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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Does It Take To Heal?
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I started going gluten free a year ago, but I still have pain. I am better than I used to be, but definitely not without digestive problems. I get glutened still from cross contamination from my roommates, and accidentally eating something little (like gum) that has trace amounts of gluten in. But I am learning how to eat, and I'll be out of this cc environment in 2.5 weeks.

How long did it take for you to heal up?

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with the amount of cc you've had, i'd say it probably take a few more months to be fully healed. An example of this is say you just fell and skinned your knee (before gluten free). It starts scabbing over and healing, then you fall again reopening it (cc-ing). It may not be as bad as it was before but it still hurts.

If that makes any sense whatsoever.

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I don't know how long it will take, but some things that could help recover are very strong (10's of billions of cells) probiotics. Prebiotics help the probiotics act better. Giving the gut some really good bacteria may ease the recovery time and help you feel better sooner. If you look online there are some brands that have up to 75 billion cells for daily use and some that have 200 billion for a week-long regimen to help heal.

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I don't know how long it will take, but some things that could help recover are very strong (10's of billions of cells) probiotics. Prebiotics help the probiotics act better. Giving the gut some really good bacteria may ease the recovery time and help you feel better sooner. If you look online there are some brands that have up to 75 billion cells for daily use and some that have 200 billion for a week-long regimen to help heal.

My question kind of relates to this post...but how long does it take to notice the effects of the probiotics? Could we see a difference in a couple days or does it take weeks?

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How long did it take for you to heal up?

My question kind of relates to this post...but how long does it take to notice the effects of the probiotics?

The answer for both of these questions is everyone is different.

Some heal completely within months, others take years.

Some notice improvement from probiotics within weeks, others don't notice they are helping -- I took them my first year gluten-free, but did not think they were helping - I was wrong - whether or not you know probiotics are working, they are important in a healing digestive system. Keeping the "good guys" working so the "bad guys" don't take over is very important.

Sounds like once you don't have as many cc issues in a few weeks you may see more improvement. Take the transition time to tighten up your diet - add probiotics and digestive enzymes if you experience digestive troubles - you'll keep improving.

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Thanks for the response. I had almost wanted to give up probiotics, because I can't see it making a difference. Glad you are seeing good results of taking them after all that time. I'll keep taking them!

The answer for both of these questions is everyone is different.

Some heal completely within months, others take years.

Some notice improvement from probiotics within weeks, others don't notice they are helping -- I took them my first year gluten-free, but did not think they were helping - I was wrong - whether or not you know probiotics are working, they are important in a healing digestive system. Keeping the "good guys" working so the "bad guys" don't take over is very important.

Sounds like once you don't have as many cc issues in a few weeks you may see more improvement. Take the transition time to tighten up your diet - add probiotics and digestive enzymes if you experience digestive troubles - you'll keep improving.

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I have had 30 years of undiagnosed celiac. The MD told me that it would take 6 months (ateast to heal) I am about 6 months into a grain free diet and have felt recently that my body is working hard to recover. I also discovered many of my products are cross contaminated. I have been slowly going through various medical tests to help me in my plight. Sometimes I feel okay or even really good, but I experienced a 6 week bug recently. I felt extreme fatigue and all of the old stuff. I am finally out of that and being more careful than ever about the foods I purchase.

I have some questions for you, how bad do you want to have energy? What are you willing to give up for your health? Can you bypass gluten inspite of social pressure, and your own desires? Are you willing to eat only foods that will enhance your health, or do you want to eat junk? Do you smoke or drink? How long have you been having symptoms of Celiac? Are you willing to take supplements to help improve your health? I think the answer to these questions will mean a difference in healing faster, or slower, or never healing at all. I can't tell you how long it will take to heal, but that you can optimize healing by what you do.

Get well, and get well soon.

Diana

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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