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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Post Card / Christmas Card Exchange
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47 posts in this topic

Urgent trip to Santa Rosa tomorrow - daughter's health.

Looks like mine will go out on Friday if the world doesn't end ;)

Told you I was pulling anchor, but wasn't thinking I'd be chasing Santa's Sleigh!

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Mine will go out tomorrow. Probably.....maybe.....

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Mine tomorrow also, hopefully. All you late bloomers are making me feel better for sure! :)

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JerseyAngel, I got your sweet, sweet card! Thanks for brightening up this gloomy and rainy night!

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Whew, I finally got my cards sent out yesterday! They are postaling their way to ya'all now!

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Mine went out yesterday :D

And I received it yesterday, thank you patti

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Thank you, Gee Eff!! What a beautiful card :)

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Paul, I received your card today. Thanks for the card an thanks for all your support.

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Ah, thanks Patti and Dave, I am glad you liked them! I'm glad the post office us quicker than I am too!:)

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Hey guys,

Colleen has asked me to pass this along to you. She's not feeling well after her infusion. :( I told her we're all sending her love and prayers.

She said:.

" G, Maybe you could do me a favor if you didn't mind. I can't use my playbook because of light sensitivity, but maybe put on the christmas card thread that I love the cards I'm getting and thank you."

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Oh no :(. I was thinking about her today and was hoping she was ok. Please tell her to take care and feel better.

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Oh, dear! I would have written something in the card if I had known!

I mailed the cards today. These are not really Xmas cards. These are prints of paintings by an artist that went to grade school with my oldest. I had to write a check to Elton John to get them. I thought they would be interesting, hope you like them.

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Thanks for the update on Colleen (GFLover) IH. Maybe she will feel better in a few days.

Thanks for the "thing" or whatever it is you are sending Crayon! :)

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Thanks for the update on Colleen (GFLover) IH. Maybe she will feel better in a few days.

Thanks for the "thing" or whatever it is you are sending Crayon! :)

They are cards! I almost sent you a lump of coal! :)

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I will relay your messages, guys. :) I feel like a dummy I missed this entire thread somehow.... :mellow:

Happy Christmas, Everyone!

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Mine too. I was thinking of her last night during one of my sleepless times. Hope she feels better soon.

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from Colleen (I relayed all your warm wishes):

"Awe G, thank you. I crave every wish I get and it keeps me keeping on. Thanks so much"

.

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from Colleen (I relayed all your warm wishes):

"Awe G, thank you. I crave every wish I get and it keeps me keeping on. Thanks so much"

.

Bless her heart :)

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for those on the Christmas Card exchange....with all craziness that has ensued since I returned to a vertical position - our family Christmas Cards have morphed into New Year's Greetings -- for my silly card exchange I purchased beautiful photos in the local country store near a the spot I chose to hike with one of my sons today -- hoping the good ol' USPS is fast and they reach you all quickly. My mail was under hold while I was gone -- looking forward its delivery tomorrow :)

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New Year's cards sound great Lisa!. Anything besides a lump of coal sounds good at this point! Crayon... :)

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GFinDC I received your card - it is beautiful! Did you make that?!?!?

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Thanks BC, yes, one my few attempts at printmaking. Glad u liked it! :)

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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