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How Long Does It Take To Heal?
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I started going gluten free a year ago, but I still have pain. I am better than I used to be, but definitely not without digestive problems. I get glutened still from cross contamination from my roommates, and accidentally eating something little (like gum) that has trace amounts of gluten in. But I am learning how to eat, and I'll be out of this cc environment in 2.5 weeks.

How long did it take for you to heal up?

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with the amount of cc you've had, i'd say it probably take a few more months to be fully healed. An example of this is say you just fell and skinned your knee (before gluten free). It starts scabbing over and healing, then you fall again reopening it (cc-ing). It may not be as bad as it was before but it still hurts.

If that makes any sense whatsoever.

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I don't know how long it will take, but some things that could help recover are very strong (10's of billions of cells) probiotics. Prebiotics help the probiotics act better. Giving the gut some really good bacteria may ease the recovery time and help you feel better sooner. If you look online there are some brands that have up to 75 billion cells for daily use and some that have 200 billion for a week-long regimen to help heal.

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I don't know how long it will take, but some things that could help recover are very strong (10's of billions of cells) probiotics. Prebiotics help the probiotics act better. Giving the gut some really good bacteria may ease the recovery time and help you feel better sooner. If you look online there are some brands that have up to 75 billion cells for daily use and some that have 200 billion for a week-long regimen to help heal.

My question kind of relates to this post...but how long does it take to notice the effects of the probiotics? Could we see a difference in a couple days or does it take weeks?

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How long did it take for you to heal up?

My question kind of relates to this post...but how long does it take to notice the effects of the probiotics?

The answer for both of these questions is everyone is different.

Some heal completely within months, others take years.

Some notice improvement from probiotics within weeks, others don't notice they are helping -- I took them my first year gluten-free, but did not think they were helping - I was wrong - whether or not you know probiotics are working, they are important in a healing digestive system. Keeping the "good guys" working so the "bad guys" don't take over is very important.

Sounds like once you don't have as many cc issues in a few weeks you may see more improvement. Take the transition time to tighten up your diet - add probiotics and digestive enzymes if you experience digestive troubles - you'll keep improving.

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Thanks for the response. I had almost wanted to give up probiotics, because I can't see it making a difference. Glad you are seeing good results of taking them after all that time. I'll keep taking them!

The answer for both of these questions is everyone is different.

Some heal completely within months, others take years.

Some notice improvement from probiotics within weeks, others don't notice they are helping -- I took them my first year gluten-free, but did not think they were helping - I was wrong - whether or not you know probiotics are working, they are important in a healing digestive system. Keeping the "good guys" working so the "bad guys" don't take over is very important.

Sounds like once you don't have as many cc issues in a few weeks you may see more improvement. Take the transition time to tighten up your diet - add probiotics and digestive enzymes if you experience digestive troubles - you'll keep improving.

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I have had 30 years of undiagnosed celiac. The MD told me that it would take 6 months (ateast to heal) I am about 6 months into a grain free diet and have felt recently that my body is working hard to recover. I also discovered many of my products are cross contaminated. I have been slowly going through various medical tests to help me in my plight. Sometimes I feel okay or even really good, but I experienced a 6 week bug recently. I felt extreme fatigue and all of the old stuff. I am finally out of that and being more careful than ever about the foods I purchase.

I have some questions for you, how bad do you want to have energy? What are you willing to give up for your health? Can you bypass gluten inspite of social pressure, and your own desires? Are you willing to eat only foods that will enhance your health, or do you want to eat junk? Do you smoke or drink? How long have you been having symptoms of Celiac? Are you willing to take supplements to help improve your health? I think the answer to these questions will mean a difference in healing faster, or slower, or never healing at all. I can't tell you how long it will take to heal, but that you can optimize healing by what you do.

Get well, and get well soon.

Diana

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    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
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