now, but I am terrified at the prospect of working again. I could probably do 20 hours most weeks, but not on regular hours. The thought that if I was in the public eye my fellow celiacs would attack me is dreadful.


It is dreadful isn't it? That's why I started this thread and put the link to the petition right in my first post. In the end it is up to the person to decide whether to sign it, and in my opinion it couldn't hurt. I think it is important to help a fellow celiac who has been mistreated because of her condition. We can have a voice in this.
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#22 Lisa

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Posted 25 November 2012 - 06:51 PM

We don't know all the facts, so let's not pass judgement.


I agree.

She is a highly paid actor and contracts are detailed. We don't know the facts and may never know. I don't know Jennifer's current state of health, or at the point of her dismissal .Nor do I know the reason for her dismissal by the networks. Do YOU know?
As I stated earlier (as an advanced member)....I'm witholding judgement.
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#23 GottaSki

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Posted 25 November 2012 - 07:58 PM

I agree.

She is a highly paid actor and contracts are detailed. We don't know the facts and may never know. I don't know Jennifer's current state of health, or at the point of her dismissal .Nor do I know the reason for her dismissal by the networks. Do YOU know?
As I stated earlier (as an advanced member)....I'm witholding judgement.


The problem is she was not dismissed by CBS. She has not been released from her contract to the show. She has stated both in print and in spoken word - she understands if they need to replace her, but release her from the contract so she can look for alternative work.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#24 Celiac Mindwarp

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Posted 26 November 2012 - 12:28 AM

Whatever the details, the problem I see is people judging what another celiac can or can't do with their own particular health issues.

The details with CBS and Jennifer are between them, unless they choose to share. How would you feel if the world was wading about in your business while you were in a bad phase of this 'difficult' (understatement) disease?
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#25 mushroom

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Posted 26 November 2012 - 12:54 AM

I really don't know the answer to your question, Mindwarp, because it has never come up for me, but I suspect I would like to have someone back me up and say, hey, she needs some special dispensation so let her out of her contract since you are saying she cannot fulfill it.
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Neroli


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#26 Celiac Mindwarp

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Posted 26 November 2012 - 02:03 AM

I have no idea if she can fulfil her contract. I guess maybe I think it is good for people to back her up but not good when people attack her without knowing the facts.

I hate to see people attacked, especially if they have a cr**y disease which is different for all of us.
  • 0
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#27 Celiac Mindwarp

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Posted 26 November 2012 - 02:12 AM

I am going to agree with Peter and bow out of this one
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#28 Chad Sines

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Posted 26 November 2012 - 08:42 AM

If a person cannot do the job they are hired to do, there is a legitimate cause to reconsider their employment. In some jobs, arrangements can be made; however, I could see this being much more difficult for an actress/actor on a show. A hit or miss performer can sink the show quickly. I still think we are missing some of the story.
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#29 alucard4545

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Posted 26 November 2012 - 09:22 AM

The problem is she was not dismissed by CBS. She has not been released from her contract to the show. She has stated both in print and in spoken word - she understands if they need to replace her, but release her from the contract so she can look for alternative work.


Exactly. It really is as simple as that, yet some people on this thread are still missing the point.
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#30 IrishHeart

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Posted 27 November 2012 - 05:38 PM

If you watch the video Adalaide posted, you will see the answers to your questions.

Dr. Fasano VALIDATES the fact that celiacs suffer LONG TERM consequences.

Watch the video. It explains the circumstances of her "release" from work pretty clearly.

She got screwed.

so sorry.....the video Alucard posted. My apologies, hon. ;)

Edited by IrishHeart, 27 November 2012 - 06:18 PM.

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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif



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