Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Struggles With 4 Year Old
0

9 posts in this topic

We figured out last spring that my son is gluten intolerant. No idea if he has celiac or NCGI, because we figured it out after making our home gluten-free to keep me from constant cross-contamination. He's always had stomach problems-- reflux as a baby/toddler that went on longer than our peds expected, frequent complaints, C&D, and then last winter/spring, things went up in intensity and I would get calls from his school that he was crying in the bathroom or had gone through all of his changes of clothes (even though he'd previously been pretty solidly toilet trained). We didn't jump right to gluten because he's not genetically related to me, though we did wonder about wheat when he was a toddler because his face broke out sometimes after bread products.

Anyway, once we were able to see the connection between episodes of bathroom drama and consuming gluten out of the house, we took it completely out of his diet and many things improved. Normal poop, more stable mood, generally more pleasant child. Over the summer when we were traveling he started to have constipation trouble. Made some sense since we were traveling and out of our routine. We were also doing some dairy trials since he'd been off dairy for a while to see if it helped his frequent congestion issues. However, it never really got better once we were home. At this point we're doing daily miralax doses, and he's still having hard poops, big belly, and complaining of pain a lot of the time. Complicating this issue is that he's incredibly picky about food. He seems to have some sensory issues, so has trouble with some textures (though I haven't been able to fully figure out what in specific). We also were vegetarian, and then as my intolerances grew, had to add in more meat, and he is still pretty vehemently veg. We encourage him to try things, but he hates it and is distressed at the idea of meat. And since we removed gluten and dairy right at the point when a lot of kids become pickier about food, we've had trouble finding other things to put back in without a major battle. Left to his own devices he'd live on PB and gluten-free bagels. He will eat fruits and vegetables, though it sometimes takes a bit of coaxing/struggle. He hates most forms of protein other than nut-based ones.

At this point it's hard to know what's causing what. Is he tired and cranky and constipated because he's not eating a balanced diet? Or is something else irritating him? Is his pickiness causing the constipation or is he picky because his stomach is cranky because he's contipated? Is there something bigger going on that forcing him to eat new things won't fix? He's very strong-willed, so trying to force anything is kind of a losing battle. I try to find ways as his parent to sidestep the head to head confrontations and get him to follow drections, etc in different ways. But he will not be tricked or otherwise convinced with food.

Any suggestions about where to start with this? We will probably chat with the pediatrician about it, but so far they haven't been terribly helpful about it (though at least they are supportive of our decision to remove gluten without a clear diagnosis). I know we need to add more variety to his diet no matter what, but would welcome suggestions about ways to do this without a battle. So tired of mealtimes being a massive struggle. So tired of seeing him tired and cranky and hurting after such a promising start to his gluten-free journey.

0

Share this post


Link to post
Share on other sites


Ads by Google:

does he play with playdough? Its wheat based. Are there any other sources of gluten that he could ahve come in contact with.

0

Share this post


Link to post
Share on other sites

does he play with playdough? Its wheat based. Are there any other sources of gluten that he could ahve come in contact with.

No, we make gluten-free dough for his class when they need it, and I work in the classroom across the hall, so his teacher has easy access to me for checking on materials and project ideas. Any other sources would be crumbs from other kids in his classroom, which is certainly possible, especially since he's a thumb sucker. But if that's the case I don't know what to do, because there's no way to avoid that other than removing him from school.

It did occur to me as I typed this that we started a new multivitamin with the kids this summer, so it's possible that could be contributing. It's gluten-free/CF and claims to be all kinds of natural and hypoallergenic, but I know different bodies react differently to vitamins, so I could try dropping that for a week or so to see what happens.

0

Share this post


Link to post
Share on other sites

Could he have developed another intolerence to something? Nightshades and legumes (i hope i spelled that right) come to mind.

0

Share this post


Link to post
Share on other sites

We figured out last spring that my son is gluten intolerant. No idea if he has celiac or NCGI, because we figured it out after making our home gluten-free to keep me from constant cross-contamination. He's always had stomach problems-- reflux as a baby/toddler that went on longer than our peds expected, frequent complaints, C&D, and then last winter/spring, things went up in intensity and I would get calls from his school that he was crying in the bathroom or had gone through all of his changes of clothes (even though he'd previously been pretty solidly toilet trained). We didn't jump right to gluten because he's not genetically related to me, though we did wonder about wheat when he was a toddler because his face broke out sometimes after bread products.

Anyway, once we were able to see the connection between episodes of bathroom drama and consuming gluten out of the house, we took it completely out of his diet and many things improved. Normal poop, more stable mood, generally more pleasant child. Over the summer when we were traveling he started to have constipation trouble. Made some sense since we were traveling and out of our routine. We were also doing some dairy trials since he'd been off dairy for a while to see if it helped his frequent congestion issues. However, it never really got better once we were home. At this point we're doing daily miralax doses, and he's still having hard poops, big belly, and complaining of pain a lot of the time. Complicating this issue is that he's incredibly picky about food. He seems to have some sensory issues, so has trouble with some textures (though I haven't been able to fully figure out what in specific). We also were vegetarian, and then as my intolerances grew, had to add in more meat, and he is still pretty vehemently veg. We encourage him to try things, but he hates it and is distressed at the idea of meat. And since we removed gluten and dairy right at the point when a lot of kids become pickier about food, we've had trouble finding other things to put back in without a major battle. Left to his own devices he'd live on PB and gluten-free bagels. He will eat fruits and vegetables, though it sometimes takes a bit of coaxing/struggle. He hates most forms of protein other than nut-based ones.

At this point it's hard to know what's causing what. Is he tired and cranky and constipated because he's not eating a balanced diet? Or is something else irritating him? Is his pickiness causing the constipation or is he picky because his stomach is cranky because he's contipated? Is there something bigger going on that forcing him to eat new things won't fix? He's very strong-willed, so trying to force anything is kind of a losing battle. I try to find ways as his parent to sidestep the head to head confrontations and get him to follow drections, etc in different ways. But he will not be tricked or otherwise convinced with food.

Any suggestions about where to start with this? We will probably chat with the pediatrician about it, but so far they haven't been terribly helpful about it (though at least they are supportive of our decision to remove gluten without a clear diagnosis). I know we need to add more variety to his diet no matter what, but would welcome suggestions about ways to do this without a battle. So tired of mealtimes being a massive struggle. So tired of seeing him tired and cranky and hurting after such a promising start to his gluten-free journey.

I could totally relate to your post! My son is on a gluten free diet because of his autism, and he is SO picky about textures. Won't do meat except the occasional hotdog and won't do veggies unless they are pureed (very sensitive to texture). So frustrating! I don't know about the medical part of it, but I do have some ideas about how you can vary his food. I sneak mashed beans and pureed veggies (actually use baby food) plus 1/2 c applesauce into Namaste muffin mix. He will also do spinach in his smoothies if I add other sweeteners like bananas - can't even taste it. Sometimes I'll add pureed squash or pumpkin to the batter for French toast. Pancakes and waffles are also easy to play with. My son will also do the "5 minute mac and cheese" from the Spunky Coconut website. Has a cashew base.

One thing that I did that was really helpful was think about what my son ate already and really think about what those foods have in common. In his case, he liked soft (so we decided hot dogs were worth trying) and bready (so we do muffins with hidden ingredients). If you are trying something new for dinner, set yourself up for success by having something else that he really likes (first tries the least preferred food, then can have the favorite) and make sure he's hungry.

Good luck!

1

Share this post


Link to post
Share on other sites




Hmmm...will be filing those ideas away to try. He has been thrilled this week to eat muffins made with almond flour, which at least has something more to it than rice flour. I've been able to use them to bribe him as you describe (eat your broccoli, then you can have the muffin). Adding stuff in is a brilliant idea, and something we haven't tried.

It's possible that he's developed other food reactions, but I'm hoping not. Really wish kids came with plug in diagnostic devices..

0

Share this post


Link to post
Share on other sites

I thought of something else ... can he have soy? My son is very open to tofu.

0

Share this post


Link to post
Share on other sites

I thought of something else ... can he have soy? My son is very open to tofu.

Sadly, he's been very opposed to tofu. Haven't tried it since I figured out that I can't do soy, but he was not a big fan when we had it more regularly. Makes his desire to stay vegetarian kinda tricky...

0

Share this post


Link to post
Share on other sites

Sorry I don't have any suggestions but wanted to say my daughter has been gluten-free for 5 mos now and also takes laxatives (milk of magnesia in our case) and still only has a bowel movement once every 2-3 days. I was really hoping going gluten-free would help w her constipation but it doesn't seem to have made a difference at all. And like your son, she's a very picky eater. I feel your frustration!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,348
    • Total Posts
      917,422
  • Topics

  • Posts

    • Testing After Celiac Disease if IgA deficient
      I am also IgA deficient. My doc took more blood and looked at 2-3 other markers in the blood work , transglutinase, and 2 others. My biopsy showed blunted cilia in sm intestine, but my IgA was low. He suspected Celiac due to cilia so ordered other blood tests. I also presented atypically, burny stomach and reflux...and very little else.
    • Testing After Celiac Disease if IgA deficient
      If you have Celiac Disease, and you are IgA deficient, what do they check on your labs to make sure you are not being "glutened"?
    • Weird Reaction
      Hi again Richie, A lot of coeliacs have a problem with coffee, maybe you do too. It could explain the shakes you describe. I am sensitive to coffee, and haven't touched caffeine since last summer. (The detox lasted for 10 days and it wasn't pleasant, so if you ever give it up, do it gradually).  Sometimes when you're intolerant to something, when you have it, it makes you feel 'better' but it doesn't last and usually end up worse, it's like a drug - and in the case of caffeine it is. I also take a daily probiotic (gluten free and dairy free etc)., which is good for healing the gut.
    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
    • Daughter with celiac- need test result help
      You are doing well.  We didn't have a "normal" tTG for 6 years and were also very strict.  Kiddo was dx with hypothyroid as well and tTG fell a lot after getting on meds for that but still didn't normalize.  Finally cam down within the last 6 months (this after a trip to THE Celiac Dr. several years ago).  I wish we had done a DGP much earlier and I had pushed for that sooner.  I would start there and see what happens.     Sounds like you're doing everything right though. Sometimes it just takes time. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,484
    • Most Online
      1,763

    Newest Member
    KKJ
    Joined