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Gastroenterology Psychiatrist?
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Preparing for a doctor's appointment with a Gastro Psychiatrist this coming week. I am a celiac but doctor's are convinced that there is more going on. Had a time when I quit work and wasn't very active where I started feeing a little better. So started back to work and added more jobs and other responsibilities and have progressively been getting worse.

Can anyone shed some light on their experience with the Psychological connection to Celiac and if anyone has visited with this type of doctor and what your results were? Were you placed on a type of mood enhancer or psychological med that has helped you?

Your input is greatly appreciated as I seem to be digressing in many ways and could really use some support from other Celiacs. Thanks.

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Dang, I did not know that such an occupation even existed! But welcome, by the way, although I am pretty much a newbie here too. :)

I'd sure like to hear if others have experience good/bad with that type of therapy.... I feel a bit skeptical because it seems "It's in your head," is the most common thing some doctors say. Not ruling it out though, but like you, I'd just like to hear from someone who went through this.

I certainly sympathize with you ((hugs)), my doctor has just more or less given up on my continuing problems after deciding gluten was the cause. And of course many people in this forum tell me that it can take 1-2 years to heal, so I'm working on being patient!

How long has it been since your diagnosis?

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Dang, I did not know that such an occupation even existed! But welcome, by the way, although I am pretty much a newbie here too. :)

I'd sure like to hear if others have experience good/bad with that type of therapy.... I feel a bit skeptical because it seems "It's in your head," is the most common thing some doctors say. Not ruling it out though, but like you, I'd just like to hear from someone who went through this.

I certainly sympathize with you ((hugs)), my doctor has just more or less given up on my continuing problems after deciding gluten was the cause. And of course many people in this forum tell me that it can take 1-2 years to heal, so I'm working on being patient!

How long has it been since your diagnosis?

Yes, well my Gastroenterologists recommended this doctor because she was a Gastroenterologists and then went back to school to become a Gastro Psychiatrist because she is so convinced of the connection of brain and gut and knowing that it doesn't mean it's all "in your head". She truly understands it's NOT and that's why I'm praying that she can help me steer me in a better direction. I was unofficially diagnosed a year ago, but even though my blood tests just recently came back normal it is so evident that I am a celiac. I've been gluten free for almost a year now and just can't seem to get a step forward! I will keep you posted on how it goes and whether it will be beneficial to look into for other celiacs. Thanks for your {{hugs}} - they are much appreciated right now as I need other celiacs to help me get through this really hard place right now. It's amazing to me that doctor's don't know what to do with celiac. I know Jennifer Esposito (Jennifer's Way.org) has a specialist doctor that she sees regularly in NY for her treatment for Sever Celiac. There have got to be more Celiac specialist out there and we just need to find them. I also considering a Nutritionist to help me with my eating because I'm allergic to so much and lately everything I eat makes me feel badly. Here's hoping for relief for us both!!!

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What I understand regarding the nervous system and the GI system, is that they are interrelated. When one is not working, the other is not working and vice versa. Our guts produce more serotonin (the feel-good hormone) than our brains. (About 80% of the serotonin in our body is in the gut!!) So, naturally, it seems to make sense that when we are not feeling well it affects us mentally/emotionally. For me, I am much happier on days I am feeling best and symptoms are controlled. Are you still experiencing symptoms? If you are, perhaps when you have celiac is under control the psychological aspects will subside.

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Well, my symptoms got better after I detoxed but now they are getting worse and it seems like everything I eat has a negative effect. i am meeting with a specialist and having a colonoscopy this week as i have been having severe pain around my colon and other problems (sparing you the details). I would love to see things get back under control. Some days it is hard to keep pushing myself through my responsibilities. But I am going to keep fighting and hope for some help!

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So sorry to hear :( Yes, I agree. It's worth the fight back to health. I'm still working on my own, but I can't wait to feel better again. Whatever it takes!!! Keep pressing on!!!

Well, my symptoms got better after I detoxed but now they are getting worse and it seems like everything I eat has a negative effect. i am meeting with a specialist and having a colonoscopy this week as i have been having severe pain around my colon and other problems (sparing you the details). I would love to see things get back under control. Some days it is hard to keep pushing myself through my responsibilities. But I am going to keep fighting and hope for some help!

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we have a local nurse who is a celiac - she left her position as an emergency room doc and started a job educating people about gluten and helping people get through it. she speaks internationally on the topic, so i think she really knows her stuff. i went to her talk last week and have talked to her on the phone. she says that the antibody that a body forms in response to gluten is one of the few things that can cross the blood-brain barrier.

i have a cousin with schizophrenia so talked to her for quite a while about the mental health connection. she said she has seen people improve mentally - dramatically - when they went gluten-free (if they are celiacs.) so i went looking online and found a number of articles on the national institute of health's med library on the connection between mental health and gluten antibodies.

not sure if that helps you, but i hope it lets you know that it's not "just in your head" but might be coming from your small intestine. no idea, but i wonder if it says that you still have gluten coming from somewhere. another thing the nurse told me is that there are quality problems in having labs read tests - enough that she had me send my blood sample to Prometheus labs. The univ of chicago celiac center site recommends the prometheus labs and the mayo clinic. makes me wonder if your labs came back negative, i wonder if it was read by someone who knew what to look for. i hope you get some help from the doc!

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If you were gluten-free for a year your tests should have come back as normal, ie not celiac. The antibodies drop off when you stop eating gluten.

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I have never heard of this type of Doc but I think it's an Excellent idea. I would go if I knew of one in my area.

Not only are gluten issues related to depression but just having a disease can cause depression.

Wishing you well,

Colleen

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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