How is everyone doing?
Hi Molly,
I don't know if I've met you. I'm Loey and wanted to introdce myself and congratulate you on graduating. It's a lovely picture of you. I hope you're feeling well and have been away due to studies, not health.
Loey
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1480 replies to this topic
#256
Loey
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Posted 04 December 2012 - 06:47 AM
Hi Molly,
I don't know if I've met you. I'm Loey and wanted to introdce myself and congratulate you on graduating. It's a lovely picture of you. I hope you're feeling well and have been away due to studies, not health.
Loey
#257
Loey
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Posted 04 December 2012 - 06:48 AM
Yes, celiac3270 and I both live in Boston now, but he's finishing up his first semester of senior year at Harvard, so he's been working a lot so we haven't had time to hang out, but still keep in touch and will see each other soon! Yes I graduated, degree in chemistry (I don't really know how I did it), I'm taking some time off enjoying life before applying to medical and PHD schools for graduate work, so hopefully starting one of those in the next few years!
You go girl!!!
Loey
#258
jerseyangel
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Posted 04 December 2012 - 10:31 AM
Never guess who is doing a gluten free trial--Mark (my husband for anyone who doesn't know). Seems to be helping greatly his reflux and a couple other things. I'm packing him a gluten-free lunch every day 
Patti
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
#259
shadowicewolf
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Posted 04 December 2012 - 10:59 AM
Guys... i just did my presentation on celiac in my bio lab today 
The professor said i did really good and i didn't have a breakdown panic attack like i normally would.
The professor said i did really good and i didn't have a breakdown panic attack like i normally would.
ADHD
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
Asperger's syndrome
Stress issues
Celiac
Allergic to red food coloring.
#260
elye
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Posted 04 December 2012 - 02:45 PM
Guys... i just did my presentation on celiac in my bio lab today
Way to go, Wolfie!
That's a great opportunity to educate people -- I'll bet several students left your presentation thinking, "Gee, that could explain my migraines, constipation, depression and rashes... . . ..I need to get that blood work done"..... Never guess who is doing a gluten free trial--Mark (my husband for anyone who doesn't know). Seems to be helping greatly his reflux and a couple other things. I'm packing him a gluten-free lunch every day
Patteigh, like Will and I, you will both be known as "that weird couple with the SAME disease"...
Emily
diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006
But healthy and happy!
11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!
The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)
diagnosed type one diabetic 1973
diagnosed celiac winter 2005
diagnosed hypothyroid spring 2006
But healthy and happy!
11 year-old Son had negative blood panel, but went on gluten-free diet of his own volition to see if his concentration would improve, his temper abate, and his energy level would increase. Miraculous response!
The great are great only because we are on our knees.
--Pierre Joseph Proudhon (1809-1865)
#261
psawyer
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Posted 04 December 2012 - 03:05 PM
Well, we have been doing some out-of-season spring cleaning around here. It is our turn to host the family Christmas dinner for my family. We are slowly sorting through stuff, some of which is related to our now-closed retail business. We filled the garage with gems and detritus prior to closing the store in late June. July was a rest period, and from early August to early September we did some travelling, and met up with a few pholks phrom psillyville.
Today marked a major milestone. For the phirst time in six months, there is enough room to park one of our vehicles in the garage. Tonight, the Ford will be sheltered.
Today marked a major milestone. For the phirst time in six months, there is enough room to park one of our vehicles in the garage. Tonight, the Ford will be sheltered.
Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
#262
Celiac Mindwarp
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Posted 04 December 2012 - 03:19 PM
Wow, a VEHICLE in the GARAGE? I have been my house less than a year, but it never crossed my mind that was possible (genuinely ). Well done, good work.
Visiting psyliville folks sounds fun.
Hope sorting business stuff out is helping.
Detritus is one of my favorite words. I considered having a band called Clam Detritus. Then remembered my lack of musical talent
Wow
). Well done, good work.Visiting psyliville folks sounds fun.
Hope sorting business stuff out is helping.
Detritus is one of my favorite words. I considered having a band called Clam Detritus. Then remembered my lack of musical talent
Wow
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#263
mushroom
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Posted 04 December 2012 - 03:22 PM
Way to go, Wolfie!
Patteigh, like Will and I, you will both be known as "that weird couple with the SAME disease"...
That makes three of us here, Clay and I are on the list, too. How many more of us are there???
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#264
kareng
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Glass zebra just because he's cute
Posted 04 December 2012 - 04:29 PM
Well, we have been doing some out-of-season spring cleaning around here. It is our turn to host the family Christmas dinner for my family. We are slowly sorting through stuff, some of which is related to our now-closed retail business. We filled the garage with gems and detritus prior to closing the store in late June. July was a rest period, and from early August to early September we did some travelling, and met up with a few pholks phrom psillyville.
Today marked a major milestone. For the phirst time in six months, there is enough room to park one of our vehicles in the garage. Tonight, the Ford will be sheltered.
Yeah! Blame it on us!
That makes three of us here, Clay and I are on the list, too. How many more of us are there???
We eat mostly gluten-free at home and when we go to PF Changs we all order gluten-free so we can share. So a teenager & a Hub plus a college student when he is home....not quite the same but the 3 of them probably equal 1 whole gluten-free person?
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
#265
VydorScope
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Posted 04 December 2012 - 05:44 PM
So we added soy back in to Tim's diet and he seems fine on it after 3 months. Now we are trying mammal meat, and he is sick. So is he sick, or is he reacting to the meat? GRRRR.
- Vincent -
My son Timothy is Gluten Free, Egg Free, Diary Free, Soy Free, Almond Free, and Oat Free and yet still manages to get plenty of junk food some how!
My son Timothy is Gluten Free, Egg Free, Diary Free, Soy Free, Almond Free, and Oat Free and yet still manages to get plenty of junk food some how!
#266
GottaSki
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"Migratory flight complete."
Posted 04 December 2012 - 06:10 PM
I finally learned how to MultiQuote
Dave is the only non-celiac in the house hence he eats mostly gluten-free and has seen health benefits over the past three years. He has increased his bicycle riding to hundreds of miles per month -- before my diagnosis he was fit but packing a lot of unexplained weight -- sound familiar?
Yay Shadow!!! It is amazing how much easier it is to public speak to a subject you know well. I agree choosing this topic whenever possible is helpful to many. My son has given three Celiac speeches now. One in HS and two in college.
Parking in the garage - congratulations!!!! I have not parked in our "shop" since our first rental home in Santa Barbara back in '85. Somehow that garage addition has got lost in the game of life with my contractor hubby.
Careful Mw -- you may have a Silly visitor one day
I am onto another piece of my silly health puzzle that docs and labs don't test for in the US -- believe it. Unfortunately I don't have the funds necessary to visit my friends in Oz or Europe so I'll figure my way around our silly health care system.
Dave is mostly gluten-free - he does eat out about once a month or with clients when necessary.
Edited -- doh lost this one in the multiquote haze --
Add Dave to the partial group.
forgot to also say -- do celiacs attract other sillys? Dave's Mom had Sjogren's Auto Hep and RA -- no wonder our kids hit the AI jackpot
So sorry to hear Tim is having a tough time reintroducing food....awful when you don't know it's food or just a virus -- also -- I had a delayed reaction when I added the few foods that passed my elimination test last year. Don't want to suggest re-removing soy - just it is tough to figure it out.
Never guess who is doing a gluten free trial--Mark (my husband for anyone who doesn't know). Seems to be helping greatly his reflux and a couple other things. I'm packing him a gluten-free lunch every day
Dave is the only non-celiac in the house hence he eats mostly gluten-free and has seen health benefits over the past three years. He has increased his bicycle riding to hundreds of miles per month -- before my diagnosis he was fit but packing a lot of unexplained weight -- sound familiar?
Guys... i just did my presentation on celiac in my bio lab today
Yay Shadow!!! It is amazing how much easier it is to public speak to a subject you know well. I agree choosing this topic whenever possible is helpful to many. My son has given three Celiac speeches now. One in HS and two in college.
Well, we have been doing some out-of-season spring cleaning around here. It is our turn to host the family Christmas dinner for my family. We are slowly sorting through stuff, some of which is related to our now-closed retail business. We filled the garage with gems and detritus prior to closing the store in late June. July was a rest period, and from early August to early September we did some travelling, and met up with a few pholks phrom psillyville.
Today marked a major milestone. For the phirst time in six months, there is enough room to park one of our vehicles in the garage. Tonight, the Ford will be sheltered.
Parking in the garage - congratulations!!!! I have not parked in our "shop" since our first rental home in Santa Barbara back in '85. Somehow that garage addition has got lost in the game of life with my contractor hubby.
Wow, a VEHICLE in the GARAGE? I have been my house less than a year, but it never crossed my mind that was possible (genuinely
Visiting psyliville folks sounds fun.
Hope sorting business stuff out is helping.
Detritus is one of my favorite words. I considered having a band called Clam Detritus. Then remembered my lack of musical talent
Wow
Careful Mw -- you may have a Silly visitor one day
I am onto another piece of my silly health puzzle that docs and labs don't test for in the US -- believe it. Unfortunately I don't have the funds necessary to visit my friends in Oz or Europe so I'll figure my way around our silly health care system.That makes three of us here, Clay and I are on the list, too. How many more of us are there???
Dave is mostly gluten-free - he does eat out about once a month or with clients when necessary.
Yeah! Blame it on us!
We eat mostly gluten-free at home and when we go to PF Changs we all order gluten-free so we can share. So a teenager & a Hub plus a college student when he is home....not quite the same but the 3 of them probably equal 1 whole gluten-free person?
Edited -- doh lost this one in the multiquote haze --
Add Dave to the partial group.
forgot to also say -- do celiacs attract other sillys? Dave's Mom had Sjogren's Auto Hep and RA -- no wonder our kids hit the AI jackpot
So we added soy back in to Tim's diet and he seems fine on it after 3 months. Now we are trying mammal meat, and he is sick. So is he sick, or is he reacting to the meat? GRRRR.
So sorry to hear Tim is having a tough time reintroducing food....awful when you don't know it's food or just a virus -- also -- I had a delayed reaction when I added the few foods that passed my elimination test last year. Don't want to suggest re-removing soy - just it is tough to figure it out.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#267
VydorScope
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Posted 04 December 2012 - 06:26 PM
Guys... i just did my presentation on celiac in my bio lab today
YAY!! Congrats!!
- Vincent -
My son Timothy is Gluten Free, Egg Free, Diary Free, Soy Free, Almond Free, and Oat Free and yet still manages to get plenty of junk food some how!
My son Timothy is Gluten Free, Egg Free, Diary Free, Soy Free, Almond Free, and Oat Free and yet still manages to get plenty of junk food some how!
#268
Loey
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Posted 04 December 2012 - 06:47 PM
So we added soy back in to Tim's diet and he seems fine on it after 3 months. Now we are trying mammal meat, and he is sick. So is he sick, or is he reacting to the meat? GRRRR.
So sorry to hear Tim's having trouble re-introducing foods. I went through the elimination diet (only eating rice, vegetables and some fruit). It got extremely boring. Re-entering has to be a slow process but it's SO frustrating. Kareeng helped me a lot when I was going through it. You might find he had=s an easier time with chicken than red meat. Just know we're all pulling for him and sending lots of positive energy. It took me three years but now I'm able to eat a wide range of for. I don't seem to enjoy meat. I'll have an occasional steak. Thai food is tasty and tolerable to most.Keep us posted and remember we're here for you and your family.
Loey
#269
VydorScope
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Posted 04 December 2012 - 07:10 PM
Yea he does fine with birds, fish and other non-mammal meat. Its only mammal meat he has a problem with .
- Vincent -
My son Timothy is Gluten Free, Egg Free, Diary Free, Soy Free, Almond Free, and Oat Free and yet still manages to get plenty of junk food some how!
My son Timothy is Gluten Free, Egg Free, Diary Free, Soy Free, Almond Free, and Oat Free and yet still manages to get plenty of junk food some how!
#270
kareng
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Glass zebra just because he's cute
Posted 04 December 2012 - 07:19 PM
So sorry to hear Tim's having trouble re-introducing foods. I went through the elimination diet (only eating rice, vegetables and some fruit). It got extremely boring. Re-entering has to be a slow process but it's SO frustrating. Kareeng helped me a lot when I was going through it. You might find he had=s an easier time with chicken than red meat. Just know we're all pulling for him and sending lots of positive energy. It took me three years but now I'm able to eat a wide range of for. I don't seem to enjoy meat. I'll have an occasional steak. Thai food is tasty and tolerable to most.Keep us posted and remember we're here for you and your family.
Loey
That's just cause I'm a smart a$$ who thinks laughing is good for digestion! That and, was it " riding a broomstick?" :0
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
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