Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Always Bring Your Own Food!
0

19 posts in this topic

I have been reading about Thanksgiving and noticed that quite a few of us were glutened. I see it all the time here, someone goes to a friend or relative's house and tries to eat gluten-free, but ends up getting glutened, even when the host/hostess really tries to make a gluten-free meal.

WE NEED TO BRING OUR OWN FOOD!

I don't care how embarrassed we feel. (We shouldn't, by the way.) I don't care how many rude comments we get. (They are just that - rude.) People with allergies need to avoid their allergens. People with diabetes need to avoid sugar. People with back problems need to avoid heavy lifting. People with bad hips or knees need to avoid stairs. People who get sun poisoning need to avoid the sun.

So why in the world should we feel strange for needing to avoid gluten? We have a serious disease, and we need to do everything we can to protect our health.

WE NEED TO BRING OUR OWN FOOD!

If it makes you feel conspicuous, you need to gather your strength and put your foot down. This is the way it is. Practice saying it - "This is the way it is. Subject closed." They may talk about you behind your back, but if they do, be assured, people who would do that are ALREADY talking about you behind your back over any number of different things. SO WHAT? Are we supposed to risk our health on the off chance that they will STOP talking behind our backs? Are THEY worth it?

The people who know and love us will understand. If they don't know and love us, we can live without them! In the case of uncaring relatives, hey, we ALL have relatives we wish we didn't, but we put up with them. So put your foot down, bring your own food, put up with the funny looks, but tell them, "This is the way it is - subject closed." They'll either get over it, or they will have the great pleasure of talking behind your back, but it shouldn't affect YOU. YOU are taking care of your health.

So remember:

WE NEED TO BRING OUR OWN FOOD! "This is the way it is. Subject closed."

6

Share this post


Link to post
Share on other sites


Ads by Google:

Amen!

2

Share this post


Link to post
Share on other sites

Well said and absolutely correct!

My life simplified when my intolerances increased - it was no longer a choice to try to eat gluten-free in other's homes - once the option was gone it really was a big relief. I now know how to let my host/hostess know that I'll bring my own for all situations.

There is no reason removing gluten is not enough of a reason to BYO if it reduces stress in your life.

1

Share this post


Link to post
Share on other sites

Well said bartful, well said! A big round of applause for that!

0

Share this post


Link to post
Share on other sites

Yep I had a fabulous Thanksgiving and thought it would be awkward or appear rude bringing my own food but everyone acted understanding about it. It was great! You are 100% correct because it is our own bodies, we are the ones that are responsible for our actions. They dont have our bodies and dont know what we go through or have the medical knowledge to address it. I am pretty sure people in my family think I am strange but idc they love me and I wont hold their ignorance against them.

Honestly, I think it sometimes makes other people feel better about themselves for their own lack of responsibility to paint us as extremists. I think some of it is jealousy for the people around me, because I lost a lot of weight. When they are dieting it is like, "oh US dieters". I always say that I am not dieting, as long as I dont eat gluten or corn, I lose weight. I just love to rub it in and enforce the fact that i have food sensitivities im not trying to get skinny or just cut out something that makes me have a little tummy ache. Grr

0

Share this post


Link to post
Share on other sites




Thank you for posting that.

0

Share this post


Link to post
Share on other sites

Oh Bartful! You said a mouthful of truth in what you said! We *must* bring our own food to survive! Great Mantra for us all to remember! Thank you! :) :)

How are you? Last time I heard, you were having a hard time :ph34r: I hope you are feeling better??? (See emoticon with my fingers crossed hoping you are feeling better!) :D

0

Share this post


Link to post
Share on other sites

Point needed. I learned that eating my own was "My preference" yesterday. I don't consider it a preference, but a necessity.

0

Share this post


Link to post
Share on other sites

Great post! I find it hard because mine is not celiac disease, but I do react to several substances (and several doctors agree with that). So people don't really take that seriously.

I think some of it is jealousy for the people around me, because I lost a lot of weight. When they are dieting it is like, "oh US dieters". I always say that I am not dieting, as long as I dont eat gluten or corn, I lose weight. I just love to rub it in and enforce the fact that i have food sensitivities im not trying to get skinny or just cut out something that makes me have a little tummy ache. Grr

Amen!!!! I get that all the time. "Oh, you're one of THOSE non-starchy people..." Well, uh, thanks for reminding me how much I miss baking since my doctor decided I have to be grain-free at least for a while. Or would you rather me give you an in-depth description of what will happen in your toilet bowl if I eat outside my doctor's plans? I think the rude people are only those who feel that out taking care of ourselves somehow "judges" their *not* taking care of their eating habits.

But I am getting better, thanks to this board: when a random date asked me why I refused to share his chocolate, I laughingly explained that soy lechitin makes me so hyper that scream at people (sad, but true), and I'd rather avoid that on a first date... :P

1

Share this post


Link to post
Share on other sites

And truly don't you think it takes a weight off of the host or hostess of the dinner that they don't have to try to make something "special" just for us ?

0

Share this post


Link to post
Share on other sites

I totally agree here. I recently started gluten-free last month and am noticing a huge improvement in my life. I aso just found this board, it is such a great resource. I will bring my own food when going places, and won't apologize for it. it's my health and if I don't take charge, I will suffer. there is no choice

0

Share this post


Link to post
Share on other sites

The 2 things I learned when I was diagnosed (at 20 months old), so really the 2 things my mom taught me when I was young are

1. never be too nice

2. always carry rice cakes

I'm 22 now, I still have a bag of ricecakes in every bag I have, along with a protein bar and such for the moments where I don't feel comfortable eating what is being served.

1

Share this post


Link to post
Share on other sites

The only situation where the bring your own food doesn't work :(:angry: is where you have dinners with special couples (just them alone, not a whole tableful of people) and we used to do this often because hubs can't hear from one end of the table to the other :) . It's rather hard when they are inviting just you!! to dinner and wanting to show off their cooking, and you say WE'll bring our own :lol:

0

Share this post


Link to post
Share on other sites

Mushroom, I would STILL bring my own! I would tell these people that I would really enjoy breaking bread with them, having great conversation over a meal, and spending some time with them. Then I would tell them how sorry I was that I couldn't enjoy their cooking which always smells so good, but they THEY are more important to me than food, and in order to really enjoy their company without worrying about my health, it would be best if I brought my own.

But that's just me.

0

Share this post


Link to post
Share on other sites

Yep, I'd bring my own or invite them to mine :)

Tried an alternative on Saturday, Mr Mindwarp cooked all my food in someone elses kitchen. Guess what?

Always take your own :o

0

Share this post


Link to post
Share on other sites

What I was meaning is, we are both gluten intolerant, so there is no point in trying to cook for either of us, so it becomes more of a one-way street :D

0

Share this post


Link to post
Share on other sites

I'm learning to love being host :)

My cunning plan at Christmas is to get everyone to ours for my 1st gluten-free one.

I know what you mean though, would be nice to accept the odd invitation. Ho hum. Maybe time to contact my local support group for new gluten-free friends. Mr Mindwarp is our baker and pulled off gluten-free eclairs a few weeks back. That's gotta make us popular, right?

1

Share this post


Link to post
Share on other sites

I'm so looking forward to this experience, ha ha!

Almost a few weeks in since Thanksgiving (and only two weeks in prior to that). I had no idea the stigma but will be finding out shortly.

Thanks for the veteran post!

Cali

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,681
    • Total Posts
      921,726
  • Topics

  • Posts

    • No I'm in the UK, from what I've been told that's a good thing for gluten labeling and standards compliance. What you and everyone else on here says makes me sense than what the doctors are saying (a confused message at best is what they're giving me, each one with a slightly different version of it). My referral letter is in the post so on theory appointment may not be that far away. I have a load of my favourite Quorn stuff (non-gluten-free version) in the freezer so perhaps using that up may be a good way to proceed for now. I'm out at the moment and torn whether to try chips from a café, in the strict gluten-free future would probably be a no-no but in current situation probably not so bad...
    • I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'.  I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is very important to make sure that one meal has a good amount of both calories and nutrtion.  If your diet is how you describe you are starving yourself.  You need to get yourself used to eating again.  What helped me was carrying a baggie with some nuts and dry fruit with maybe even a handful of gluten free pretzels and always some chocolate baking chips. I just ate couple pieces when I thought of it throughout the day. A little bit of cheese and a couple safe crackers, a piece of fruit or a small tin or individual serving snack pack are also good. You need to get some nutrition during the day so you can feel up to cooking a simple full meal  for dinner. I hope your feeling better soon.
    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
    • We don't delete accounts but can delete any personal information and change your screen name if you would like. Just send me a personal message with three possible screen names. For the record you can edit most things in your account area with the exception of your screen name.
    • Thanks I never heard of that dye before, I guess I have to find more natural meat thanks for the suggestion. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,681
    • Most Online
      3,093

    Newest Member
    Misalina
    Joined