Hello I'm josey and I had a gastroscopy yesterday because a few months ago I had a rash on my chest and elbow and ankle so my doctor did a blood test and came back positive for celiac disease so I had the gastroscopy yesterday and the doctor said my small bowel looks abnormal so he said I probably have celiac disease, he said I can start the diet now , but I have no idea where to start ...
|
|
Celiac.com Sponsor: |
7 replies to this topic
#2
kareng
-
- Moderators
-
- 10,164 posts
Let them eat gluten-free cake!
Posted 27 November 2012 - 04:22 PM
Doctors are so helpful, aren't they?
Celiac is the only disease that a doctor says, " you have it & good luck with that". Can you imagine them saying that to a newly diagnosed diabetic or cancer patient?
Anyway, here is a good place to start:
http://www.celiac.co...ewbie-info-101/
Celiac is the only disease that a doctor says, " you have it & good luck with that". Can you imagine them saying that to a newly diagnosed diabetic or cancer patient?
Anyway, here is a good place to start:
http://www.celiac.co...ewbie-info-101/
Celiac.com - Celiac Disease Board Moderator
"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party" - Ron White
""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy
#3
guest134
-
- Advanced Members
-
- 188 posts
Advanced Community Member
Posted 27 November 2012 - 04:41 PM
If bedside manners meant the difference between having a job and not, 90 percent of doctors would be unemployed. I always find it funny how as a financial planner for a big bank I would lose my job in a second if I treated my customers the way doctors do their patients. If I rolled my eyes whenever a client was confused about some finance term and said "here is your investment portfolio, go find out what I invested for you by yourself." it doesn't make sense in any other industry, why do doctors get away with it?
Luckily celiac research is very easy and accessible, let me know if you have any specific questions.
Luckily celiac research is very easy and accessible, let me know if you have any specific questions.
#4
Adalaide
-
- Advanced Members
-
- 1,684 posts
Kipenzi
Posted 27 November 2012 - 05:32 PM
Aren't doctors awesome? I got the same treatment... you have celiac, good luck! Obnoxious. The link Karen shared is great. Ask any questions you have after you check it out, we're all here to help. And keep in mind that no matter how you feel, you aren't crazy and it is normal.
Gluten free January 2012.
Tyramine free June 2012 - slowly getting a few foods back at a time.... scratch that
Low Histamine April 2013 - I swear this better be the last time I have to restrict my diet because giving up chocolate is the final straw
Iodine free briefly fall 2012
I like nonsense, it wakes up the brain cells. Fantasy is a necessary ingredient in living. It's a way of looking at life through the wrong end of a telescope, which is what I do, and that enables you to laugh at life's realities. -- Theodor Geisel
#5
joseyheather22
-
- Members
-
- 2 posts
New Community Member
Posted 27 November 2012 - 05:38 PM
Thanks 
I have to go see him in 4-6 weeks
I have to go see him in 4-6 weeks
#6
GottaSki
-
- Moderators
-
- 3,045 posts
"Migratory flight complete."
Posted 27 November 2012 - 09:20 PM
Thanks
Welcome!
In 4-6 weeks you will likely know far more than your doctor about Celiac Disease.
Start with the Newbie 101 thread, then ask as many questions as you need. Transitioning to a gluten-free life is not easy, but it does become much easier with time.
Let us know how we can help
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#7
Celiac Mindwarp
-
- Moderators
-
- 916 posts
Advanced Community Member
Posted 28 November 2012 - 03:19 AM
Hiya, welcome
Come on in, ask lots of questions. Good simple foods work well for many people, meat fish veg fruit.
Come and shout if you need to as well
Good luck
Come on in, ask lots of questions. Good simple foods work well for many people, meat fish veg fruit.
Come and shout if you need to as well
Good luck
- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol
- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.
- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.
- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)
- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.
It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein
Celiac.com - Celiac Disease Board Moderator
#8
GFinDC
-
- Advanced Members
-
- 3,520 posts
A little farting never hurt anybody... :-).
Posted 28 November 2012 - 07:05 AM
Hi Josey,
Take two aspirin, read all the threads below, and call me in the morning.
Ok, you don't have to read all those, some are just for reference.
Some starting the gluten-free diet tips for the first 6 months:
Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.
Helpful threads:
FAQ Celiac com
http://www.celiac.co...celiac-disease/
Newbie Info 101
http://www.celiac.co...ewbie-info-101/
What's For Breakfast Today?
http://www.celiac.co...reakfast-today/
What Did You Have For Lunch Today?
http://www.celiac.co...or-lunch-today/
What Are You Cooking Tonight?
http://www.celiac.co...ooking-tonight/
Dessert thread
http://www.celiac.co...399#entry802399
Easy yummy bread in minutes
http://www.celiac.co...ead-in-minutes/
How bad is cheating?
http://www.celiac.co...t-periodically/
Short temper thread
http://www.celiac.co...per-depression/
Non-celiac wheat sensitivity article
http://www.celiac.co...ists/Page1.html
Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes
http://www.celiac.co...e-free-recipes/
Super Easy Meal Ideas Anyone?
http://www.celiac.co...l-ideas-anyone/
Take two aspirin, read all the threads below, and call me in the morning.
Ok, you don't have to read all those, some are just for reference.
Some starting the gluten-free diet tips for the first 6 months:
Get tested before starting the gluten-free diet.
Get your vitamin/mineral levels tested also.
Don't eat in restaurants
Eat only whole foods not processed foods.
Eat only food you cook yourself, think simple foods, not gourmet meals.
Take probiotics.
Take gluten-free vitamins.
Take digestive enzymes.
Avoid dairy.
Avoid sugars and starchy foods.
Avoid alcohol.
Helpful threads:
FAQ Celiac com
http://www.celiac.co...celiac-disease/
Newbie Info 101
http://www.celiac.co...ewbie-info-101/
What's For Breakfast Today?
http://www.celiac.co...reakfast-today/
What Did You Have For Lunch Today?
http://www.celiac.co...or-lunch-today/
What Are You Cooking Tonight?
http://www.celiac.co...ooking-tonight/
Dessert thread
http://www.celiac.co...399#entry802399
Easy yummy bread in minutes
http://www.celiac.co...ead-in-minutes/
How bad is cheating?
http://www.celiac.co...t-periodically/
Short temper thread
http://www.celiac.co...per-depression/
Non-celiac wheat sensitivity article
http://www.celiac.co...ists/Page1.html
Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes
http://www.celiac.co...e-free-recipes/
Super Easy Meal Ideas Anyone?
http://www.celiac.co...l-ideas-anyone/
Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users
