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Starting A Gluten-Free Diet After 4 Years...

advice help

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#1 RaeSaldivar

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Posted 28 November 2012 - 01:46 PM

Let me start off by saying I am a 22 year old undergrad student that is at her wits end. I never had any type of intolerances growing up, not did i have food allergies or sensitivities. In 2008, I experienced a sever case of food poisoning from meat and have been on this roller coaster ever since.
The first year and a half after that occurrence I lived off of fruits, veggies, tea and oatmeal. The pain I felt was constant and included both constipation and diarrhea. It was as if my body didn't know what to do with the food I ate. I started working out to build muscle mass since I had lost so much weight and got used to not going out with friends since I couldn't eat anything. I've had a colonoscopy, endoscopy, and a biopsy of my intestines. Normal results. I've tried every OTC medicine for gas, heartburn, indigestion, ect. and have been on a few prescribed such as dicyclomine
Eventually I began to feel better and the pain and episodes got farther apart. Well, that leads me to where I am today. The episodes of abdominal cramps and diarrhea have gotten closer together and for the past 3 weeks I've been scared out of my mind because I don't know what else to do. symptoms are as followed:
  • gas
  • bloating
  • constipation
  • diarrhea
  • lower abdominal cramps
  • nausea
  • chest pain
  • fatigue
  • headaches
  • anxiety (idk if this is related)
My boyfriend's bio professor suggested I try a gluten-free diet to see if there are any changes. He suffers from celiac himself and said if I do turn out to have a gluten allergy but let it go untreated I run the risk of facing long term affects from possible damage.
ooOO and i don't have insurance, and won't anytime soon. I'm gonna try this thing for a month and see how I feel. I'm relying on the web to educate me about what i should avoid eating because I have no experience in this. Any advice or suggestions are greatly appreciated. it's very frustrating and depressing at times to feel like my life is so limited. I don't care about weight or calories, all I want to do is enjoy food like everyone else without considering the consequences and pain i'll be in later.
I'm open to anyone who wants to reply. I suppose I just want to feel like I'm not alone.
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#2 bartfull

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Posted 28 November 2012 - 02:44 PM

Celiac is often triggered by a physical or emotional trauma. I'd say your food poisoning episode definitely qualifies! Your symptoms sound like they could well be celiac. Yes, even the anxiety.

The good news is you have come to the right place. Start by reading the "Newbie 101" thread. It'll help you find all of the places gluten hides so you can avoid cross-contamination. Expect to go through gluten withdrawal, which will give you headaches, constant hunger, and emotional upset. It lasted about three weeks for me. Then I started really feeling better.

But be aware that this is a rollercoaster ride. You will feel better, then you will feel worse. It takes a long time to heal and while we are healing, all sorts of non-gluten foods can make us sick. Don't give up though! Eventually the good days will outnumber the bad.

You may also discover additional intolerances. I had to give up soy and corn and most fruits and vegetables. I am slowly adding some of them back now. It was a year before I discovered that I can now tolerate corn starch, and believe it or not, that has made my life and my diet SO much easier.

I think the best way to start is with simple whole foods. Meat, veggies, and fruit. Fresh is better. Organic is best. (I reacted to non-organic foods at first. Pesticides and artificial fertilizers.) Rice is good. Brown rice is better. Potatoes are good unless you have a problem with nightshades (potatoes, tomatoes, peppers and eggplant). Sweet potatoes are really good because they are full of nutrition.

You should take a good probiotic too, and some folks swear by digestive enzymes.

It sounds overwhelming, and it is at first. I think every one of us here has had at least one meltdown at the grocery store. But it gets easier over time and eventually it becomes so normal you don't even think about it. The only time I think about it is when I get asked to eat at a restaurant. I mostly DON'T eat out actually, but I don't mind eating before I go and joining my friends for a beverage while they eat.

You will probably gewt lots of questions from your friends at first, but just tell them you have been diagnosed with celiac disease. That is not a lie - you are SELF-diagnosed.

I guess I'm getting ahead of myself a little bit - you are trying a gluten-free diet to see if it helps. If it DOES, THEN you can say you have been diagnosed.

ALWAYS have some gluten-free food in your purse. Some fruit, some gluten-free crackers, Lara bars, something. That way you will never find yourself hungry with no place to get safe food.

Now, read as much as you can here. Check out the "Leaky gut and other intolerances" section. Check out the "Pre-diagnosis and testing" section. Definitely the "Coping with" section. And all of the what's for dinner and what's for breakfast threads.

And then ask lots of questions. We don't mind if the questions have been asked here before. And remember, there is no such thing as a stupid question. We love to help. :)
  • 1

gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#3 Lisa

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Posted 28 November 2012 - 03:45 PM

Welcome Rae!

Many here are self diagnosed and feel quite comfortable with that. If you choose to forgo testing, start simple. Meats, seafood, rice, veggies, potatoes and fresh fruit. No need for processed foods at the moment, or keep them to a minimum.

I would be as strict as possible for over a month or so. If you have a possitive dietary response, you can conclude you have Celiac Disease or some level of a gluten sensitivity. Both are rx'd by a gluten free diet. Some find relief immediately, others take longer. I would concentrate on removing gluten for now. And if you don't feel better, you may look into other foods as a problem. But, do take one step at a time.

As a college student, there is no need to deprive youself...there are several adult beverages available :rolleyes:

Take a walk around here. It's a great place for information and support. :) Once you get use to what you can eat, you will find that your sacrifices are only small ones. I do not feel deprived.
  • 0
Lisa

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"Not all who wander are lost" - JRR Tolkien

#4 shadowicewolf

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Posted 28 November 2012 - 05:59 PM

You just discribed me before i went gluten free. Mine started badly after i had a nasty case of the flu (missed a full week of college classes, no fun), an allergic reaction a week later, and finally my gallbladder starting to go on me. I think its the combo of these three things that Celiac decided to rear its little head. Mind you, before this i had IBS for years. I always had to know where the bathroom was and i almost always had to take peptobismol before i went out. When it did hit me, it was massive cramping, sweats, and "D" really bad. After that period of sickness, I was having "D" daily as well as vomiting several times a week. The cramping became normal and it got to the point where walking and such was a constant state of pain. My axiety shot up and i'd have panic attacks and hyperventialation. I have GERD as well and during that time it was out of control.

It was also during this time when i loaded down fully on gluteny things because i was afraid to eat much of anything else (my diet, i kid not, was lunch meat, whatever plain gluteny thing that was available, plain salad mix, some sort of canned fruit). I lost about 40lbs the first month of this mess. I'd go and eat something, and then it was not uncommon for it to come back up.

I constently went to the doctor ("its all in your head!" "Deal with it like an adult") and they more often than not didn't believe me. Finally i got to see a nurse practitioner who put me through the paces with a full body exam (something i hadn't had prior to all this mess). She decided to test me for an ulcer, to see if my appindix was working correctly, and the long shot....celiac disease. Can you guess which one came back positive? I'm not a normal case, i suppose, only my IGA TTG came back positive along with the genetic testing, the rest of it negative. But as far as i'm concerned, I have it.

Do you live on campus of your university? If so, it will make things difficult for ya as the eateries are massive places of crosscontamination.

We all come in different shapes and sizes, as such not everyone on this board has the same test results or symptoms. If it makes you feel better, go for it. Do be careful though, your boyfriend will have to brush his teeth before he sees ya :) (due to crosscontamination issues).
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#5 rosetapper23

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Posted 28 November 2012 - 09:18 PM

While you're healing, try to avoid soy and oats--many people with celiac can't tolerate them. I'd like to echo all of the advice you've already been given.
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#6 RaeSaldivar

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Posted 29 November 2012 - 01:06 PM

Celiac is often triggered by a physical or emotional trauma. I'd say your food poisoning episode definitely qualifies! Your symptoms sound like they could well be celiac. Yes, even the anxiety.

The good news is you have come to the right place. Start by reading the "Newbie 101" thread. It'll help you find all of the places gluten hides so you can avoid cross-contamination. Expect to go through gluten withdrawal, which will give you headaches, constant hunger, and emotional upset. It lasted about three weeks for me. Then I started really feeling better.

But be aware that this is a rollercoaster ride. You will feel better, then you will feel worse. It takes a long time to heal and while we are healing, all sorts of non-gluten foods can make us sick. Don't give up though! Eventually the good days will outnumber the bad.

You may also discover additional intolerances. I had to give up soy and corn and most fruits and vegetables. I am slowly adding some of them back now. It was a year before I discovered that I can now tolerate corn starch, and believe it or not, that has made my life and my diet SO much easier.

I think the best way to start is with simple whole foods. Meat, veggies, and fruit. Fresh is better. Organic is best. (I reacted to non-organic foods at first. Pesticides and artificial fertilizers.) Rice is good. Brown rice is better. Potatoes are good unless you have a problem with nightshades (potatoes, tomatoes, peppers and eggplant). Sweet potatoes are really good because they are full of nutrition.

You should take a good probiotic too, and some folks swear by digestive enzymes.

It sounds overwhelming, and it is at first. I think every one of us here has had at least one meltdown at the grocery store. But it gets easier over time and eventually it becomes so normal you don't even think about it. The only time I think about it is when I get asked to eat at a restaurant. I mostly DON'T eat out actually, but I don't mind eating before I go and joining my friends for a beverage while they eat.

You will probably gewt lots of questions from your friends at first, but just tell them you have been diagnosed with celiac disease. That is not a lie - you are SELF-diagnosed.

I guess I'm getting ahead of myself a little bit - you are trying a gluten-free diet to see if it helps. If it DOES, THEN you can say you have been diagnosed.

ALWAYS have some gluten-free food in your purse. Some fruit, some gluten-free crackers, Lara bars, something. That way you will never find yourself hungry with no place to get safe food.

Now, read as much as you can here. Check out the "Leaky gut and other intolerances" section. Check out the "Pre-diagnosis and testing" section. Definitely the "Coping with" section. And all of the what's for dinner and what's for breakfast threads.

And then ask lots of questions. We don't mind if the questions have been asked here before. And remember, there is no such thing as a stupid question. We love to help. :)

I definitely feel welcomed :) I thought about adding a probiotic as well. I did that way back when this first started and they helped. It's nice to know there are others who have been through similar issues. I think I can spend all day reading all the info these forums have.
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"Beautiful things happen when you distance yourself from negativity."


#7 RaeSaldivar

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Posted 29 November 2012 - 01:13 PM

You just discribed me before i went gluten free. Mine started badly after i had a nasty case of the flu (missed a full week of college classes, no fun), an allergic reaction a week later, and finally my gallbladder starting to go on me. I think its the combo of these three things that Celiac decided to rear its little head. Mind you, before this i had IBS for years. I always had to know where the bathroom was and i almost always had to take peptobismol before i went out. When it did hit me, it was massive cramping, sweats, and "D" really bad. After that period of sickness, I was having "D" daily as well as vomiting several times a week. The cramping became normal and it got to the point where walking and such was a constant state of pain. My axiety shot up and i'd have panic attacks and hyperventialation. I have GERD as well and during that time it was out of control.

It was also during this time when i loaded down fully on gluteny things because i was afraid to eat much of anything else (my diet, i kid not, was lunch meat, whatever plain gluteny thing that was available, plain salad mix, some sort of canned fruit). I lost about 40lbs the first month of this mess. I'd go and eat something, and then it was not uncommon for it to come back up.

I constently went to the doctor ("its all in your head!" "Deal with it like an adult") and they more often than not didn't believe me. Finally i got to see a nurse practitioner who put me through the paces with a full body exam (something i hadn't had prior to all this mess). She decided to test me for an ulcer, to see if my appindix was working correctly, and the long shot....celiac disease. Can you guess which one came back positive? I'm not a normal case, i suppose, only my IGA TTG came back positive along with the genetic testing, the rest of it negative. But as far as i'm concerned, I have it.

Do you live on campus of your university? If so, it will make things difficult for ya as the eateries are massive places of crosscontamination.

We all come in different shapes and sizes, as such not everyone on this board has the same test results or symptoms. If it makes you feel better, go for it. Do be careful though, your boyfriend will have to brush his teeth before he sees ya :) (due to crosscontamination issues).

Yes, I was diagnosed with IBS after I had the colonoscopy. I wanted to cry when the physician told me I was completely fine. This is the exact reason I haven't focused too much on getting insurance, I saw 2 specialists and recieved no answers. I was tired of feeling like no one took me seriously. I actually had a Dr. that told me I probably just had bad gas and wrote my a prescription for the children's dose of an acid reducer. A bubblegum flavored tablet that disolved in my mouth.
Anywho, I use to keep a Pepto bottle by my pillow at night although it didn't do much to calm my symptoms. I did not even think to consider my boyfriend and cross contamination! OoOo no , lol.
  • 0

"Beautiful things happen when you distance yourself from negativity."


#8 RaeSaldivar

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Posted 29 November 2012 - 01:15 PM

While you're healing, try to avoid soy and oats--many people with celiac can't tolerate them. I'd like to echo all of the advice you've already been given.

Thanks for the tip, I regularly order soy at Starbucks to add a rich flavor.
  • 0

"Beautiful things happen when you distance yourself from negativity."


#9 RaeSaldivar

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Posted 29 November 2012 - 01:16 PM

Welcome Rae!

Many here are self diagnosed and feel quite comfortable with that. If you choose to forgo testing, start simple. Meats, seafood, rice, veggies, potatoes and fresh fruit. No need for processed foods at the moment, or keep them to a minimum.

I would be as strict as possible for over a month or so. If you have a possitive dietary response, you can conclude you have Celiac Disease or some level of a gluten sensitivity. Both are rx'd by a gluten free diet. Some find relief immediately, others take longer. I would concentrate on removing gluten for now. And if you don't feel better, you may look into other foods as a problem. But, do take one step at a time.

As a college student, there is no need to deprive youself...there are several adult beverages available :rolleyes:

Take a walk around here. It's a great place for information and support. :) Once you get use to what you can eat, you will find that your sacrifices are only small ones. I do not feel deprived.

Yes, adult beverages were a concern of mine :)
  • 0

"Beautiful things happen when you distance yourself from negativity."


#10 mamaw

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Posted 29 November 2012 - 06:03 PM

welcome to the group! I'm on my way out the door soon but just wanted to add -- remember to watch for hidden gluten in malt products, soy sauce, beer. And most of all become a label reader.....& many of us become intolerant of other things/foods as well.....I try to avoid all of the eight major allergrens........
The bad news it takes time to learn all there is to know about the gluten free lifestyle, mishaps will happen.... Good news is we now have great gluten-free choices so no need now to feel deprived of your favs...
You will find a wealth of info here......
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#11 Lisa

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Posted 29 November 2012 - 06:19 PM

http://www.celiac.co...ages/Page1.html

Some suggestions that are safe. Wine is a safe option. But watch out for your tolerance, it will change. Go slow. ;)
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Lisa

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"Not all who wander are lost" - JRR Tolkien

#12 RaeSaldivar

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Posted 01 December 2012 - 08:22 PM

http://www.celiac.co...ages/Page1.html

Some suggestions that are safe. Wine is a safe option. But watch out for your tolerance, it will change. Go slow. ;)

Tolerance can change? Thats interesting, I wonder if it will. I haven't drank any wine or liquor since starting my gfd. I drink moderately but have always seemed to have an unusually high tolerance. Could that possibly have anything to do with this? I suppose I'll find out

welcome to the group! I'm on my way out the door soon but just wanted to add -- remember to watch for hidden gluten in malt products, soy sauce, beer. And most of all become a label reader.....& many of us become intolerant of other things/foods as well.....I try to avoid all of the eight major allergrens........
The bad news it takes time to learn all there is to know about the gluten free lifestyle, mishaps will happen.... Good news is we now have great gluten-free choices so no need now to feel deprived of your favs...
You will find a wealth of info here......

I was craving a choco malt earlier too! I checked online first and was disappointed to learn I couldn't have one. boo :/

http://www.celiac.co...ages/Page1.html

Some suggestions that are safe. Wine is a safe option. But watch out for your tolerance, it will change. Go slow. ;)

Tolerance can change? How interesting. I've always had an unusually high tolerance for being a small woman. I wonder if that has anything to do with this. I suppose I'll find out.
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