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Hi- I'm new here. I've suspected for quite some time that I've had 'something' wrong. I finally added 2+2=4 and figured out gluten. I've been sensitive to dairy for years and avoid that, now its gluten too.

I've lost over 50 lbs since the start of summer. It seems so much is limited now because of dairy AND gluten. I'm waiting to see a gastro in a couple weeks and I know he is going to order more tests so I need to keep the gluten going but I can NOT spend hours a day in the bathroom (both ends). The vomiting is new since august/september.

I think I'm still in denial mode. Add in the fact that I won't eat red meat and my options are so limited .. or so it feels.

Anyone wanna have a 'welcome pity party' :)

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Have you told them how sick you have been. My husband got down to 110 lbs ( he was only 145 to start with) and really I don't think he would have made it another week. They could tell by speaking with him on the phone how week he had become and the doctor agreed to let him begin the diet. The damage to his intestine was still quite obvious. Maybe you could call the GI and speak with the nurse about it. Tell her the situation... Maybe she could speak with dr and get you in sooner or he could allow you to start the diet.

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My husband had same issues as you. Bathroom 50 times a day. Literally and throwing up. Quite a scary situation to live through. He could eat nothing. I was slowly watching him starve to death. He now weighs 185 lbs!!! :). Never been that heavy ever. Dr said his intestines were one of the worst he has ever seen. Completely smooth. Good luck!!

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I've told them. Part of the issue I've spent years running around with my PCP, who is convinced everything would be 'fixed' if I wasn't anemic. :angry: . I finally got a referral to the gastro when the PCP passed me off to a PA in the office. While I have the weight to lose, and I welcome weight loss, I can not spend hours a day in the bathroom.

The gastro office was wonderful. They totally understand, but due to other issues I refuse to see a female dr so the first available male appt was 12/3. People tend to write me off as nuts since I have some psych issues but those issues are being managed and honestly, I can not make up the puking, the bathroom issues, the sweats, the dizzy, the stomach pain.

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-snort-

I too was written off with its all in your head issues.

yet i was throwing up several times a week and had "D" daily.

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I think I'm still in denial mode. Add in the fact that I won't eat red meat and my options are so limited .. or so it feels.

Anyone wanna have a 'welcome pity party' :)

I hope you get good news regarding your GI visit. Good news meaning that you find an answser to your distress. I would certainly recommend a full biopsy with 8-10 samples, should you have an endoscopy exam.

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

If Celiac is your issue, no pity party is needed. It's an adjustment to your diet and shopping and good health is right around the corner. :D

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Good luck and let us know how it goes! Hopefully you can get some quick relief. My son's doctor ( ped. Gastro) said most pcps wants to beleice everyone has celiac or no one at all....guess you got the second!

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My appointment can not come soon enough. I've been compiling a list of symptoms and once I get that man cornered in the office.... He may never get to leave.

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    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)
       
    • Excellent point, GFinDC!!! I just assumed that Steph had the endoscopy and not just the antibodies tests.    
    • She (your PCP)  can order a celiac blood panel.  It might not be a complete panel, but it's a start.  Any medical doctor can order one.  A GI is needed for the endoscopy (ulcers, Celiac disease, h.pylori, etc.), HIDA scan (gallbladder)  or colonoscopy (IBS).   Since you just saw her, email/call/write a letter and ask her to order (lab) the celiac panel.  You could go to the lab before or after work.  Pretty easy!  
    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
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