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Will My Children Be Celiac?
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I don't have any children yet but when I do I was just wondering what the odds are of them having celiac too?

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I believe the current statistics show 1 in 22 - it depends on so many factors.

If you are curious, you could have yourself gene tested. I have a pair of one set of genes which means all of my children have at least one celiac gene. Even if your children inherit a celiac gene it does not mean they will develop Celiac Disease. About 30% of the population carry celiac genes - yet only an estimated 1% of the population develop Celiac Disease.

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My husband and son both have celiac. I think those odds are a bit off. It is genetic so you could walk around with it and never know until something triggers it.

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My husband and son both have celiac. I think those odds are a bit off. It is genetic so you could walk around with it and never know until something triggers it.

I agree with this as all of my kids and both grands have Celiac Disease or NCGI. But again, I have several copies of genes and my husband is a non-celiac carrier.

The point is that while many families have several celiacs, there are others with only one. Additionally, it seems more of us may be triggered by present day food supply than previous generations.

Personally, I think a Mom diagnosed before her children are born is in a wonderful position to provide the best possible food for her children - thus giving them the best shot for a long healthful life :)

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I think the studies are totally off on this. BOTH of my kids ended up having celiac. My mom has it, three of her siblings have it, I'm fairly positive that my brother's two kids have it, my sister's daughter has it--get my drift? Even though the official nonsense says that it's 1 out of 22 who get it, it seems a lot more common than that. If you have celiac, just make certain your household is gluten free. Your kids can eat gluten outside of the home....and if it ends up being a problem for them, then you'll have your answer.

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I was diagnosed at age 49... the only one in my small immediate family and my small extended family. About 4 years later, my second daughter was diagnosed at about age 28. Third daughter was diagnosed a few years later at age 27 and spent more than a year w/ the most severe symptoms and dietary restrictions I've ever heard of until she's been able to bring more foods back into her diet. First daughter was diagnosed 2 years ago... all in the family.

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Very interesting! How do I do a gene test?

I believe the current statistics show 1 in 22 - it depends on so many factors.

If you are curious, you could have yourself gene tested. I have a pair of one set of genes which means all of my children have at least one celiac gene. Even if your children inherit a celiac gene it does not mean they will develop Celiac Disease. About 30% of the population carry celiac genes - yet only an estimated 1% of the population develop Celiac Disease.

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Your doctor can order blood tests for Celiac genes. I've also seen folks on this board that have had it done through private companies.

There are drawbacks to gene testing

  • most U.S. doctors test for DQ2 and DQ8 only
  • there are other genes associated with Celiac Disease and NCGI
  • it is possible to have positive antibodies and/or positive biopsy without any of the associated genes

There are likely more drawbacks that I'm not thinking of right now.

As long as you are aware that these tests are only an indication rather than concrete information they can be worth while.

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The problem with gene testing is that 30-40 percent of Americans carry one or both celiac genes. Celiac occurs after it's been triggered, so you may carry the gene but never develop celiac. Therefore, to me the testing seems irrelevant.

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We found it helpful in my family as my kids were all testing negative - all with different symptoms -- my gene testing was an important piece of the puzzle for them. Honestly, it was my celiac doc suggested it when we were frustrated with the diagnosis process of my children. I never would have been tested without his suggestion.

Again - it is not conclusive information - but is another piece of the puzzle.

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Maybe. In my family, there are only a few of us diagnosed - me, two of my aunts, and one of my cousin's children. I don't have any kids and my parents are are not diagnosed as celiac (though my mother refuses to get tested, and it's her sisters who have it, so who knows). One celiac aunt has five children, none of whom are diagnosed celiac. The other aunt has two sons. One son doesn't have it; the other probably does but refuses to get tested - and his oldest son has celiac.

I think there is more celiac disease in my family then we know of - but since many of these relatives refuse to get testing done, it's hard to be sure. At any rate, it's not a done deal that your kids would get celiac. Even if they inherit celiac genes from you, they may never develop the disease - but at least they'll be aware of it and you'll know to keep an eye on them.

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Hi

Not much help - but I'm sure I have read somewhere that in Norway (or somewhere in Scandinavia :ph34r: ) due to the higher incidence of celiac it is now recommended that babies and young children are gluten free. This apparently gives you a better chance of tolerating gluten in later life!

My eldest brother has celiac, my other brother has had seizures and spaced out problems (celiac ?) but will have none of it!

Pretty sure my Dad has and lots of auto immune probs in his family and I think my mum had DH.

I think my son has celiac but at the moment he just won't wear it.

I have Irish ancestors.

May possibly be completely crazy, of course :ph34r: .

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Just thought I should point out that my paragraph about celiac in Scandinavia is not intended to be a fact.

Personally though, if I had a baby (too old by the way) I would not now give it any gluten and even when older believe that it should present very little of any diet.

Then again - I'm a pretty anti-gluten person.

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    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)
       
    • Excellent point, GFinDC!!! I just assumed that Steph had the endoscopy and not just the antibodies tests.    
    • She (your PCP)  can order a celiac blood panel.  It might not be a complete panel, but it's a start.  Any medical doctor can order one.  A GI is needed for the endoscopy (ulcers, Celiac disease, h.pylori, etc.), HIDA scan (gallbladder)  or colonoscopy (IBS).   Since you just saw her, email/call/write a letter and ask her to order (lab) the celiac panel.  You could go to the lab before or after work.  Pretty easy!  
    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
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