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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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12 posts in this topic

Went to the doctor today and despite skepticism, she tested me for yeast overgrowth. Guess what. I was right. I have to take fluconazole and nystatin, a very aggressive course of treatment. Back on a low carb/sugar diet. I am really hoping that this, in conjunction with my Gluten-free Casein-free diet will put me on the path to healing.

Isnt it great when, for once, tests prove what you know? Thanks to this forum, I am moving toward healing and a hopeful future. A lot of my reactions and chemical sensitivities may stem from this overgrowth that was caused by prednisone, followed up with strong antibiotics and then a gluten challenged immune system. Amazing like a dominoe. Yep thats how I feel, like my immune system is just a line of dominoes, waiting for someone to tip that first one over. Anybody else feel that way?

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Yep, with my gallbladder. Months of heck with ultrasounds from every which way (even this was painful then) and the blood tests came back normal. Even went to the ER once because the pain got so bad (and i was nauseous). Go to new GP and she says to get the HIDA scan done, and lo and behold there is my side pain problem. Another few weeks or so later it came out (longest time of my life).

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Don't forget your probiotics!!!

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Prednizone knocks down the immune system, so yeah it can be a problem. It would be a good idea to make sure you are getting some Betaine HCL in your diet if you are on prednizone. That may help your stomach acid defeat incoming pathogens. Your stomach acid is your front line defense when your immune system is shut down.

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@ Shadow: I can't imagine having to deal with gallbladder issues and celiac. I have no idea what a HIDA scan is lol hafta look it up.

@JNBunnie: I tried a acidophilus but it gave me severe heartburn bo matter how much water I drank after taking it. If I can find a gluten and corn free probiotic, it would be great.

@GFinDC: I never heard of that. I tend to have low stomach acid in the mornings that causes nausea but I get heartburn if I take something like acidophilus so I need a happy medium.

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You are aware that both fluconazole and nystatin cotain corn.

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@ Shadow: I can't imagine having to deal with gallbladder issues and celiac. I have no idea what a HIDA scan is lol hafta look it up.

@JNBunnie: I tried a acidophilus but it gave me severe heartburn bo matter how much water I drank after taking it. If I can find a gluten and corn free probiotic, it would be great.

@GFinDC: I never heard of that. I tend to have low stomach acid in the mornings that causes nausea but I get heartburn if I take something like acidophilus so I need a happy medium.

Razzle, I take PB8, which is a combo probiotic, it comes in capsules, and the one I get has a blue

label, and the ingredients are the probiotic organisms, inulin from chicory root, cellulose, and gelatin.

I am not a corn expert so I do not know if it's corn safe, corn is not listed on the 'free from' list on the

bottle.

I can tell you that you would probably be better off taking a probiotic before food, before the biggest

meal of your day. That way it will mix with the food and pass through before it causes heartburn. In

my opinion the more the merrier, a probiotic with eight different strains will serve you better than just

plain acidophilus.

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@ ncdave: yup. it has citric acid in it. it is definitely causing swelling but it is hella expensive so im trying to just live with it; there is no way I cann afford some custom medicine :(

. I am not having the neurological symptoms to it thank God, no brain fog, just abd. swelling but what can ya do?

@ JNBunnie: I think I will call my doctor up and ask for her help. I definitely cannot take anymore corn b/c I am so swollen right now but i also recently got glutened so I am hoping lots of water and some of this will subside in a day or two. At least now I can prove that I react to all gluten and it is not just wheat. Some barley malt got me :unsure:. So I can tell the doc I was right about something else ;)

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If there"s anything else in your diet that contains corn you can remove till you finish the meds, maby that would help. I doubt it would be enough to compensate for the amount thats in the pills, but it may make things a little easyier. water, salt, meats? Other than that wear some lose fitting clothing, and look forward to the last pill being gone, so you can start to feel better again. Wishing you mild symptoms, an a speedy recovery.

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If there"s anything else in your diet that contains corn you can remove till you finish the meds, maby that would help. I doubt it would be enough to compensate for the amount thats in the pills, but it may make things a little easyier. water, salt, meats? Other than that wear some lose fitting clothing, and look forward to the last pill being gone, so you can start to feel better again. Wishing you mild symptoms, an a speedy recovery.

Thx I am using only kosher salt but I will definitely be checking up on whether I can eliminate the meat washes by going to local farmers. I am so excited to make it through the first few days of treatment. I am already feeling so much better. Die off is pretty brutal.

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How did your dr. test for yeast overgrowth? Was it your GP that did it? I need to find a new GP because getting my current one to give me anything besides antacids (which would be awful since I have LOW stomach acid...she doesn't believe me) and antidepressants (because clearly I need that to tackle my stress...has nothing to do with food). :angry:

I try to stay very low carb/low sugar anyway because I feel better when I do. But every time I've taken some type of antifungal, whether it be natural or Rx, nothing happens. I take probiotics everyday which definitely helps the digestive system, but I can't figure the rest out!! Luckily (knock on all wood), I haven't had a YI in awhile, but I think being off the bc pill is helping that. But I'm still having skin trouble, fatigue and brain fog. If I eat carbs (gluten-free of course), my skin gets bright red and burns a bit on either side of my nose. Then I get terrible seborrhea on my scalp and I'm dizzy for a day or so. Feels like classic Candida reaction, but each time I've tried the diet and the antifungals, nothing happens (i.e. I've never experienced die off). Would like to get a doctor's help with all of this instead of just trying to figure it out on my own, but can't find one that will listen to me.

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Keep looking! Do not give up. When I got this new doctor, I told her up front that I got tired of

misdiagnosis all my life and described my indisputable symptoms. I did my research. I told her why I did not feel like something else because I had recurrent infections down below and she was skeptical but finally believed me when she checked. Some doctors are different but most do not want to think we can figure things out on our own by doing research and understanding our own bodies. They want to think that a decade in school is the only way to know what they know. Besides that, a lot of doctors, IMO do not want you to know what is wrong because they want to keep making money off you. They would rather say you have irritable bowel than for you to know you just have to eat gluten free. Where is the money in that? I say do not act desperate. Act matter of fact and as if you can always get another doctor if she/he is not doing what you want. Act content no matter what because it makes you not look like a hypochondriac or depressed and effectively says, "It is my way or the highway, Some money or no money is entirely up to you."

As far as testing, you can get a blood test done or you can even send stool samples to enterolab, or similar labs. Some of us may not have a bowel infection but just do not tolerate any grains so you will have to just test and see.

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    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
    • Will my doctor test me? So many symptoms...
      Hi! I was hoping some of you might be able to tell me if my symptoms seem like good reason to be tested for celiac disease... I actually asked my doctor to test me (years ago) and she told me she would not test me because the test is expensive... However, I am now desperate to figure out how to manage my health issues and am willing to find a doctor that WILL test me if my symptoms seem to point to celiac...Here they are:
      I have been diagnosed with all of the following over the last 12 years (I am 22 years old, and have always been a healthy weight/slightly underweight, and quite active):
      Irritable Bowel Syndrome Fibromyalgia Anorexia (started when I was 10, I have been mostly recovered since I was 14) Depression Anxiety Panic Attacks Horrible mood swings (from suicidal to totally fine in a matter of minutes)
        Chronic constipation and bloating Acne   HOWEVER, no one in my family has been diagnosed with celiac....am I wrong to think I have it??
    • Weird Reaction
      Yes, I was surprised about the MSG in broccoli as well. I just had a quick look now as I couldn't remember where I had read it but some mushrooms have it to. A Google search will bring up a few things. I always just thought MSG was an artificial food enhancer!! Insecticides are still a big possibility though. Why do you not want to try organic? We buy organic when we can and fruits and veges that are in season are usually the best and cheapest.  Thank you for the link, Cristiana. Very helpful. I have an appointment with my Naturopath in a couple of weeks and going to have a blood test done before that. She is excellent. Very knowledgeable and loves her work. Until then I'm not taking any supplements. I generally eat pretty well anyway so we'll see what she says. In the past I have used B12 injections (aka Neo Cytamen) which I found much better and safer than taken orally and very cheap. The energy boost was very noticeable. I didn't know it helped with anxiety though. She has also had me on Magnesium, Probiotics and Vitamin D3 and I also make my own Liver Tonic (Milk Thistle, Dandelion Root Powder, L-Glutamine, Taurine and Choline Bitartrate) which I use from time to time for a quick detox. Too much of anything can be bad but I think iron can be not real good in large amounts. Deficiencies can be related to gut health and/or competing for absorbtion with something else you may be taking I found. I'm no expert though but just a few things I've picked up during research. My normal GP told me to just eat some more red meat but I want to speak to my Naturopath first before supplementing. Her knowledge on nutrition is a bit more up-to-date.  I was just sitting there at lunch today after feeling great all morning and had a "weird feeling" come over me. Just a not quite right feeling. Very hard to describe and nausea seems to have returned to. It's funny that as I get older any little thing I get I seem to think it's life threatening even though all the tests I get back say I'm in good health. I guess that's part of that dread and doom and gloom feeling I mentioned earlier. Wish that would go away.  
    • Gluten and panic attacks
      There are great gluten-free pizza crusts out there, as well as good dairy free cheese. I find the key is to add good toppings, e.g. meats, carmelized onions, other veggies, white anchovies. Life goes on. Congrats. Hope the good feelings keep up. 
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