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Omg Good News!
#1
Posted 20 November 2012 - 10:23 AM
Next steps are full body ct scans and Interferon.
Grateful,
Colleen
*Mental Health Issues, lifetime.
*Hypothyroidism 1993.
*Malabsorbtion 2001.
*Gluten free in Feb. 2012. Digestion issues resolved.
*Metastatic Malignant Melanoma July 2012
"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.
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#2
Posted 20 November 2012 - 10:30 AM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#3
Posted 20 November 2012 - 10:38 AM
OMG!! Such wonderful news! (((hug)))I just got my pathology from the lymph node surgery. All clear margins! No detectable cancer!!!!! I'm so freaking excited.
Next steps are full body ct scans and Interferon.
Grateful,
Colleen
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
#4
Posted 20 November 2012 - 02:02 PM
I am very happy for you - wow, now there is something to be thankful for.
Thank you for sharing
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe ![]()
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#5
Posted 20 November 2012 - 03:27 PM
Diagnosed with wheat hates me 4/13
#6
Posted 20 November 2012 - 05:02 PM
#7
Posted 20 November 2012 - 06:23 PM
It's so nice to hear happy news these days and this is the best!
#8
Posted 20 November 2012 - 06:27 PM
Gluten Free - August 15, 2004
"Not all who wander are lost" - JRR Tolkien
#9
Posted 21 November 2012 - 08:03 AM
Glad you have people around you too.
Mw x
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein ![]()
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