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Psyllium Seed Husk
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I am newly diagnosed with celiac disease (Nov. 21) and, as quickly as possible, moving toward and adjusting to a gluten-free diet.

I certainly have many questions, but one that sticks out right now is if anyone knows a good source of gluten-free psyllium seed husks? I currently use Trader Joe's "Secrets Of The Psyllium" which is inexpensive, and devoid of flavorings, sugars, etc. While the container states "No wheat," it also states that it is processed on shared equipment (listing wheat and a few others). There is no gluten-free label on the container (and I am learning that mileage will vary with the "gluten-free" labels, and to do my research on all prepared foodstuffs that I buy).

Anyway, my guess is that this product is probably not advisable for use but... does anyone with celiac disease use this product successfully? Has anyone used it and experienced adverse effects? Does anyone know of a brand of 100% psyllium that is safe for those with celiac disease?

I am glad to have found this site, thanks,

Joe

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I've been using Yerba Prima psyllium husks powder, here are details on their site, but I got it in the natural foods section of a grocery store: http://www.yerba.com/storefront/item.asp?id=57

It doesn't specifically say it's gluten-free but I've been fine with it, afaik.

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Yerba Prima works fine for me. I haven't tried Trader Joe's brand.

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Thank you for the replies! There is a Vitamin Shoppe very near to one of our local Trader Joe's and, according to their Web site, they carry both the Yerba Prima and Organic India brands (along with some others). I will give them a visit on this weekend's grocery shopping trip.

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I recently took some psyllium husk in capsule form and I am thinking it caused a bad reaction for me. My head feels full and foggy for a couple day now. I am also having crawling feeling in my head and balance issues. I am having similar experiences to anytime that I would eat gluten. Certainly it is possible that I could be reacting to something different, but I had never tried this capsule before. I'm honestly very nervous about the idea of trying it again. Just wanted to give you my experience. Just for the record, I am not just sensitive to gluten, but also to other gluten grains like corn, rice, oatmeal, etc. So if you are sensitive to more than just the gluten in wheat, then I would express caution. Good luck. 

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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