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9 Month Old ? Sensitive To Gluten
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I believe my nine month old may be sensitive to gluten. When he has limited amounts like oatmeal he seems ok but when he has more like cheerios he is grumpy and does not sleep well. he is also a clingy baby. He has moments when he is happy and plays but others when he is miserable and nothing makes him happy. My husband does not agree that is can be gluten causing this,but I also have eczema and headaches and my daughter had mysterious leg pain as a small child, asthma and now some headaches and visual disturbance. Does anyone have advice on convincing a spouse to go gluten free? and feeding a growing baby?

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I believe my nine month old may be sensitive to gluten. When he has limited amounts like oatmeal he seems ok but when he has more like cheerios he is grumpy and does not sleep well. he is also a clingy baby. He has moments when he is happy and plays but others when he is miserable and nothing makes him happy. My husband does not agree that is can be gluten causing this,but I also have eczema and headaches and my daughter had mysterious leg pain as a small child, asthma and now some headaches and visual disturbance. Does anyone have advice on convincing a spouse to go gluten free? and feeding a growing baby?

testing, testing, testing......
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Always do testing before commiting to the diet. Since you have children, it will be important for future accomodations at school if the test returns as a positive.

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...but, find a knowledgeable doc to do the testing. And be aware that false negatives are common in very young children. If both you and your daughter are still eating gluten, you should both get tested. If your SO is sceptical, I'd likely not test my 9 mo old unless he understood the likelihood of a false negative.

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WE will see his pediatrician on tiesday and I will talk to her... she was very understanding as an infant he was not tolerant of most formula(or breast milk) but i never thought it might be gluten that was bothering his tummy. Yesterday my MIL gave him a ritz cracker and her was awake a good portion of the night ( not really crying just complaining) my husband still doesn't think its a link to gluten. He is not small and is chunky too so he says see he is ok. But i am trusting my instincts on this. My daughter has had headaches and slpit second vision blackouts for almost a year with no diagnoses or answers just test all come back normal I will ask about her too.

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Testing is your best option here, and as quickly as you can.

Keep in mind testing is less accurate in patients under 24 months. There may be more food sensitivities than just gluten. Several disorders/ diseases present with similar symptoms.

Keep a food journal. Monitor food amounts, ingredients, symptoms, and BMs and if possible airborn allergy counts.

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    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
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