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Gastro Problems With No Idea What To Do
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Hi,

I discovered this forum through a search online. I have extreme gastro problems and it is driving me crazy. I have had allergies my whole life, mostly to outdoor things or pets. Then, at 16yrs old, I got diagnoised with mild asthma that my doctor said was in result of all my allergies. A few years ago, a blood test showed I had a pre-rheumatoid arthritis condition, but that kind of went away. Then, the burping started and the full stomach feeling after I ate a small amount. I am thin, but I was a lot thinner back then, so I had this thin body and big stomach puffed out. I had insurance back then so I went to doctor after doctor who gave me every acid relieving drug: Prilosec, Nexium, Acidfex and others but and nothing worked. Finally, I got an endoscopy and they said I have gastritis. That was a few yrs ago when no one really heard of Celiac Disease, so I didn't get tested for that or either I didn't know if they did or not. Now, I have no insurance and it seems everything I eat is a problem. And I was wondering if it can also be Celiac as well. Is there a way to test without a soctor's visit? I also have been reading the questions about brain fog and fatique elsewhere in the forums. I have all of that, and not being able to concentrate and being cold as well. I had been diagnosed with anemia yrs ago. So, what can I do? Should I try gluten-free for a few days? Weeks? Clueless on what to do next because I love food, especially desserts and pizza. I tried a gluten-free pizza and hated it. Please help. Thanks! :)

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Wow, you scarily fit the celiac description, you really need to be tested. Unfortunately it will cost you money to get the celiac blood panel, I assume you live in the States, I am not sure of the costs down there. If you can pay out of pocket, I would, a situation like this can be life changing and would be well worth the money.

Here are the tests you need:

Total serum IgA- Nothing to do with celiac, but if it is low all of your IgA antibody's will have false negative result.

Deamidated Gliadin IgA - In IgA sufficient people this is the most accurate test in your body's response to gluten

Deamidated Gliadin IgG - Another pretty specific test, particularly useful if you are IgA deficient.

Tissue Transglutaminase IgA- This is a test that looks at damage in your intestines, it can be false positive sometimes but unlikely in a case like yours

Endomysial IgA- This one is very specific for intestinal damage, 99 percent of the time it is because of celiac. There are no false positives for this test really, if it is positive your intestines are damaged.

You can't go on a gluten free diet before these tests or you run the risk of false negatives. If you can, scrounge up the money, get the blood tests, and then try going gluten free for a couple months to see. Also, you just aren't trying the right gluten free pizza, I actually prefer the taste of the gluten free pizza at my local pizza shop to the gluten containing one. Trust me when I say being gluten free is not a big deal and once you get the hang of it you will be creating foods that are just as delicious and you will forget you even have a restrictive diet.

Let me know if you have any other questions.

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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