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Impatient And Still Frustrated
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I wrote early about being in the hospital and finding about my anemia. Has anyone else had such a problem with iron deficiency? I got IV iron when I was in the hospital cause they say I was absorbing it anyway. How long did it take you to start feeling better. I am still so dizzy and tired. I want to go back on the gluten free diet because I have started having tummy troubles again (not sure if its anxiety about possibly having celiac) or because I do have regardless of my negative results and its manifesting again. Very annoyed I can't go on the diet till the EGD which is who knows when

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I wrote early about being in the hospital and finding about my anemia. Has anyone else had such a problem with iron deficiency? I got IV iron when I was in the hospital cause they say I was absorbing it anyway. How long did it take you to start feeling better. I am still so dizzy and tired. I want to go back on the gluten free diet because I have started having tummy troubles again (not sure if its anxiety about possibly having celiac) or because I do have regardless of my negative results and its manifesting again. Very annoyed I can't go on the diet till the EGD which is who knows when

About a year ago I was told by my doctor that I had "enough" iron to be okay and gave me this example: I'm a grocery store for iron and I have enough on the shelves, but none in the back. Weird, I know. My main symptoms were fatigue and always being cold (you can find me in a sweatshirt in the middle of the summer, and I live in the south.) I was also found to have low magnesium. I nipped both of those in the bud by adding in more leafy greens for magnesium and red meat for iron, as well as a magnesium supplement. I don't recommend an iron supplement unless your doctor prescribes it because too much iron can be dangerous. Hope you find the answers you're looking for!

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Right now they say Iron pills are pointless because its all malabsorption. So I get to sit and wait until my hematologist orders me more IV iron. They said it could take months to build up my stores because I pretty much have none

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    • Thanks.  This is very helpful.  Our first post diagnosis grocery store trip took several hours, just trying to read labels to make sure everything is safe.   Our son loves bread and this going to be the hardest part. 
    • i would agree with most of your assessment but overall the popular chefs are very aware. Ed Kenny at Town did have  gluten-free options on the menu.  Mavro's will fix something special given advance notice but its expensive.  excellent but very expensive.  Alan Wong is very aware and will have his staff prepare something as well.  We did find many options at both Oahu  whole foods -- mostly  with tofu. the only thing  there is to be aware of cross contamination with things  next to it.  they make a great gluten-free southwestern tofo dish which is great but not if its sitting next to anything with gluten. Its not whole foods but people use the smae  spoons and tongs i found more at   down to earth in peal city than by  University ave  
    • Hi,  I'm in KOna but my kaiser doctor just retired  who was pretty good about it. I dont know of a specialist here  but most of hte kaiser docs wil test you if thats when you need to talk to them about. good luck  
    • Yes.  And wouldn't it have been nice if your doctor had tested you for Celiac disease before you went gluten free? Then you would know if your issues are Celiac or not.  That would help you know how careful you need to be, what other illnesses and problems to look for, whether you might be passing a genetic disease on to your children, if you should look for another cause of your symptoms, etc  
    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
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