Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Deciding To Start A Gluten-Free Diet
0

13 posts in this topic

I had a blood test for celiac and it was negative and yesterday I had a biopsy and won't have the results until December 17. At first I had decided I would try gluten-free for 3 months anyways to see if I have a gluten intolerance and to see if it improves my symptoms but now I am struggling with the idea. If I knew I had celiac then it would be easy to stick to it but if I don't even have celiac then how am I going to be able to stick to such a restrictive diet. Originally I was going to start the diet after my biopsy but now I am wondering if I should even bother. There are a million different things that could be causing my symptoms so why put myself through all the trouble?? I am very conflicted right now. For those who don't have a celiac diagnosis how do you make yourself stick to the diet?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Well, my guts react very strongly to gluten (in a bad way) and now I also seem to have a wheat allergy to boot. So that pretty much leaves me no choice but to be gluten-free.

Have you tried eliminating and then re-introducing gluten into your diet? I did that twice, and each time the nasty results clinched it for me.

ps. I mean only if your biopsy is negative of course.

0

Share this post


Link to post
Share on other sites

Yes, this is true--if you eliminate gluten and feel great...and then reintroduce it and feel horrible again, you have your answer. You won't know if you don't try, right? The sooner you try, the sooner you may start feeling well. Believe me--you'll have your answer soon enough, and then you won't mind the "restrictive" diet (which really isn't very restrictive at all).

0

Share this post


Link to post
Share on other sites

The only difference between knowing the answer and not knowing is knowledge. However, if your body reacts positively without gluten and negatively with it...the decision is simple. Plus, if you do have celiac and don't get definitive proof that you don't, ignoring it and continuing to consume products with gluten can have long term effects you may want to avoid. The decision comes easy when you learn your body can be permanently and irreversibly harmed by continuing down the same path, but if you don't have it and gluten-free does not help, then you're right...why restrict yourself at all. Eat what you want and have your GP focus in on what could really be the problem.

0

Share this post


Link to post
Share on other sites

Feel much better without gluten. Like, much better.

Also, I like having good fresh food.

And, the good folks here will help if you have a wobble.

Keep investigating other possibilities, ask lots of questions

Good luck, and welcome

:)

0

Share this post


Link to post
Share on other sites




How long would I have to be gluten free before I could "challenge" it? I know you are supposed to do a minimum of 3 months but if I did gluten free for one month and then ate gluten would that be enough time out of my system to make me feel like garbage if I am gluten intolerant? I am very stubborn and like proof for things so I think it would be beneficial for me to see that it is actually the gluten making me feel like crap, as dumb as that sounds. Also how do you get started? Do you just wake up one day and say no more gluten? I keep thinking I need to do a bunch of stuff to prepare or something.

0

Share this post


Link to post
Share on other sites

.. There are a million different things that could be causing my symptoms so why put myself through all the trouble?? I am very conflicted right now. For those who don't have a celiac diagnosis how do you make yourself stick to the diet?

Putting yourself through "all the trouble" of following a gluten-free diet will eliminate one of the "million things" that could be causing your symptoms. You need to start somewhere right? Eating gluten-free is a heathly diet that is good for you. It doesn't need to be complicated or expensive if you follow a whole foods diet. After you have been gluten-free a while you may not want to go back to eating the "junk" food from before. If you follow a gluten-free diet for 3 to 6 months and then do a gluten challenge for a couple weeks your body should let you know if it likes gluen or not. If your symptoms don't return then you are probably ok with eating gluten. Even if that turns out to be true, you will have learned how to eat healthier, more wholesome foods that will support your body better than processsed junk foods. And that knowledge can help you the rest of your life. Even if you have some other disease, a healthy diet is a positive for your health, not a negative.

0

Share this post


Link to post
Share on other sites

I get sick when I eat gluten, so I am highly motivated to avoid it. I don't have a formal diagnosis, either. I knew within 24 hours that I had found what was bothering me, but I wasn't taking a bunch of masking medications, and I pay close attention to how I feel and react to things. I had lots of non gluten food in the house, which is really important, and had my spouse gradually eat up the "bad" regular food. After several years of sometimes making mistakes with cross contamination, I had it more or less sorted out that I just had to be really insistent on having safe food available, in all situations, to protect myself.

0

Share this post


Link to post
Share on other sites

I had a blood test for celiac and it was negative and yesterday I had a biopsy and won't have the results until December 17. At first I had decided I would try gluten-free for 3 months anyways to see if I have a gluten intolerance and to see if it improves my symptoms but now I am struggling with the idea. If I knew I had celiac then it would be easy to stick to it but if I don't even have celiac then how am I going to be able to stick to such a restrictive diet. Originally I was going to start the diet after my biopsy but now I am wondering if I should even bother. There are a million different things that could be causing my symptoms so why put myself through all the trouble?? I am very conflicted right now. For those who don't have a celiac diagnosis how do you make yourself stick to the diet?

You know what feels better for your belly. Keep in mind that YOU are the one that hurts when you eat/drink something your body can't process. I have fallen off of the wagon before, and suffered for weeks after. That's what keeps me from doing it most days....now that I know how it feels to NOT have tummy pain all of the time, I don't want to go back to all that pain.

I'm to the point that I have to juice. I may eat one small meal per day, but the rest of the time I juice (I AM NOT SUGGESTING THIS TO ANYONE, IT"S WHAT I HAVE TO DO TO BE OKAY), and I've been so much happier & the belly bloat is mostly gone.

I keep all temptations that are my weakness, like no doughnuts in the house.....but the ones that I care little about are here for my family (like bread for sandwiches). Avoiding all temptations is what works for me.

And now I'm staying away from restaurants because of an accidental exposing to gluten because it hurts so bad!

hugs you!

0

Share this post


Link to post
Share on other sites

I think a gluten-free diet would be a good place to start because it does not require medications with all their expense and side effects, and it doesn't require surgery.

You need to be strict about it though. A lot of folks go gluten-free, but they don't consider cross-contamination. Go read the "Newbie 10 " thread to learn about places that gluten hides. Then give it a good try. Three months isn't that long. It'll fly by!

Also, be aware that you will feel worse for a couple of weeks. You will go through withdrawal and probably have headaches and constant hunger. Don't let that bring you down. A lot of us find that even though we get headaches, the OTHER symptoms clear up pretty quickly.

Good luck. If you have any questions, this is the place. We have all been through it and are more than glad to help. :)

0

Share this post


Link to post
Share on other sites

Truthfully it just depends on how sensitive you are. I don't have a formal diagnosis, either. I can tell usually within an hour if I have accidentally had gluten. I feel as if I have the stomach flu when I eat it now. Before going gluten free 5 weeks ago, I just always felt bad.

0

Share this post


Link to post
Share on other sites

I am currently on day 3 of my diet. I decided to go for it. I definitely don't feel any better yet and I am STARVING! I am eating lots of healthy foods and making sure I am gluten-free. How long until I start to feel remotely better if gluten is the problem?

0

Share this post


Link to post
Share on other sites

gluten withdrawl... its just as real as any other addictive withdrawl.... your body will crave it and it will cause many a mood swings and such....

It takes time dear, just hang in there....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,636
    • Total Posts
      921,533
  • Topics

  • Posts

    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,639
    • Most Online
      3,093

    Newest Member
    NickyW_UK
    Joined