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Went to the doctor today and despite skepticism, she tested me for yeast overgrowth. Guess what. I was right. I have to take fluconazole and nystatin, a very aggressive course of treatment. Back on a low carb/sugar diet. I am really hoping that this, in conjunction with my Gluten-free Casein-free diet will put me on the path to healing.

Isnt it great when, for once, tests prove what you know? Thanks to this forum, I am moving toward healing and a hopeful future. A lot of my reactions and chemical sensitivities may stem from this overgrowth that was caused by prednisone, followed up with strong antibiotics and then a gluten challenged immune system. Amazing like a dominoe. Yep thats how I feel, like my immune system is just a line of dominoes, waiting for someone to tip that first one over. Anybody else feel that way?

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Yep, with my gallbladder. Months of heck with ultrasounds from every which way (even this was painful then) and the blood tests came back normal. Even went to the ER once because the pain got so bad (and i was nauseous). Go to new GP and she says to get the HIDA scan done, and lo and behold there is my side pain problem. Another few weeks or so later it came out (longest time of my life).

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Don't forget your probiotics!!!

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Prednizone knocks down the immune system, so yeah it can be a problem. It would be a good idea to make sure you are getting some Betaine HCL in your diet if you are on prednizone. That may help your stomach acid defeat incoming pathogens. Your stomach acid is your front line defense when your immune system is shut down.

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@ Shadow: I can't imagine having to deal with gallbladder issues and celiac. I have no idea what a HIDA scan is lol hafta look it up.

@JNBunnie: I tried a acidophilus but it gave me severe heartburn bo matter how much water I drank after taking it. If I can find a gluten and corn free probiotic, it would be great.

@GFinDC: I never heard of that. I tend to have low stomach acid in the mornings that causes nausea but I get heartburn if I take something like acidophilus so I need a happy medium.

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You are aware that both fluconazole and nystatin cotain corn.

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@ Shadow: I can't imagine having to deal with gallbladder issues and celiac. I have no idea what a HIDA scan is lol hafta look it up.

@JNBunnie: I tried a acidophilus but it gave me severe heartburn bo matter how much water I drank after taking it. If I can find a gluten and corn free probiotic, it would be great.

@GFinDC: I never heard of that. I tend to have low stomach acid in the mornings that causes nausea but I get heartburn if I take something like acidophilus so I need a happy medium.

Razzle, I take PB8, which is a combo probiotic, it comes in capsules, and the one I get has a blue

label, and the ingredients are the probiotic organisms, inulin from chicory root, cellulose, and gelatin.

I am not a corn expert so I do not know if it's corn safe, corn is not listed on the 'free from' list on the

bottle.

I can tell you that you would probably be better off taking a probiotic before food, before the biggest

meal of your day. That way it will mix with the food and pass through before it causes heartburn. In

my opinion the more the merrier, a probiotic with eight different strains will serve you better than just

plain acidophilus.

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@ ncdave: yup. it has citric acid in it. it is definitely causing swelling but it is hella expensive so im trying to just live with it; there is no way I cann afford some custom medicine :(

. I am not having the neurological symptoms to it thank God, no brain fog, just abd. swelling but what can ya do?

@ JNBunnie: I think I will call my doctor up and ask for her help. I definitely cannot take anymore corn b/c I am so swollen right now but i also recently got glutened so I am hoping lots of water and some of this will subside in a day or two. At least now I can prove that I react to all gluten and it is not just wheat. Some barley malt got me :unsure:. So I can tell the doc I was right about something else ;)

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If there"s anything else in your diet that contains corn you can remove till you finish the meds, maby that would help. I doubt it would be enough to compensate for the amount thats in the pills, but it may make things a little easyier. water, salt, meats? Other than that wear some lose fitting clothing, and look forward to the last pill being gone, so you can start to feel better again. Wishing you mild symptoms, an a speedy recovery.

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If there"s anything else in your diet that contains corn you can remove till you finish the meds, maby that would help. I doubt it would be enough to compensate for the amount thats in the pills, but it may make things a little easyier. water, salt, meats? Other than that wear some lose fitting clothing, and look forward to the last pill being gone, so you can start to feel better again. Wishing you mild symptoms, an a speedy recovery.

Thx I am using only kosher salt but I will definitely be checking up on whether I can eliminate the meat washes by going to local farmers. I am so excited to make it through the first few days of treatment. I am already feeling so much better. Die off is pretty brutal.

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How did your dr. test for yeast overgrowth? Was it your GP that did it? I need to find a new GP because getting my current one to give me anything besides antacids (which would be awful since I have LOW stomach acid...she doesn't believe me) and antidepressants (because clearly I need that to tackle my stress...has nothing to do with food). :angry:

I try to stay very low carb/low sugar anyway because I feel better when I do. But every time I've taken some type of antifungal, whether it be natural or Rx, nothing happens. I take probiotics everyday which definitely helps the digestive system, but I can't figure the rest out!! Luckily (knock on all wood), I haven't had a YI in awhile, but I think being off the bc pill is helping that. But I'm still having skin trouble, fatigue and brain fog. If I eat carbs (gluten-free of course), my skin gets bright red and burns a bit on either side of my nose. Then I get terrible seborrhea on my scalp and I'm dizzy for a day or so. Feels like classic Candida reaction, but each time I've tried the diet and the antifungals, nothing happens (i.e. I've never experienced die off). Would like to get a doctor's help with all of this instead of just trying to figure it out on my own, but can't find one that will listen to me.

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Keep looking! Do not give up. When I got this new doctor, I told her up front that I got tired of

misdiagnosis all my life and described my indisputable symptoms. I did my research. I told her why I did not feel like something else because I had recurrent infections down below and she was skeptical but finally believed me when she checked. Some doctors are different but most do not want to think we can figure things out on our own by doing research and understanding our own bodies. They want to think that a decade in school is the only way to know what they know. Besides that, a lot of doctors, IMO do not want you to know what is wrong because they want to keep making money off you. They would rather say you have irritable bowel than for you to know you just have to eat gluten free. Where is the money in that? I say do not act desperate. Act matter of fact and as if you can always get another doctor if she/he is not doing what you want. Act content no matter what because it makes you not look like a hypochondriac or depressed and effectively says, "It is my way or the highway, Some money or no money is entirely up to you."

As far as testing, you can get a blood test done or you can even send stool samples to enterolab, or similar labs. Some of us may not have a bowel infection but just do not tolerate any grains so you will have to just test and see.

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    • Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue 
    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
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    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
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