My 6 Year Old Just Diagnosed - Question About Reflexes
Posted 19 November 2012 - 07:50 PM
My 6 year old had her celiac panel come back positive. We had been on a gluten-free/DF diet for 2-3 months when her test still came back positive.
We only found out because we were testing her D levels and allergy testing and our dr decided to do celiacs as well. T'was a bit of a shock.
She is seeing a chiro and when we had her consultation, he checked her reflexes and she did not have any at all in her knees. Two weeks later, still nothing.
Something deep in my gut is telling me this is important, and I am worried.
We are going to see a dietician tomorrow, but apart from that - not sure what our plan of action should be.
I would prefer not to do a biopsy if at all possible (I hate anesthetic and kids), our family practice doc agreed because her results were so positive.
My son (3) and I are eating some gluten again, he and I show quite a few symptoms, we are having the test at the end of the month, we are only eating 1 slice of bread a day, am hoping that is enough as the joint pain I have (and have had since bring 18 - no dx ever made, arthritis ruled out) is not fun, as is the brain fog.
So...reflexes? Any input please, and what else should I be asking for.
Posted 19 November 2012 - 08:27 PM
Also,, i have bad knees (they aren't aligned properly with my body, which i found out years ago). They ache when i walk to much or if i'm on concrete to long or if a storm is coming in. No arthritis, no nothing. I've had multiple xrays and have went through physical theraphy.
I thought i'd add that i don't remember them moving. My mom says they may have moved a smidge, but i don't ever remember it and i believe the doctor noted it as it was done.
Posted 20 November 2012 - 07:47 AM
Posted 20 November 2012 - 07:53 AM
Best of luck. I hope you find some answers.
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
Celiac.com - Celiac Disease Board Moderator
Posted 20 November 2012 - 08:23 AM
So work with her doctor and definately explain what is going on, so further tests can be run.
Posted 20 November 2012 - 12:25 PM
Posted 20 November 2012 - 01:14 PM
In our family, we had one 6 yr old who had a REALLY difficult first three months off of gluten. I don't really understand why, it just was very hard on her--lots and lots of belly aches--and some leg pain and then it all evaporated. Our other twin went from intense muscle/joint/bone aches with itching 2-3 x a week to about 1x a month. We happened to be at our (rockstar) cardiologist who asked how the girls are doing...I told him about the remaining aches and itching. He said, "Reduce her lectin intake and see how she does." (I had no idea what lectins even were). We've cut out tomato and bell peppers (of which we ate a lot of) and she has been 100% since.
The trickiest part of Celiac and all of this is that every individual is different. This forum is so excellent because so many people openly share their experiences. Take what works for you and your family! Wishing you as smooth a path as possible to full returned health for you and your kiddos!
Posted 26 November 2012 - 07:24 PM
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