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Celiac Blood Panel Questions


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#1 haleym

 
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Posted 26 November 2012 - 05:51 PM

Hi everyone! It's been a while since I've posted... I have symptoms of gluten intolerance and my doctor wants me to have the celiac panel done to check and see if I have celiac disease, or a non celiac gluten sensitivity. I ate gluten last Wednesday in the form of a glorious baguette and paid dearly for it all weekend. It was a re introduction of gluten after being off for about five weeks as part of a detox/elimination diet to figure out why I have been so tired for so long. Also found out today I have Hashimoto's disease. Nice.

I've read that one must be currently eating gluten before getting tested and I want to know how much and for how long before I go and get myself tested. I want the. Test to truly reflect what is going on so I can know if I have celiac or not! Knowledge is power!

Thanks!

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#2 mushroom

 
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Posted 26 November 2012 - 06:21 PM

Ah, a thorny question indeed, and one to which there as many different answers as there are people answering, it would seem.

Sadly, the middle ground, where you are likely to be sure of accurate results, is probably 6-8 weeks. However, each individual is different, has differint levels of sensitivity, has been susceptible to gluten for shorter or longer periods, has been gluten free for shorter or longer, and probably has different levels of damage to the small intestine, which can affect how long the trial should be. Also, some people heal faster than others. And you cannot always judge by the severity of the symptoms.

Many people have done shorter challenges of one or two weeks as recommended by their doctors; a few have come up positive regardless while most simply had not been at it for long enough and were disappointed.

Discuss it with your doctor, read what the major celiac centers (Mayo, Columbia, Maryland, etc.) recommend and then you will have to decide for yourself.
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#3 haleym

 
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Posted 26 November 2012 - 08:07 PM

Ah, a thorny question indeed, and one to which there as many different answers as there are people answering, it would seem.

Sadly, the middle ground, where you are likely to be sure of accurate results, is probably 6-8 weeks. However, each individual is different, has differint levels of sensitivity, has been susceptible to gluten for shorter or longer periods, has been gluten free for shorter or longer, and probably has different levels of damage to the small intestine, which can affect how long the trial should be. Also, some people heal faster than others. And you cannot always judge by the severity of the symptoms.

Many people have done shorter challenges of one or two weeks as recommended by their doctors; a few have come up positive regardless while most simply had not been at it for long enough and were disappointed.

Discuss it with your doctor, read what the major celiac centers (Mayo, Columbia, Maryland, etc.) recommend and then you will have to decide for yourself.

thanks- read the Chicago center and they say 1/2 piece of bread or cracker a day for 12 weeks before test. Will look at the other centers then decide.
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#4 guest134

 
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Posted 26 November 2012 - 09:23 PM

Well actually - "Does this apply to you?
It is important to note that some people with Type 1 Diabetes,
Hashimoto’s thyroiditis and autoimmune liver conditions can have
a falsely positive tissue transglutaminase test."

http://www.uchospita.../uch_007935.pdf

That is from the University of Chicago Celiac disease centre. Biopsy and improvement upon gluten free diet is extremely necessary in your case, especially since your IgA class was negative.
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