Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gastro Problems With No Idea What To Do
0

2 posts in this topic

Hi,

I discovered this forum through a search online. I have extreme gastro problems and it is driving me crazy. I have had allergies my whole life, mostly to outdoor things or pets. Then, at 16yrs old, I got diagnoised with mild asthma that my doctor said was in result of all my allergies. A few years ago, a blood test showed I had a pre-rheumatoid arthritis condition, but that kind of went away. Then, the burping started and the full stomach feeling after I ate a small amount. I am thin, but I was a lot thinner back then, so I had this thin body and big stomach puffed out. I had insurance back then so I went to doctor after doctor who gave me every acid relieving drug: Prilosec, Nexium, Acidfex and others but and nothing worked. Finally, I got an endoscopy and they said I have gastritis. That was a few yrs ago when no one really heard of Celiac Disease, so I didn't get tested for that or either I didn't know if they did or not. Now, I have no insurance and it seems everything I eat is a problem. And I was wondering if it can also be Celiac as well. Is there a way to test without a soctor's visit? I also have been reading the questions about brain fog and fatique elsewhere in the forums. I have all of that, and not being able to concentrate and being cold as well. I had been diagnosed with anemia yrs ago. So, what can I do? Should I try gluten-free for a few days? Weeks? Clueless on what to do next because I love food, especially desserts and pizza. I tried a gluten-free pizza and hated it. Please help. Thanks! :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Wow, you scarily fit the celiac description, you really need to be tested. Unfortunately it will cost you money to get the celiac blood panel, I assume you live in the States, I am not sure of the costs down there. If you can pay out of pocket, I would, a situation like this can be life changing and would be well worth the money.

Here are the tests you need:

Total serum IgA- Nothing to do with celiac, but if it is low all of your IgA antibody's will have false negative result.

Deamidated Gliadin IgA - In IgA sufficient people this is the most accurate test in your body's response to gluten

Deamidated Gliadin IgG - Another pretty specific test, particularly useful if you are IgA deficient.

Tissue Transglutaminase IgA- This is a test that looks at damage in your intestines, it can be false positive sometimes but unlikely in a case like yours

Endomysial IgA- This one is very specific for intestinal damage, 99 percent of the time it is because of celiac. There are no false positives for this test really, if it is positive your intestines are damaged.

You can't go on a gluten free diet before these tests or you run the risk of false negatives. If you can, scrounge up the money, get the blood tests, and then try going gluten free for a couple months to see. Also, you just aren't trying the right gluten free pizza, I actually prefer the taste of the gluten free pizza at my local pizza shop to the gluten containing one. Trust me when I say being gluten free is not a big deal and once you get the hang of it you will be creating foods that are just as delicious and you will forget you even have a restrictive diet.

Let me know if you have any other questions.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,344
    • Total Posts
      920,487
  • Topics

  • Posts

    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
    • I tried the iodine test but couldn't leave it on very long because it itched too much. I left it on maybe 30 minutes lol. Did anyone try it and have the same response??
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined