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Psyllium Seed Husk
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6 posts in this topic

I am newly diagnosed with celiac disease (Nov. 21) and, as quickly as possible, moving toward and adjusting to a gluten-free diet.

I certainly have many questions, but one that sticks out right now is if anyone knows a good source of gluten-free psyllium seed husks? I currently use Trader Joe's "Secrets Of The Psyllium" which is inexpensive, and devoid of flavorings, sugars, etc. While the container states "No wheat," it also states that it is processed on shared equipment (listing wheat and a few others). There is no gluten-free label on the container (and I am learning that mileage will vary with the "gluten-free" labels, and to do my research on all prepared foodstuffs that I buy).

Anyway, my guess is that this product is probably not advisable for use but... does anyone with celiac disease use this product successfully? Has anyone used it and experienced adverse effects? Does anyone know of a brand of 100% psyllium that is safe for those with celiac disease?

I am glad to have found this site, thanks,

Joe

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I've been using Yerba Prima psyllium husks powder, here are details on their site, but I got it in the natural foods section of a grocery store: http://www.yerba.com/storefront/item.asp?id=57

It doesn't specifically say it's gluten-free but I've been fine with it, afaik.

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Yerba Prima works fine for me. I haven't tried Trader Joe's brand.

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Thank you for the replies! There is a Vitamin Shoppe very near to one of our local Trader Joe's and, according to their Web site, they carry both the Yerba Prima and Organic India brands (along with some others). I will give them a visit on this weekend's grocery shopping trip.

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I recently took some psyllium husk in capsule form and I am thinking it caused a bad reaction for me. My head feels full and foggy for a couple day now. I am also having crawling feeling in my head and balance issues. I am having similar experiences to anytime that I would eat gluten. Certainly it is possible that I could be reacting to something different, but I had never tried this capsule before. I'm honestly very nervous about the idea of trying it again. Just wanted to give you my experience. Just for the record, I am not just sensitive to gluten, but also to other gluten grains like corn, rice, oatmeal, etc. So if you are sensitive to more than just the gluten in wheat, then I would express caution. Good luck. 

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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