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Gastro Problems With No Idea What To Do

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I discovered this forum through a search online. I have extreme gastro problems and it is driving me crazy. I have had allergies my whole life, mostly to outdoor things or pets. Then, at 16yrs old, I got diagnoised with mild asthma that my doctor said was in result of all my allergies. A few years ago, a blood test showed I had a pre-rheumatoid arthritis condition, but that kind of went away. Then, the burping started and the full stomach feeling after I ate a small amount. I am thin, but I was a lot thinner back then, so I had this thin body and big stomach puffed out. I had insurance back then so I went to doctor after doctor who gave me every acid relieving drug: Prilosec, Nexium, Acidfex and others but and nothing worked. Finally, I got an endoscopy and they said I have gastritis. That was a few yrs ago when no one really heard of Celiac Disease, so I didn't get tested for that or either I didn't know if they did or not. Now, I have no insurance and it seems everything I eat is a problem. And I was wondering if it can also be Celiac as well. Is there a way to test without a soctor's visit? I also have been reading the questions about brain fog and fatique elsewhere in the forums. I have all of that, and not being able to concentrate and being cold as well. I had been diagnosed with anemia yrs ago. So, what can I do? Should I try gluten-free for a few days? Weeks? Clueless on what to do next because I love food, especially desserts and pizza. I tried a gluten-free pizza and hated it. Please help. Thanks! :)


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Wow, you scarily fit the celiac description, you really need to be tested. Unfortunately it will cost you money to get the celiac blood panel, I assume you live in the States, I am not sure of the costs down there. If you can pay out of pocket, I would, a situation like this can be life changing and would be well worth the money.

Here are the tests you need:

Total serum IgA- Nothing to do with celiac, but if it is low all of your IgA antibody's will have false negative result.

Deamidated Gliadin IgA - In IgA sufficient people this is the most accurate test in your body's response to gluten

Deamidated Gliadin IgG - Another pretty specific test, particularly useful if you are IgA deficient.

Tissue Transglutaminase IgA- This is a test that looks at damage in your intestines, it can be false positive sometimes but unlikely in a case like yours

Endomysial IgA- This one is very specific for intestinal damage, 99 percent of the time it is because of celiac. There are no false positives for this test really, if it is positive your intestines are damaged.

You can't go on a gluten free diet before these tests or you run the risk of false negatives. If you can, scrounge up the money, get the blood tests, and then try going gluten free for a couple months to see. Also, you just aren't trying the right gluten free pizza, I actually prefer the taste of the gluten free pizza at my local pizza shop to the gluten containing one. Trust me when I say being gluten free is not a big deal and once you get the hang of it you will be creating foods that are just as delicious and you will forget you even have a restrictive diet.

Let me know if you have any other questions.


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    • We can't see the video carle.  The site is banned from celiac com for spamming. Not having seen it, I'd guess they are selling something?
    • Sorry Doit, Ok, I think I see what you are talking about.  The serum IgA test?  The serum IgA is to verify if your body does make IgA antibodies.  Not all of us make that particular antibody type.  you do make IgA antibodies though, and your reading is fairly high.  the way I understand it, the serum IgA is not specific to celiac disease.  It does indicate a level of antibody activity though.  So perhaps you are fighting an infection or something?  Or it is celiac and for some reason your blood levels of antibodies are not high enough to detect right now. The below info on serum IgA is from Quest Labs. ******************************************************************** Test Highlight IgA, Serum    Clinical Use Diagnose IgA deficiencies Determine etiology of recurrent infections Diagnose infection Diagnose inflammation Diagnose IgA monoclonal gammopathy Clinical Background IgA is the first line of defense for the majority of infections at mucosal surfaces and consists of 2 subclasses. IgA1 is the dominant subclass, accounting for 80% to 90% of total serum IgA and greater than half of the IgA in secretions such as milk, saliva, and tears. IgA2, on the other hand, is more concentrated in secretions than in blood. IgA2 is more resistant to proteolytic cleavage and may be more functionally active than IgA1. IgA deficiency is the most prevalent isotype deficiency, occurring in 1/400 to 1/700 individuals. Many patients with IgA deficiency are asymptomatic, while others may develop allergic disease, repeated sinopulmonary or gastroenterologic infections, and/or autoimmune disease. Individuals with complete absence of IgA (<5 mg/dL) may develop autoantibodies to IgA after blood or intravenous immunoglobulin infusions and may experience anaphylaxis on repeat exposure. Elevated serum IgA levels are associated with infection, inflammation, or IgA monoclonal gammopathy. Method In this nephelometric method, anti-human IgA binds to IgA in the patient sample, forming an insoluble complex. The amount of light scattered by this insoluble complex is proportional to the concentration of IgA present in the sample.   ********************************************************************
    • Thanks for yoUr response GFinDC. For what it's worth,  I've eaten gluten daily for at a minimum of 10 weeks now. I have to taste at work, and initiallyni noticed no ill effect until after I'd been consuming it regularly over a period of time. Shortly before I initially went gluten free, I was suffering from unexplainable stomach cramping and issues that did go away when I quit gluten. It didn't come back until just the past couple of weeks though and now I'm remembering how painful, uncomfortable, and smelly the whole situation was 😂    Can you explain what the reflex test (the one I tested above range in) is? 
    • Hi, just looking for some advice as I'm still learning. I'm looking to go to Kenya next week and I'm quite stressed about the journey, I'm not too bothered about while I'm there as I should mostly be able to eat fresh fruit, vegetables and meat. What's the deal with chips (fries) in fast food places and restaurants, should they always be avoided? And how about rice? I've seen packets before that say may contain gluten. Thanks
    • Update! Had my appointment today and the doctor said she was going to order a full celiac panel without me even having to request it! I was overall impressed with how well my doctor handled this and listened to my concerns rather than writing them off like some people's doctors have.
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