Posted 24 November 2012 - 10:38 AM
I kind of feel like an oddball because there are certain gluten foods that I can eat and the worst symptoms I get are fatigue and maybe a little bloating, but there are other foods that send me into 10-scale pain. I'm trying to be as gluten-free as possible, but it's really hard to let go of some foods, and even harder to eat out and not be cross-contaminated. I was prescribed Bentyl for intestinal spasms when my doctor thought I had IBS but it doesn't help because my episodes are relatively short (1.5-2 hours). Are there any medications for celiac-related pain or is the only option to go completely gluten-free?
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Posted 24 November 2012 - 12:47 PM
Posted 24 November 2012 - 04:40 PM
Exactly what Rosetapper said. There is no safe amount of gluten for someone with Celiac Disease.
but symptoms have gotten considerably worse in the past year
there are certain gluten foods that I can eat and the worst symptoms I get are fatigue and maybe a little bloating
I've selected two key thoughts from your post. Your symptoms have gotten worse as time passes.
The symptoms you list as minor will get worse as well until the fatigue is debilitating and the bloating is severe -- it is possible you will develop even more symptoms if you do not remove gluten. The good news is repairing your body and living a healthful life is within your reach.
None of this is said to scare you - it is what it is. Celiac Disease gets worse with any amount of gluten. Even if you are lucky enough to not have symptoms worsen, your small intestine is being damaged each time you eat gluten.
Welcome to the forum - feel free to ask lots of questions and read as much as you can - it really does help a very difficult transition happen a bit more quickly. No one will tell you it is easy, but many will tell you it is worth it.
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
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