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Help For My Husband


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35 replies to this topic

#1 Katty

 
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Posted 25 November 2012 - 11:16 PM

About two week ago, my Husband and I discovered he has celiac disease. We immediately changed our diet to only lean meats, fruits, vegetables, eggs and yogurt. We eat no processed gluten-free products, grains, starchy foods or anything else. We even eliminated milk.

I got rid of all of my contaminated cookware, replacing it with new stuff, and washed everything in the house. His stomach issues have gotten much better, but he’s been going through some things. I just want to make sure this is indeed normal and that I’m doing all I can to support him.

He:
  • Is always tired and can often sleep for up to 13 hours a day. If I wake him, he feels drained and grouchy.
  • Doesn’t feel full from a meal unless it has a significant amount of proteins and fats.
  • Has mood swings. He often gets angry over small things or seems to go through waves of depression.
  • Feels better one day, goes to bed and wakes up feeling worse.
  • Doesn’t want to exercise or do anything that requires exertion.
I:
  • Let him sleep when he needs it.
  • Feed him lean meats with some fats (avocado or olive oil) at every meal.
  • Plan to encourage him to start taking short walks with me to get more sunlight and light exercise.
  • Try to stay positive about everything and do my best not to agitate him when he’s feeling grouchy.
  • Eat a completely gluten-free diet with him.
Is there anything I can do to help with how tired he is? He’s taking a Men’s 1-A-Day vitamin every day, but I just ordered him a special celiac multivitamin. Is pushing him to go for walks a good thing?

I’m just looking for some guidance. I want to do everything I can to help him, and I’m trying to, but I’m just checking that none of it is actually hurting more than helping (letting him sleep, for example).

If it matters, he’s in his mid-20’s.

Edited by Katty, 26 November 2012 - 08:53 AM.

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We must be willing to let go of the life we planned so as to have the life that is waiting for us. ~ Joseph Campbell

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#2 mushroom

 
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Posted 26 November 2012 - 12:43 AM

Hello, and welcome.

It sure sounds like you are doing your part in supporting his recovery. What he is going through is not abnormal. Recovery is not a straight line on a graph, there will be good days and bad days. He has a lot of healing to do from the damage that has been done. He is also most likely going through a withdrawal process (gluten acts as an opiod and can be just like nicotine or heroine in the withdrwal process), So cut him some slack on the grouchiness :) Fatigue is common so do let him rest as much as possible. He has been starved of nutrients because celiac is a disease of malabsorption, so when you are in recovery you must eat what your body tells you it needs. Good fats, like butter, olive oil, nuts, avocados, eggs, are all to the encouraged, as are proteins.

I would encourage him to have his nutrient levels checked by his PCP, vitamins and minerals, the most crucial being the B's (particularly B 6 and B12, Vit D., ferritin/iron, potassium, magnesium, zinc, copper, and also a thyroid test (not just TSH but also TPO antibodies). These are all things celiacs tend to be deficient in and the typical supplements are not enough, sometimes you need prescription strength. I still take Rx Vit.D and B12 injections (I could not handle the sublingual that most people do). I was also deficient in folate (B6) and was hypothyroid.

Yes, walking is the best exercise to start off with, and the fact that you can do it together is even better. When he no longer needs the sleep he will probablly stop sleeping so much. Remember, this is a healing process he is going through, and just like healing from anything else it takes time. You cannot just turn off the gluten faucet and be well. :)

Do stay in touch and ask any more quetions as they arise.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

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Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#3 rosetapper23

 
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Posted 26 November 2012 - 12:47 AM

Ha ha! It appears that I was posting at the same time as Mushroom, and our responses contain almost the same information! Anyway, here's what I had to say:

It sounds as though he needs to be tested for his nutrient levels--he may need more than what a multivitamin has to offer. It's common to suffer from either iron anemia or Vitamin B12 deficiency as well as deficiencies in Vitamin D, magnesium, Vitamin K, and B vitamins, in general. He should also get his thyroid tested, because Hashimoto's Thyroiditis is common in people who have celiac. Otherwise, it sounds as though you're doing everything right. Yes, he should get as much natural sunlight as possible. If his muscles are tired or if his joints are bothering him, you may need to have him take some chelated manganese.

You're doing an excellent job--I wish I had someone just as great to take care of me!
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#4 Celiac Mindwarp

 
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Posted 26 November 2012 - 02:54 AM

Great advice, you sound like the most amazing supportive and clued in person.

The only thing I would add is to take care of yourself too :)
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- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein Posted Image

#5 IrishHeart

 
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Posted 26 November 2012 - 06:12 AM

Well, I was going to say just about everything these three wise women said, so I'll just say...you are doing everything you can and you are an amazing supportive spouse! Having one of my own has been an enormous help--I do not think I could have recovered as well without him. He's been a rock.

I echo having his Vitamin B-12, FOLATE (B9), B6 (pyridoxine), ferritin levels and Vit D levels checked.
They are often low as a result of malabsoprtion and may need supplementing. I was really flagging when I found I had deficiencies in all of those and appropriate supplementing helped me out. I think a good probiotic may help with gut repair, too.

Both of you ---just hang in there.

Please, tell your hubs that it does take time to see progress, but it does get better. :)

Best wishes!
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#6 Katty

 
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Posted 26 November 2012 - 09:20 AM

Thank you all for your wonderful advice. I’ll take him to get his vitamin levels and thyroid tested ASAP. I’m fairly certain he has a vitamin D deficiency and I’m sure it’ll get worse now that we cut out fortified milk. (He seemed to be slightly lactose intolerant.) I’m so glad everything he’s going through is normal. Our doctor admits that he doesn’t know enough about celiac and essentially sent us packing with a “stay away from gluten” recommendation.

I have some questions about the few things our doctor did recommend:
  • The doctor did say dark chocolate will help him heal. Is there any truth to this? Sounds odd to me, but hey, if he needs chocolate I’m more than willing to keep us stocked.
  • The Doctor also said to give him lots of coffee. This sounds odd to me, is it beneficial? I love coffee, but he doesn’t really like it.
  • The doctor said beans are bad for him. Why is that?
I try to get one good fat and one good protein in every meal. I start his days with yogurt to get him probiotics, actually. Usually yogurt, fruit and some nuts. I don’t mind since I love cooking for us. Thanksgiving was rough, but we managed to get through without a gluten incident. I brought our own food to our family’s dinner, which was awkward but relieved a lot of stress for us.

It seems to be more than a gluten withdrawal, I think we both got that pretty early. He started feeling better. He had more energy and was happier. Following that came his grouchiness and fatigue. I don’t get down on him with his grouchiness. Don’t get me wrong, it’s a little rough, but I just remind myself that he’s healing and change the subject.

I’m just grateful that we’re no longer damaging his body with gluten. I baked bread/served pasta on a daily basis prior to finding out. I gave away pounds upon pounds of whole wheat flour (Now, the very thought of feeding him whole wheat bread makes me cringe.)

Anyway, thank you all again for putting my mind at ease. I’m trying to support him every step of the way and want him to heal as fast and thoroughly as possible. Since I’m already the primary cook, I get to introduce us to new things and I’m trying to make this fun. From my understanding, I basically shifted us to a paleo diet.

(One thing I’m not complaining about is that I'm dropping pounds! I was on the “last 10” and now those “last 10” are gone thanks to going gluten-free! I also seem to have more energy.)

Edited by Katty, 26 November 2012 - 09:32 AM.

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We must be willing to let go of the life we planned so as to have the life that is waiting for us. ~ Joseph Campbell

#7 squirmingitch

 
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Posted 26 November 2012 - 10:25 AM

Boy Katty, you are the model spouse of a celiac! Kudos to YOU! The others were spot on with their advice.
Based on your last posting I will add that gluten withdrawal can take some time & it can seem gone & then it comes back ~~~ another good days, bad days kind of thing. The first 6 months, at least, of gluten free can be wonky so just try to roll with the punches as you have been doing. He will have advances & set backs. What seems like great healing followed by regression --- up & down.
I will stress that it seems most of us need LOTS of protein & especially in the mornings. I am 1 year gluten free & still find myself needing gobs of protein in the morning. Sort of like turning your meals upside down ~~~ dinner for breakfast & breakfast for dinner.
You did perfect at Thanksgiving! Eliminating the stress is half the battle.
You can give him fortified orange juice to help with the D. When we have celiac disease the villi become blunted (or worse) & the tips of the villi are what dealt with lactose (dairy) but they aren't there anymore so diary is difficult or impossible to tolerate & that can include yogurt so watch for that. Culturelle makes a gluten free, non dairy probiotic capsule if he should need it.
The doc provably said the dark chocolate for the antioxidant factor but check as even dark chocolate can contain dairy.
I have no idea why he said coffee. If your hubs isn't into coffee then I see no real reason for him to force himself to drink it unless someone can come on here & tell us both why he should.
Beans are only bad for him if they cause him gastric distress. Again, I don't know where the doc was coming from with that one.
It's fantastic that you are a baker & seem to love cooking in general. You will transition easily to baking gluten free breads & goodies! :)

Welcome to the board!
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#8 GFinDC

 
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Posted 26 November 2012 - 01:58 PM

...
I have some questions about the few things our doctor did recommend:

  • The doctor did say dark chocolate will help him heal. Is there any truth to this? Sounds odd to me, but hey, if he needs chocolate I’m more than willing to keep us stocked.
  • The Doctor also said to give him lots of coffee. This sounds odd to me, is it beneficial? I love coffee, but he doesn’t really like it.
  • The doctor said beans are bad for him. Why is that?
...
(One thing I’m not complaining about is that I'm dropping pounds! I was on the “last 10” and now those “last 10” are gone thanks to going gluten-free! I also seem to have more energy.)


Hi Katty,

Chocolate
Not sure on the chocolate thing. Most chocolate has soy in it and dairy. But dark chocolates are sometimes soy / dairy free, so he may have been thinking of that.

Caffeine
I don't think lots of coffee/caffeine is beneficial myself, expecially if he doesn't like it much. Iahd to quit coffee and caffeine for a number of years myself, as it caused large swings in my energy / fatigue levels and was not a stablizing effect on my health. NOw I can drinnk black tea but it was years after gong gluten-free thing to get to that point. And eliminating several other food intolerances that popped up and caused their own symptoms.

Beans
Beans can cause gas for most people. That may be what he is thinking of. When your gut is inflammed and irritated gas can cause quite a bit of pain. Beans can also have high lectins and some of us react to them. I stopped eating beans for several years but can eat them again now. Well, some of them anyway. but everyone is unique in the foods they react to, and he may have no problem at all with beans.

I mostly take vitamins as individual items, like a B-complex, or calcium and magnesiusm, instead ot the kitchen sink variety. The kitchen sink fixes everything for you pills often caused me digestion problems, and reactions. I do take a multi-mineral tho.

Hubby may be grouchy because he is in pain, but doesn't realize it. The small intestine is around 22 feet long, and wraps back and forth in the abdomen. So pain can be spread over a fairly large area and not localized to a specific spot. Imagine a 22 foot long scraped knee that doens't stop hurting in a few minutes or days even. The inflammation can cause constipation as well as diahrea. The probitoics can help with replenishing helpful bacteria in the gut, which get out of balance with bad bacteria at times.

Some of the more common food intolerances people report here are soy, nightshades, corn, dairy, eggs, oats all in addition to gluten, (wheat, rye and barley). Sometiems tehse additional food intolerances go away after a while on the gluten-free diet tho. Sometimes not. Everybody seems to have their own unique combo of them, and some people have none. It is just something to be aware of as a possibility.

It sounds like you are doing a really good job of going gluten-free! :D That's great. You are already doing most of these tips I think.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.

Helpful threads:

FAQ Celiac com
http://www.celiac.co...celiac-disease/

Newbie Info 101
http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?
http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?
http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?
http://www.celiac.co...ooking-tonight/

Dessert thread
http://www.celiac.co...399#entry802399

Easy yummy bread in minutes
http://www.celiac.co...ead-in-minutes/

How bad is cheating?
http://www.celiac.co...t-periodically/

Short temper thread
http://www.celiac.co...per-depression/

Non-celiac wheat sensitivity article
http://www.celiac.co...ists/Page1.html

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes
http://www.celiac.co...e-free-recipes/
  • 1
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#9 rosetapper23

 
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Posted 26 November 2012 - 02:15 PM

Just a small addition: If your husband ends up needing to take Vitamin D, our ability to absorb it can be challenging. What was recommended at a recent celiac conference is to take Country Life Natural Vitamin D because it also contains Vitamin A and medium-chain triglycerides. You see, each of our cells has two A receptors for every D receptor, so taking only Vitamin D makes no sense. Also the medium-chain triglycerides will help your husband absorb the Vitamin D. I took 50,000 iu's of Vitamin D daily for a year and saw no improvement in my level; however, after only a few months on 400 iu's of Vitamin D in Country Life Natural Vitamin D, my Vitamin D level is the highest it's been in my entire life (I was born with Rickets). It's over 60! This is amazing to me and proves that the information I received at the conference was correct. Hope this helps....
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#10 Katty

 
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Posted 26 November 2012 - 03:36 PM

I didn’t even think of the beans causing gas, that must be the reasoning. I soak beans overnight to remove the gas-causing compounds, so I think we’ll give them a shot. They’d really make our diet more cost-effective.

I’ll look at piecing together an individual spread of vitamins once we get the results back on his vitamin levels. The Vitamin D from Country Life Natural sounds great and I have a feeling I’ll be driving to the local vitamin cottage to get some.

The pain sounds awful and I’m sure it contributes to his moods.

We’re watching for additional intolerances as our diet develops. It only took one time of him eating potatoes for it to be clear he shouldn’t be eating them. The same goes for soy, dairy, oats and whole grains in general. Eggs and tomatoes seem to be fine for him, as does yogurt oddly enough. The company says it’s safe for celiac because the beneficial bacteria breaks down the gluten on its own.

Thanks for all of the tips and links. I went through and bookmarked each one and I’ll read through them when I have time over the next few days.

It was really a shock for me when my Doctor recommended marriage counseling for us to deal with celiac. When I declined, the nurse told me that many spouses continue to eat gluten (and I’ve read plenty about that) but I just can’t fathom doing so myself. I refuse to eat gluten even when we’re apart, let alone in our home, and I hold nothing against him. It’s a blessing in its own right, forcing us to eat healthy and all of that. Plus, I’m happy that he doesn’t have something worse. The doctor dropped the words “colon cancer” and had me panicked for what felt like forever.

Since our doctor doesn’t seem to know enough about celiac, I’m considering finding a specialist in my area. My Husband would prefer just to listen to his body and not spend the extra money, though. We’ll see, I suppose.

I don’t know about fortified orange juice, though. I think I’ll buy vitamin D supplements and skip anything that comes in a package. Even orange juice. I’m verging on paranoid with our food and would be nervous giving him processed orange juice. Just like I don’t plan on doing gluten-free baking unless he requests it down the line. If I do, I’ll buy gluten testing kits to check each flour/ingredient to put my mind at rest.

I have one more question (I’m sure one of many, really. You’re all so wonderfully helpful. :))

Does anyone have a hard time with car rides? He can never get in a car without the sudden urge to have a BM, even if he just had one before leaving the house. His stomach cramps and he says it’s immensely uncomfortable. This causes massive anxiety for him when we need to travel. It started years ago, before I knew him, when his stomach problems began (what we now believe to be the onset of celiac for him).
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We must be willing to let go of the life we planned so as to have the life that is waiting for us. ~ Joseph Campbell

#11 rosetapper23

 
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Posted 26 November 2012 - 04:23 PM

Hmmm....your last posting posed an interesting question. The only response I have is that gluten is considered a neurotoxin to people with celiac. It can cause all kinds of neurological damage and conditions. If he's always had a problem with diarrhea, I can understand how he may have developed anxiety about going on car rides. Anxiety in itself is a common symptom in people with celiac, as is depression. Over time, his diarrhea should lessen--it took me 18 months, however, to completely resolve the bathroom issues. A product that I would highly recommend is Metagenics UltraClear Sustain Medical Food, which was recommended to me by an integrated medicine doctor (who is also an internist). He told me that if I added only one scoop to my smoothie every day, I would feel as though I didn't even have celiac. He was right! Within two weeks, the diarrhea and cramping completely went away, and I wished that I'd known about this product earlier. Also, in the interim, if your husband continues to be challenged with car rides, would he be willing to take some Immodium D to help him get through them? I use it when I'm fearful of such episodes myself. His mind needs to retrain his body, and once he has a number of successful car rides, his mind may believe that all is well.

There is a quote from James Allen that I keep taped to my hard drive (because I have Stage IV cancer and try to meditate daily to heal myself), which may help him: "The body is the servant of the mind. It obeys the operations of the mind, whether they be deliberately chosen or automatically expressed. All bidding of unlawful thoughts the body sinks rapidly into disease and decay; at the command of glad and beautiful thoughts, it becomes clothed with youthfulness and beauty."

And, no, in case you're worried, my cancer is not colon cancer....however, I do believe that celiac is the root cause of my cancer due to nutritional deficiencies I suffered throughout my lifetime. Your husband is still young--as long as he follows a gluten-free diet, he should be fine and enjoy a long and healthy life. He is SO fortunate to have you!
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#12 GFinDC

 
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Posted 26 November 2012 - 08:40 PM

Hi Katty,

There are celiac support groups in many areas. They generally have meetings for new people and members once in a while. Some hospitals also sponsor support groups. Support groups are a great way to meet other people with celiac and also learn about good doctors and places to eat etc.

http://www.celiac.co...ons-&-Contacts/

Don't worry about reading all of those threads right away., The meal idea threads are just for that, ideas of things to eat. They tend to get a little long after a while.

Soaking the beans is supposed to help. Actually, it is a good idea to wash and rinse any beans or grains before cooking them. Expecially quinoa if you decide to try that. Qunoa is very nutritious but has a natural film on the grains/seeds that can make people sick. It can be washed off with plain water though.

You might want to avoid nuts and seeds that are marked as being processed on shared equipment also. Some manufactureers do a good job of cleaning their equipment between runs but some don't. Often if you have a question on a particular product, you can do a search on this forum and find some info about it.

Nightshades are potatoes, tomatoes, peppers and eggplant. Some people react to all of them, some only to one or or two etc. Sometimes people react to a food intolerance within minutes or hours, and sometimes it takes days for a reaction build up to a noticeable point. And the reactions can be a wide range of symptoms, from joint pain, to mucle twitches, to scaly skin, rashes, anger, depression, hair loss, vision changes, migraines etc..

I think you are right, eating gluten-free can be a very healthy diet change for many people. A whole foods diet has far fewer man-made chemicals in it which is probably good IMHO.

I haven't had the particular issue with riding in cars you described for your hubby, but I have had plenty of times I just didn't want to go anywhwere for fear of problems.

Your hubby may heal pretty fast or it may take awhile. Everyone seems to be slightly differnent on these things. Younger people do heal faster generally tho, if they are good about sticking to the gluten-free diet anyway.

Having celiac can mean having a touchy digestive system, that reacts negatively to many things. So it may not seem to make sense what sets off a reaction for the first couple months. Thats a good reason to keep the diet simple and whole foods. Fewer food suspects.
  • 0
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#13 Adalaide

 
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    It needs to be about 20% cooler.

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Posted 27 November 2012 - 09:57 AM

I just thought I'd say, even though it has been said, that you are amazing. My husband has been loving and supportive but you have gone so far above and beyond what so many of us could dream. You are the model spouse and any celiac would be lucky to have you. I image that in this terribly trying time that your husband's life is made much simpler and easier by the fact that you are making the changes with him, and that you are so very understanding of what he is going through. You've gotten lots of good advice here and I have nothing useful to add. I just wanted to say kudos.
  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#14 Katty

 
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Posted 27 November 2012 - 10:22 AM

I’m looking into celiac support groups nearby, thanks for that link! We previously ate quinoa (as a halfhearted attempt to eat healthy) and I know all about what happens if you fail to wash it. :( However, my Husband seems to have a reaction to it, so we’ve eliminated quinoa from out diet, rinsed or otherwise. Flaxseed is also on the list of foods that cause reactions for him.

I’m very cautious of nuts, as I called a company that didn’t have any information on their package and they processed on equipment that processes wheat. I refuse to spend money on any product that’s even processed in a facility that also processes wheat. No point in risking my Husband’s health for the sake of convenience.

He gets severe belching/bloating when he’s been glutened or exposed to foods he’s intolerant to. We figure we’ll cut out anything that he possibly has a reaction to while he heals and then experiment with reintroducing foods. (Of course, I don’t mean gluten foods, just grains, potatoes and the like.)

The belching was actually what finally prompted the doctor to test for celiac. We’d just eaten noodle soup before his doctor appointment and my Husband was belching up a storm. While waiting for the doctor in the clinic, I used my phone looked up why he would be belching after noodle soup and found info on celiac. After much prodding and me pointing at the information on my phone, he finally listened. Why is it so uncommon to test for celiac?! (Sorry… End rant.)

Today, my Husband is complaining of a mental fogginess worse than ever before. He describes a buzzing in his head and a great difficulty forming thoughts. His depth perception is skewed, too. I convinced him to nap and hope he’ll be better when he wakes.

My only real question today is… Is 72 ounces of water per day enough? I’m wondering if he’s dehydrated. He says his electrolytes are balanced (he used to be a swimmer and is pretty keen about such things) so I’m thinking this buzzing must be from dehydration. Or is that just another healing thing? He has a hard time making decisions right now, too.

Sorry if I write essays with every post. I now come here when my Husband is sleeping. It helps calm my nerves. I can’t really explain it, but it helps to feel like I’m helping him. I just quit my job at a local convenience store to be home with him all the time while he heals. He said he was feeling excessively lonely, and I didn’t think that’s good for his healing. He lost his just after his diagnosis. He was falling asleep at work. I have enough passive income from other sources to be okay for awhile, just us staying home. (What was I saying about writing too much? Oops)

Anyway, a note just for RoseTapper: Thank you so much for the recommendation for the Metagenics powder. I’ll see about purchasing some for him very soon. Anything to help him feel better ASAP. I asked my Husband about Imodium, he said he’d be willing to give it a shot next car ride. If his anxiety was calmed, I’m sure car rides would be easier on him.

That quote is wonderful, thank you so much. He just started doing light yoga, perhaps I’ll have him meditate on it/it’s meaning as he stretches. My Uncle uses meditation/astral travel (I believe that’s what he calls it.) as part of his therapy, as he has stage III cancer. I’ll also pass the quote along to him. Once again, thanks so much, and I am sorry to hear about your cancer. My prayers/positive thoughts are with you.

Thank you all so much for being here. You’ve already helped my Husband and I so much. You help me stay calm and confident, which keeps him calm and confident. :)
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We must be willing to let go of the life we planned so as to have the life that is waiting for us. ~ Joseph Campbell

#15 squirmingitch

 
squirmingitch

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Posted 27 November 2012 - 12:07 PM

Katty, Myself & quite a few others get a LOT of stuff from Nuts.com. They have certified, batch tested gluten free items & we're not just talking about nuts. There are flours & candies & seeds & nuts & dried fruit & chocolate for baking or eating & more. I wouldn't get my nuts anywhere else! I have never heard of anyone having a problem with anything they got from them. Make sure to click on their gluten free section.
IMHO the mental fogginess & buzzing is still part of the withdrawal/adjusting process. I had that off & on for months.

No problem with writing novels here --- the more info. the better we can help you.

Finally, let me speak for all of us in saying that you are playing the care giver role in this & as such you will most likely at some point need to scream. :) Feel free to rant, rave, scream , whine or cry when the need arises. We get it! And it's totally allowed here. Just letting you know.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 





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