Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Struggles With 4 Year Old
0

9 posts in this topic

We figured out last spring that my son is gluten intolerant. No idea if he has celiac or NCGI, because we figured it out after making our home gluten-free to keep me from constant cross-contamination. He's always had stomach problems-- reflux as a baby/toddler that went on longer than our peds expected, frequent complaints, C&D, and then last winter/spring, things went up in intensity and I would get calls from his school that he was crying in the bathroom or had gone through all of his changes of clothes (even though he'd previously been pretty solidly toilet trained). We didn't jump right to gluten because he's not genetically related to me, though we did wonder about wheat when he was a toddler because his face broke out sometimes after bread products.

Anyway, once we were able to see the connection between episodes of bathroom drama and consuming gluten out of the house, we took it completely out of his diet and many things improved. Normal poop, more stable mood, generally more pleasant child. Over the summer when we were traveling he started to have constipation trouble. Made some sense since we were traveling and out of our routine. We were also doing some dairy trials since he'd been off dairy for a while to see if it helped his frequent congestion issues. However, it never really got better once we were home. At this point we're doing daily miralax doses, and he's still having hard poops, big belly, and complaining of pain a lot of the time. Complicating this issue is that he's incredibly picky about food. He seems to have some sensory issues, so has trouble with some textures (though I haven't been able to fully figure out what in specific). We also were vegetarian, and then as my intolerances grew, had to add in more meat, and he is still pretty vehemently veg. We encourage him to try things, but he hates it and is distressed at the idea of meat. And since we removed gluten and dairy right at the point when a lot of kids become pickier about food, we've had trouble finding other things to put back in without a major battle. Left to his own devices he'd live on PB and gluten-free bagels. He will eat fruits and vegetables, though it sometimes takes a bit of coaxing/struggle. He hates most forms of protein other than nut-based ones.

At this point it's hard to know what's causing what. Is he tired and cranky and constipated because he's not eating a balanced diet? Or is something else irritating him? Is his pickiness causing the constipation or is he picky because his stomach is cranky because he's contipated? Is there something bigger going on that forcing him to eat new things won't fix? He's very strong-willed, so trying to force anything is kind of a losing battle. I try to find ways as his parent to sidestep the head to head confrontations and get him to follow drections, etc in different ways. But he will not be tricked or otherwise convinced with food.

Any suggestions about where to start with this? We will probably chat with the pediatrician about it, but so far they haven't been terribly helpful about it (though at least they are supportive of our decision to remove gluten without a clear diagnosis). I know we need to add more variety to his diet no matter what, but would welcome suggestions about ways to do this without a battle. So tired of mealtimes being a massive struggle. So tired of seeing him tired and cranky and hurting after such a promising start to his gluten-free journey.

0

Share this post


Link to post
Share on other sites


Ads by Google:

does he play with playdough? Its wheat based. Are there any other sources of gluten that he could ahve come in contact with.

0

Share this post


Link to post
Share on other sites

does he play with playdough? Its wheat based. Are there any other sources of gluten that he could ahve come in contact with.

No, we make gluten-free dough for his class when they need it, and I work in the classroom across the hall, so his teacher has easy access to me for checking on materials and project ideas. Any other sources would be crumbs from other kids in his classroom, which is certainly possible, especially since he's a thumb sucker. But if that's the case I don't know what to do, because there's no way to avoid that other than removing him from school.

It did occur to me as I typed this that we started a new multivitamin with the kids this summer, so it's possible that could be contributing. It's gluten-free/CF and claims to be all kinds of natural and hypoallergenic, but I know different bodies react differently to vitamins, so I could try dropping that for a week or so to see what happens.

0

Share this post


Link to post
Share on other sites

Could he have developed another intolerence to something? Nightshades and legumes (i hope i spelled that right) come to mind.

0

Share this post


Link to post
Share on other sites

We figured out last spring that my son is gluten intolerant. No idea if he has celiac or NCGI, because we figured it out after making our home gluten-free to keep me from constant cross-contamination. He's always had stomach problems-- reflux as a baby/toddler that went on longer than our peds expected, frequent complaints, C&D, and then last winter/spring, things went up in intensity and I would get calls from his school that he was crying in the bathroom or had gone through all of his changes of clothes (even though he'd previously been pretty solidly toilet trained). We didn't jump right to gluten because he's not genetically related to me, though we did wonder about wheat when he was a toddler because his face broke out sometimes after bread products.

Anyway, once we were able to see the connection between episodes of bathroom drama and consuming gluten out of the house, we took it completely out of his diet and many things improved. Normal poop, more stable mood, generally more pleasant child. Over the summer when we were traveling he started to have constipation trouble. Made some sense since we were traveling and out of our routine. We were also doing some dairy trials since he'd been off dairy for a while to see if it helped his frequent congestion issues. However, it never really got better once we were home. At this point we're doing daily miralax doses, and he's still having hard poops, big belly, and complaining of pain a lot of the time. Complicating this issue is that he's incredibly picky about food. He seems to have some sensory issues, so has trouble with some textures (though I haven't been able to fully figure out what in specific). We also were vegetarian, and then as my intolerances grew, had to add in more meat, and he is still pretty vehemently veg. We encourage him to try things, but he hates it and is distressed at the idea of meat. And since we removed gluten and dairy right at the point when a lot of kids become pickier about food, we've had trouble finding other things to put back in without a major battle. Left to his own devices he'd live on PB and gluten-free bagels. He will eat fruits and vegetables, though it sometimes takes a bit of coaxing/struggle. He hates most forms of protein other than nut-based ones.

At this point it's hard to know what's causing what. Is he tired and cranky and constipated because he's not eating a balanced diet? Or is something else irritating him? Is his pickiness causing the constipation or is he picky because his stomach is cranky because he's contipated? Is there something bigger going on that forcing him to eat new things won't fix? He's very strong-willed, so trying to force anything is kind of a losing battle. I try to find ways as his parent to sidestep the head to head confrontations and get him to follow drections, etc in different ways. But he will not be tricked or otherwise convinced with food.

Any suggestions about where to start with this? We will probably chat with the pediatrician about it, but so far they haven't been terribly helpful about it (though at least they are supportive of our decision to remove gluten without a clear diagnosis). I know we need to add more variety to his diet no matter what, but would welcome suggestions about ways to do this without a battle. So tired of mealtimes being a massive struggle. So tired of seeing him tired and cranky and hurting after such a promising start to his gluten-free journey.

I could totally relate to your post! My son is on a gluten free diet because of his autism, and he is SO picky about textures. Won't do meat except the occasional hotdog and won't do veggies unless they are pureed (very sensitive to texture). So frustrating! I don't know about the medical part of it, but I do have some ideas about how you can vary his food. I sneak mashed beans and pureed veggies (actually use baby food) plus 1/2 c applesauce into Namaste muffin mix. He will also do spinach in his smoothies if I add other sweeteners like bananas - can't even taste it. Sometimes I'll add pureed squash or pumpkin to the batter for French toast. Pancakes and waffles are also easy to play with. My son will also do the "5 minute mac and cheese" from the Spunky Coconut website. Has a cashew base.

One thing that I did that was really helpful was think about what my son ate already and really think about what those foods have in common. In his case, he liked soft (so we decided hot dogs were worth trying) and bready (so we do muffins with hidden ingredients). If you are trying something new for dinner, set yourself up for success by having something else that he really likes (first tries the least preferred food, then can have the favorite) and make sure he's hungry.

Good luck!

1

Share this post


Link to post
Share on other sites




Hmmm...will be filing those ideas away to try. He has been thrilled this week to eat muffins made with almond flour, which at least has something more to it than rice flour. I've been able to use them to bribe him as you describe (eat your broccoli, then you can have the muffin). Adding stuff in is a brilliant idea, and something we haven't tried.

It's possible that he's developed other food reactions, but I'm hoping not. Really wish kids came with plug in diagnostic devices..

0

Share this post


Link to post
Share on other sites

I thought of something else ... can he have soy? My son is very open to tofu.

0

Share this post


Link to post
Share on other sites

I thought of something else ... can he have soy? My son is very open to tofu.

Sadly, he's been very opposed to tofu. Haven't tried it since I figured out that I can't do soy, but he was not a big fan when we had it more regularly. Makes his desire to stay vegetarian kinda tricky...

0

Share this post


Link to post
Share on other sites

Sorry I don't have any suggestions but wanted to say my daughter has been gluten-free for 5 mos now and also takes laxatives (milk of magnesia in our case) and still only has a bowel movement once every 2-3 days. I was really hoping going gluten-free would help w her constipation but it doesn't seem to have made a difference at all. And like your son, she's a very picky eater. I feel your frustration!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,091
    • Total Posts
      920,311
  • Topics

  • Posts

    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,121
    • Most Online
      1,763

    Newest Member
    Sambud
    Joined