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The Funny Pages - Tickle Me Elbow - The Sequel
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2,226 posts in this topic

Yup, you get the good stuff...hope it hold until it gets to the coast. Sadly, we might just get a dusting. Snow day tomorrow for YOU! :D

We usually do not... we usually get nothing here due to the small mountain valley we are in.

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Its in the 50s here and i spotted a wasp outside :ph34r:

Sorry i haven't been on, but i'm finally back at school B)

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Thanks guys :wub:

Some pretty drastic changes in my life over the last 2 months (marriage breakup...moving out......distinctly UNpsilly stressy stuph etc, etc)

It is snowing!!!!!

SNAAAAPPP!!!!!!

I'm SO cold!!.....not cut out for this wevah!

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((((Hugs)))) Nik.

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Oh, Nik. .. ..I'm so sorry. Had no idea..... . ...sending you love and strength. I'm thinking of you and your boys.....! :wub::wub:

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Oh, I am so sorry to hear that, Gnickers. I take back my (slightly) snippy ;) words, and you can have your old job back!! Stay strong, sending love and {{{{hugs}}}}

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Lots of hugs Knick. :( I hope you are starting to feel like you are coming out the other side.

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Lots of hugs Knick. :( I hope you are starting to feel like you are coming out the other side.

Yeah....Jess always has a wonderful way of saying things. Yup, hope your darkest days are behind you - hugs from me too! ;)

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Thanks guys :wub:

Some pretty drastic changes in my life over the last 2 months (marriage breakup...moving out......distinctly UNpsilly stressy stuph etc, etc)

Sorry to hear that! Hope that means everything gets better from here forward!

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Hugs to Nikki from here in the colonies. :wub:

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Nikki

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So sorry to hear this news lots of loving hugs coming your way Nikki

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Oops what'd I miss, smileys-king-741814.gif reigning in absentia? Wayyy too busy w/ Ronaihna messin w/ his cousin Monti's head. Hope it just blows over.

Ohhhh Gnikkers, hugs from me too. Screw that boiler tho, yah?

Russel (hehe) awesome that the work hrs didn't change. How awful/worrisome that something as potentially impactful on your ds could be so cavalierly changed.

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So sorry to hear of all your unpsilliness, Knickers. {{{HUGS}}}}

What???? Nobody called me? I SO would've been there!.........Just the wee matter of a plane ticket

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Nik :wub: :wub: :wub: I am so sorry to hear of this news. Message me anytime!! Tis still pretty fresh... Love you!!

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Hugs Nikki :wub: ... I have ordered a professional baking pan for donuts, it's heavy enough to classify as self-defense weapon. If you need it, it's yours. Just stress management, you know... :ph34r:

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I have ordered a professional baking pan for donuts, it's heavy enough to classify as self-defense weapon.

:lol: :lol: :lol:

I've been working on my five year plan - whaddaya'll think?

Plan A. Work for five years, save money, sell the house, move to Ecuador and retire.

Plan B. Work for five years, save money, sell the house, spend several years sailing the South Pacific, around South America, and the Carribean with the pirate. Then move to Ecuador and retire.

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:lol: :lol: :lol:

I've been working on my five year plan - whaddaya'll think?

Plan A. Work for five years, save money, sell the house, move to Ecuador and retire.

Plan B. Work for five years, save money, sell the house, spend several years sailing the South Pacific, around South America, and the Carribean with the pirate. Then move to Ecuador and retire.

Good luck with all of that....then come a visit us on the "better" coast. Sail to us...it can be done.

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We're in the South Pacific ;)

...... well, maybe the south South Pacific.

You could always talk to my niece. She did that for several years, well not the retire part but sailed the South Pacific with her 'pirate' whilst operating her wholesaling business. Put into Fiji, fly off and come back; put into Papeete, fly off and come back; put into Pango Pango, fly off, come back. Had all the ITC equipment on the boat. Not sure if she got tired of the boat or the pirate :rolleyes:

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NZ is on the to-do list. It'd be in about 7 years. Plan to go hiking with me Shroomie.

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NZ is on the to-do list. It'd be in about 7 years. Plan to go hiking with me Shroomie.

Heck, by that time it would have to be somewhere my walking frame would go :blink::lol:

Certainly not the Milford Track, which you really SHOULD consider doing. And maybe the Abel Tasman, and the Heaphy, and the Hollyford......

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come a visit us on the "better" coast. Sail to us...

Pleeeeeeeeeese!!!!!!

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Why don't y'all just come visit us when we hit the Carribean? Or Hawaii? Or Fiji?

Been doing more numbers on this. Totally doable as long as the housing market continues to rise.

Pirate says we can go around South America from left to right, but not the other way (prevailing winds and tides and all that). Once we're on that side, the only way back is through the Panama Canal.

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    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
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    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
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