Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Will My Children Be Celiac?
0

13 posts in this topic

I don't have any children yet but when I do I was just wondering what the odds are of them having celiac too?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I believe the current statistics show 1 in 22 - it depends on so many factors.

If you are curious, you could have yourself gene tested. I have a pair of one set of genes which means all of my children have at least one celiac gene. Even if your children inherit a celiac gene it does not mean they will develop Celiac Disease. About 30% of the population carry celiac genes - yet only an estimated 1% of the population develop Celiac Disease.

0

Share this post


Link to post
Share on other sites

My husband and son both have celiac. I think those odds are a bit off. It is genetic so you could walk around with it and never know until something triggers it.

0

Share this post


Link to post
Share on other sites

My husband and son both have celiac. I think those odds are a bit off. It is genetic so you could walk around with it and never know until something triggers it.

I agree with this as all of my kids and both grands have Celiac Disease or NCGI. But again, I have several copies of genes and my husband is a non-celiac carrier.

The point is that while many families have several celiacs, there are others with only one. Additionally, it seems more of us may be triggered by present day food supply than previous generations.

Personally, I think a Mom diagnosed before her children are born is in a wonderful position to provide the best possible food for her children - thus giving them the best shot for a long healthful life :)

0

Share this post


Link to post
Share on other sites

I think the studies are totally off on this. BOTH of my kids ended up having celiac. My mom has it, three of her siblings have it, I'm fairly positive that my brother's two kids have it, my sister's daughter has it--get my drift? Even though the official nonsense says that it's 1 out of 22 who get it, it seems a lot more common than that. If you have celiac, just make certain your household is gluten free. Your kids can eat gluten outside of the home....and if it ends up being a problem for them, then you'll have your answer.

1

Share this post


Link to post
Share on other sites




I was diagnosed at age 49... the only one in my small immediate family and my small extended family. About 4 years later, my second daughter was diagnosed at about age 28. Third daughter was diagnosed a few years later at age 27 and spent more than a year w/ the most severe symptoms and dietary restrictions I've ever heard of until she's been able to bring more foods back into her diet. First daughter was diagnosed 2 years ago... all in the family.

0

Share this post


Link to post
Share on other sites

Very interesting! How do I do a gene test?

I believe the current statistics show 1 in 22 - it depends on so many factors.

If you are curious, you could have yourself gene tested. I have a pair of one set of genes which means all of my children have at least one celiac gene. Even if your children inherit a celiac gene it does not mean they will develop Celiac Disease. About 30% of the population carry celiac genes - yet only an estimated 1% of the population develop Celiac Disease.

0

Share this post


Link to post
Share on other sites

Your doctor can order blood tests for Celiac genes. I've also seen folks on this board that have had it done through private companies.

There are drawbacks to gene testing

  • most U.S. doctors test for DQ2 and DQ8 only
  • there are other genes associated with Celiac Disease and NCGI
  • it is possible to have positive antibodies and/or positive biopsy without any of the associated genes

There are likely more drawbacks that I'm not thinking of right now.

As long as you are aware that these tests are only an indication rather than concrete information they can be worth while.

0

Share this post


Link to post
Share on other sites

The problem with gene testing is that 30-40 percent of Americans carry one or both celiac genes. Celiac occurs after it's been triggered, so you may carry the gene but never develop celiac. Therefore, to me the testing seems irrelevant.

0

Share this post


Link to post
Share on other sites

We found it helpful in my family as my kids were all testing negative - all with different symptoms -- my gene testing was an important piece of the puzzle for them. Honestly, it was my celiac doc suggested it when we were frustrated with the diagnosis process of my children. I never would have been tested without his suggestion.

Again - it is not conclusive information - but is another piece of the puzzle.

0

Share this post


Link to post
Share on other sites

Maybe. In my family, there are only a few of us diagnosed - me, two of my aunts, and one of my cousin's children. I don't have any kids and my parents are are not diagnosed as celiac (though my mother refuses to get tested, and it's her sisters who have it, so who knows). One celiac aunt has five children, none of whom are diagnosed celiac. The other aunt has two sons. One son doesn't have it; the other probably does but refuses to get tested - and his oldest son has celiac.

I think there is more celiac disease in my family then we know of - but since many of these relatives refuse to get testing done, it's hard to be sure. At any rate, it's not a done deal that your kids would get celiac. Even if they inherit celiac genes from you, they may never develop the disease - but at least they'll be aware of it and you'll know to keep an eye on them.

0

Share this post


Link to post
Share on other sites

Hi

Not much help - but I'm sure I have read somewhere that in Norway (or somewhere in Scandinavia :ph34r: ) due to the higher incidence of celiac it is now recommended that babies and young children are gluten free. This apparently gives you a better chance of tolerating gluten in later life!

My eldest brother has celiac, my other brother has had seizures and spaced out problems (celiac ?) but will have none of it!

Pretty sure my Dad has and lots of auto immune probs in his family and I think my mum had DH.

I think my son has celiac but at the moment he just won't wear it.

I have Irish ancestors.

May possibly be completely crazy, of course :ph34r: .

0

Share this post


Link to post
Share on other sites

Just thought I should point out that my paragraph about celiac in Scandinavia is not intended to be a fact.

Personally though, if I had a baby (too old by the way) I would not now give it any gluten and even when older believe that it should present very little of any diet.

Then again - I'm a pretty anti-gluten person.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,145
    • Total Posts
      919,571
  • Topics

  • Posts

    • I found when I went gluten free I started eating more dairy and that gave me worse stomach aches and bloating than the gluten did. So now I have to avoid gluten and dairy.  Maybe you have a similar problem with something you are eating.  I hope you feel better soon.  
    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,177
    • Most Online
      1,763

    Newest Member
    lolobaggins
    Joined