Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

2 Docs 2 Oppions
0

5 posts in this topic

I'm so confused. On friday I got the results of the blood work. They are positive in one area(anti-gliden) and considered within normal range in the others. The tests were preformed by my rhmatologyst(sp). i got the results from my primary care physisian who stated that I tested positive for celiac and needed to go on a glutin-free diet immedeatly. I called the rhmatologyst to get some things clearified, they told me I needed a stomic biopsy.I did resurce on the net and both here and other places said that if a stomic biopsy is needed you must maintain diet so not to skew the results. So I called again on monday, doc wasn't in. Today when I spoke to rhatologysts nurse she asked why I had requested a biopsy(I didn't, they told me I needed one) and told me that there was no way to get me into a gastro-doc before I move....anyway by primary care docs nurse calls me and reads me the consult notes that were faxed to them. She was a bit unsure about it all.They pretty much said that even though the tests show I have a positive factor for celiac, that the she dosen't think I have it and that I should seek futher treatment for my gastrointestanal issues once I get to my new location. In my oppion she made me sound like an ass and has confused the hell out of me. Do I have this...do I not. The primary care nurse told me that in her oppion positive results meen positive and that I do in fact have this problem. My primary care doctor says to try a glutin-free diet and that I should start to feel better within a few weeks. My rhomatologyst has yet to return my calls and when I call she has a nurse speek to me.So I have one doctor (willing to take the time to speek with me over the phone and explain everything, give me hand outs on everything )telling me I have this problem and another doctor despite positive results says I dont. Help me sort thew this.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Dr.s really do not know enough abut Celiac yet, especially if they are not Gastroenterologists... IMHO, you have elevated results therefore you have Celiac... or at the very least a Gluten Intolerance. You can wait for another Dr. to agree with the one Dr. and give you a biopsy and take a chance that they don't take enough samples and miss any potentially damaged areas of intestines. Or, you can take your health into your own hands and try the diet. If you have a positive response to the gluten-free diet, then you will have your answer, Gluten is bad for you. If no improvement after a while, you can go back on gluten and resume testing to find out what is wrong. But I'm willing to bet you that because you have an elevated marker, you will benefit tremendously from a gluten-free diet.

0

Share this post


Link to post
Share on other sites
Dr.s really do not know enough abut Celiac yet, especially if they are not Gastroenterologists... IMHO, you have elevated results therefore you have Celiac... or at the very least a Gluten Intolerance.  Or, you can take your health into your own hands and try the diet. If you have a positive response to the gluten-free diet, then you will have your answer, Gluten is bad for you. If no improvement after a while, you can go back on gluten and resume testing to find out what is wrong. But I'm willing to bet you that because you have an elevated marker, you will benefit tremendously from a gluten-free diet.

<{POST_SNAPBACK}>

I thoroughly agree with nini. You have one positive test, biopsies can be inconclusive and give false negatives. Go with the gluten-free diet, (what have you got to lose?) and see what happens in three weeks. If you do see a lessening of symptoms, then you are on the right track. Although I sure don't envy you going gluten-free while experiencing the stress of moving. Good Luck!

0

Share this post


Link to post
Share on other sites

I can relate. My primary care doc said if avoiding gluten helps, then do it, that's enough for my treatment. He also said I am the most successful on the diet of anyone he's treated. But then I got sent to a rheumatologist because I had an elevated ANA (anti-nuclear antibodies). I liked the rheumy at first, especially because he knew something about gluten, but then, when he couldn't find anything specific fitting his criteria, he blamed all my problems on gluten and told me to get into a gastroenterologist. I could buy this excuse if I was still consuming gluten but at that point I had been gluten free for 8 months. Anyway, I get to go to the gastro tomorrow. I feel like I'm being shipped around everywhere.

I don't need a Celiac diagnosis, personally, because I know I can't tolerate gluten. I am hoping the gastro tomorrow won't be mad at me because I am gluten free (nearly a year now) and that he will look beyond just what has already been discovered. I have noticed docs, when they don't quite know what is up, will glaum on to a prior mystery diagnosis. I am usually careful to not reveal what has been questionably suspected for me when I'm at a new doc because of this.

What's most important is knowing what helps you, not always what the docs speculate about. If they say no, you don't have a gluten problem, but you feel better off gluten, then don't eat it.

Take care

Stephanie

0

Share this post


Link to post
Share on other sites

I can relate. My primary care doc said if avoiding gluten helps, then do it, that's enough for my treatment. He also said I am the most successful on the diet of anyone he's treated. But then I got sent to a rheumatologist because I had an elevated ANA (anti-nuclear antibodies). I liked the rheumy at first, especially because he knew something about gluten, but then, when he couldn't find anything specific fitting his criteria, he blamed all my problems on gluten and told me to get into a gastroenterologist. I could buy this excuse if I was still consuming gluten but at that point I had been gluten free for 8 months. Anyway, I get to go to the gastro tomorrow. I feel like I'm being shipped around everywhere.

I don't need a Celiac diagnosis, personally, because I know I can't tolerate gluten. I am hoping the gastro tomorrow won't be mad at me because I am gluten free (nearly a year now) and that he will look beyond just what has already been discovered. I have noticed docs, when they don't quite know what is up, will glaum on to a prior mystery diagnosis. I am usually careful to not reveal what has been questionably suspected for me when I'm at a new doc because of this.

What's most important is knowing what helps you, not always what the docs speculate about. If they say no, you don't have a gluten problem, but you feel better off gluten, then don't eat it.

Take care

Stephanie

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,363
    • Total Posts
      920,544
  • Topics

  • Posts

    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
    • Hello we got her biopsy results back and they are normal.  The doc is calling her non celiac gluten intolerant and lactose intolerant.  Now we will just wait to see if the gluten-free diet helps her.  She does have elevated IgG to casein and wheat  I know there is controversy on whether that test is helpful or not but either way we are hoping she gets well going gluten-free    
    • My family was out camping earlier this month to our favorite lake.  They have a restaurant there we have going to for years.  Since I recently went gluten free, I was very nervous about trying out their menu.  Usually, restaurants have a select few items you can choose from that are considered "gluten-free" (i.e. Olive Garden).  However, this restaurant even had French Fries that were in a separate fryer than the rest of fry population.  I considered it a huge treat when they not only went out of their way to make sure you could get sandwiches gluten-free, but also had French fries and a dessert available.  The best part of it was I didn't get sick afterwards.  Yahoo!  Thank goodness it's 3 hours away.
    • too many of us are treated this way, unfortunately   ^^^^^  and many of us have been in the same (no quality of life!  always sick! )  situation and yes, it can be life threatening if left untreated.  so glad you're feeling better   no thanks to the almighty doctor  i have a celiac diagnosis and my g.p. (who i go to - or used to go to - for my check ups, see how my blood pressure is, vitamin levels, etc.  normal maintenance, you know) tried to give me viberzi!!  for my ibs-d !!  what???  i have celiac.  i was furious!!  (i'm still pretty upset)   o, the good news was that he gave me a coupon for the first month.  after that, it's THIRTY DOLLARS A MONTH.   not to mention all the lovely side effects (one of them was diarrhea!!)   no, thanks, buddy....   anyways, rant over lolz - welcome to the forum!
    • Those numbers are all perfect meaning they show you likely don't have celiac.  Those tests are very accurate IF you are eating a normal diet of gluten.  You must be eating gluten for weeks prior to this testing.  So if you have not been then yes these results are not accurate.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,437
    • Most Online
      1,763

    Newest Member
    Laurabella
    Joined