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I've Been Gluten Free For So Long, Yet I Still Get The Worst Stomach Aches


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#1 AlexandarZ

 
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Posted 27 November 2012 - 08:01 PM

Hello, i just signed up to this site, just found out about it, seems pretty helpful. I've got a little issue.. i was diagnosed with celiac last year around June and i used to get the worst stomach aches ever, no one could possibly imagine, i went on to a gluten free diet and started feeling better bit by bit. The doctor said i should feel completely better by around September and have no issues with stomach aches etc. Its been a year since this so called September actually a year and Two months. I cant find the problem i never eat out because i'm really paranoid about eating gluten but to this very day i found going to the toilet to be a very irregular gamble its really difficult to go out and enjoy myself because i do get these random stomach aches, that hurt so much. My stomach aches seem to get better then worse then slightly better then worse again,

Just wanted to know what you guys thought the problem is and why? Opinions, thanks.
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#2 shadowicewolf

 
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Posted 27 November 2012 - 09:16 PM

It can take some people years (yes years) to get better.

I'm thinking you might have another food intolerence with this.

Keep a food diery. Write down everything you eat, and if you see a pattern with the stomach aches then cut the food out for a while.

Others on this site rave about probiotics, have you tried them?
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#3 AlexandarZ

 
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Posted 27 November 2012 - 11:33 PM

It can take some people years (yes years) to get better.

I'm thinking you might have another food intolerence with this.

Keep a food diery. Write down everything you eat, and if you see a pattern with the stomach aches then cut the food out for a while.

Others on this site rave about probiotics, have you tried them?


What are probiotics? i just looked them up on wikipedia and it seems pretty complicated, mind to dumb it down?
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#4 tom

 
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Posted 28 November 2012 - 12:13 AM

It makes me think 'additional intolerance' too. For me, soy was doing that & I first had the notion through keeping a food/symptom diary.
The thing that *really* surprised me was that it turned out that the previous 3 or5 day soy-free trials just weren't long enough. It took ~2 wks soy-free before I really knew how great I could feel.

So many products w/ long ingred lists have some soy, ugh.
Enough about soy - if you have other intolerances, it could be anything. I'd say definitely start a food/symptom diary & remember that the reactions may not even be same day.
Good luck!


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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#5 bartfull

 
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Posted 28 November 2012 - 11:28 AM

Soy, dairy, and corn seem to give a lot of us problems. I would try ditching all three for a while and see if it helps. Then add back one at a time. Be aware, corn is in almost every single product that has more than one ingredient, and even in some things that have only ONE "ingredient". If something is PROCESSED with corn, they don't have to list it as an ingredient. For example, bagged salads at the grocery store are washed in a citric acid wash, and these days, almost all citric acid is derived from corn. Baby carrots are dusted with corn starch to keep them dry in the bag. A lot of fruits and veggies have a waxy coating to make them look more appealing in the grocery store, and that coating usually has corn in it.

Probiotics are the good gut bacteria that we all need. You can find them in capsules at the health food store. Get the kind that are refrigerated because they are more likely to have LIVE bacteria. Yougurt has probiotics, but most grocery store yogurt also has corn and lots of other things you probably shouldn't have right now. If you can find it at the health food store, Stonyfield Farms yogurt is WONDERFUL! It is 100% organic, contains six different strains of probiotics, and it's sweetened with organic sugar instead of corn syrup.

You can also eat sauerkraut if you like it. That has lots of probiotics too. :)
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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#6 dilettantesteph

 
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Posted 29 November 2012 - 05:53 AM

A food diary is what worked for me. Don't just write down the foods, write down what company they come from if they are processed or the source if they aren't. I found that I could tolerate certain items from one company and not another. Sometimes I could tolerate a food from one vendor at a farmer's market, but not another.

You also need to figure out the delay between eating the food and the reaction. It can take a few days. I try not to make more than one change per week.
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#7 javic

 
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Posted 17 December 2012 - 05:18 PM

How are the stomach aches going now?
Have you had your antibody levels tested again since diagnosis? Have they gone down?
I was reading something about refractory celiac disease - I believe this means that the symptoms will not go away even on a gfd. Very rare mind you. More likely to be additional intolerance. Have you worked it out yet?
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