Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Starting A Gluten-Free Diet After 4 Years...
0

12 posts in this topic

Let me start off by saying I am a 22 year old undergrad student that is at her wits end. I never had any type of intolerances growing up, not did i have food allergies or sensitivities. In 2008, I experienced a sever case of food poisoning from meat and have been on this roller coaster ever since.

The first year and a half after that occurrence I lived off of fruits, veggies, tea and oatmeal. The pain I felt was constant and included both constipation and diarrhea. It was as if my body didn't know what to do with the food I ate. I started working out to build muscle mass since I had lost so much weight and got used to not going out with friends since I couldn't eat anything. I've had a colonoscopy, endoscopy, and a biopsy of my intestines. Normal results. I've tried every OTC medicine for gas, heartburn, indigestion, ect. and have been on a few prescribed such as dicyclomine

Eventually I began to feel better and the pain and episodes got farther apart. Well, that leads me to where I am today. The episodes of abdominal cramps and diarrhea have gotten closer together and for the past 3 weeks I've been scared out of my mind because I don't know what else to do. symptoms are as followed:

  • gas
  • bloating
  • constipation
  • diarrhea
  • lower abdominal cramps
  • nausea
  • chest pain
  • fatigue
  • headaches
  • anxiety (idk if this is related)

My boyfriend's bio professor suggested I try a gluten-free diet to see if there are any changes. He suffers from celiac himself and said if I do turn out to have a gluten allergy but let it go untreated I run the risk of facing long term affects from possible damage.

ooOO and i don't have insurance, and won't anytime soon. I'm gonna try this thing for a month and see how I feel. I'm relying on the web to educate me about what i should avoid eating because I have no experience in this. Any advice or suggestions are greatly appreciated. it's very frustrating and depressing at times to feel like my life is so limited. I don't care about weight or calories, all I want to do is enjoy food like everyone else without considering the consequences and pain i'll be in later.

I'm open to anyone who wants to reply. I suppose I just want to feel like I'm not alone.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Celiac is often triggered by a physical or emotional trauma. I'd say your food poisoning episode definitely qualifies! Your symptoms sound like they could well be celiac. Yes, even the anxiety.

The good news is you have come to the right place. Start by reading the "Newbie 101" thread. It'll help you find all of the places gluten hides so you can avoid cross-contamination. Expect to go through gluten withdrawal, which will give you headaches, constant hunger, and emotional upset. It lasted about three weeks for me. Then I started really feeling better.

But be aware that this is a rollercoaster ride. You will feel better, then you will feel worse. It takes a long time to heal and while we are healing, all sorts of non-gluten foods can make us sick. Don't give up though! Eventually the good days will outnumber the bad.

You may also discover additional intolerances. I had to give up soy and corn and most fruits and vegetables. I am slowly adding some of them back now. It was a year before I discovered that I can now tolerate corn starch, and believe it or not, that has made my life and my diet SO much easier.

I think the best way to start is with simple whole foods. Meat, veggies, and fruit. Fresh is better. Organic is best. (I reacted to non-organic foods at first. Pesticides and artificial fertilizers.) Rice is good. Brown rice is better. Potatoes are good unless you have a problem with nightshades (potatoes, tomatoes, peppers and eggplant). Sweet potatoes are really good because they are full of nutrition.

You should take a good probiotic too, and some folks swear by digestive enzymes.

It sounds overwhelming, and it is at first. I think every one of us here has had at least one meltdown at the grocery store. But it gets easier over time and eventually it becomes so normal you don't even think about it. The only time I think about it is when I get asked to eat at a restaurant. I mostly DON'T eat out actually, but I don't mind eating before I go and joining my friends for a beverage while they eat.

You will probably gewt lots of questions from your friends at first, but just tell them you have been diagnosed with celiac disease. That is not a lie - you are SELF-diagnosed.

I guess I'm getting ahead of myself a little bit - you are trying a gluten-free diet to see if it helps. If it DOES, THEN you can say you have been diagnosed.

ALWAYS have some gluten-free food in your purse. Some fruit, some gluten-free crackers, Lara bars, something. That way you will never find yourself hungry with no place to get safe food.

Now, read as much as you can here. Check out the "Leaky gut and other intolerances" section. Check out the "Pre-diagnosis and testing" section. Definitely the "Coping with" section. And all of the what's for dinner and what's for breakfast threads.

And then ask lots of questions. We don't mind if the questions have been asked here before. And remember, there is no such thing as a stupid question. We love to help. :)

1

Share this post


Link to post
Share on other sites

Welcome Rae!

Many here are self diagnosed and feel quite comfortable with that. If you choose to forgo testing, start simple. Meats, seafood, rice, veggies, potatoes and fresh fruit. No need for processed foods at the moment, or keep them to a minimum.

I would be as strict as possible for over a month or so. If you have a possitive dietary response, you can conclude you have Celiac Disease or some level of a gluten sensitivity. Both are rx'd by a gluten free diet. Some find relief immediately, others take longer. I would concentrate on removing gluten for now. And if you don't feel better, you may look into other foods as a problem. But, do take one step at a time.

As a college student, there is no need to deprive youself...there are several adult beverages available :rolleyes:

Take a walk around here. It's a great place for information and support. :) Once you get use to what you can eat, you will find that your sacrifices are only small ones. I do not feel deprived.

0

Share this post


Link to post
Share on other sites

You just discribed me before i went gluten free. Mine started badly after i had a nasty case of the flu (missed a full week of college classes, no fun), an allergic reaction a week later, and finally my gallbladder starting to go on me. I think its the combo of these three things that Celiac decided to rear its little head. Mind you, before this i had IBS for years. I always had to know where the bathroom was and i almost always had to take peptobismol before i went out. When it did hit me, it was massive cramping, sweats, and "D" really bad. After that period of sickness, I was having "D" daily as well as vomiting several times a week. The cramping became normal and it got to the point where walking and such was a constant state of pain. My axiety shot up and i'd have panic attacks and hyperventialation. I have GERD as well and during that time it was out of control.

It was also during this time when i loaded down fully on gluteny things because i was afraid to eat much of anything else (my diet, i kid not, was lunch meat, whatever plain gluteny thing that was available, plain salad mix, some sort of canned fruit). I lost about 40lbs the first month of this mess. I'd go and eat something, and then it was not uncommon for it to come back up.

I constently went to the doctor ("its all in your head!" "Deal with it like an adult") and they more often than not didn't believe me. Finally i got to see a nurse practitioner who put me through the paces with a full body exam (something i hadn't had prior to all this mess). She decided to test me for an ulcer, to see if my appindix was working correctly, and the long shot....celiac disease. Can you guess which one came back positive? I'm not a normal case, i suppose, only my IGA TTG came back positive along with the genetic testing, the rest of it negative. But as far as i'm concerned, I have it.

Do you live on campus of your university? If so, it will make things difficult for ya as the eateries are massive places of crosscontamination.

We all come in different shapes and sizes, as such not everyone on this board has the same test results or symptoms. If it makes you feel better, go for it. Do be careful though, your boyfriend will have to brush his teeth before he sees ya :) (due to crosscontamination issues).

0

Share this post


Link to post
Share on other sites

While you're healing, try to avoid soy and oats--many people with celiac can't tolerate them. I'd like to echo all of the advice you've already been given.

0

Share this post


Link to post
Share on other sites




Celiac is often triggered by a physical or emotional trauma. I'd say your food poisoning episode definitely qualifies! Your symptoms sound like they could well be celiac. Yes, even the anxiety.

The good news is you have come to the right place. Start by reading the "Newbie 101" thread. It'll help you find all of the places gluten hides so you can avoid cross-contamination. Expect to go through gluten withdrawal, which will give you headaches, constant hunger, and emotional upset. It lasted about three weeks for me. Then I started really feeling better.

But be aware that this is a rollercoaster ride. You will feel better, then you will feel worse. It takes a long time to heal and while we are healing, all sorts of non-gluten foods can make us sick. Don't give up though! Eventually the good days will outnumber the bad.

You may also discover additional intolerances. I had to give up soy and corn and most fruits and vegetables. I am slowly adding some of them back now. It was a year before I discovered that I can now tolerate corn starch, and believe it or not, that has made my life and my diet SO much easier.

I think the best way to start is with simple whole foods. Meat, veggies, and fruit. Fresh is better. Organic is best. (I reacted to non-organic foods at first. Pesticides and artificial fertilizers.) Rice is good. Brown rice is better. Potatoes are good unless you have a problem with nightshades (potatoes, tomatoes, peppers and eggplant). Sweet potatoes are really good because they are full of nutrition.

You should take a good probiotic too, and some folks swear by digestive enzymes.

It sounds overwhelming, and it is at first. I think every one of us here has had at least one meltdown at the grocery store. But it gets easier over time and eventually it becomes so normal you don't even think about it. The only time I think about it is when I get asked to eat at a restaurant. I mostly DON'T eat out actually, but I don't mind eating before I go and joining my friends for a beverage while they eat.

You will probably gewt lots of questions from your friends at first, but just tell them you have been diagnosed with celiac disease. That is not a lie - you are SELF-diagnosed.

I guess I'm getting ahead of myself a little bit - you are trying a gluten-free diet to see if it helps. If it DOES, THEN you can say you have been diagnosed.

ALWAYS have some gluten-free food in your purse. Some fruit, some gluten-free crackers, Lara bars, something. That way you will never find yourself hungry with no place to get safe food.

Now, read as much as you can here. Check out the "Leaky gut and other intolerances" section. Check out the "Pre-diagnosis and testing" section. Definitely the "Coping with" section. And all of the what's for dinner and what's for breakfast threads.

And then ask lots of questions. We don't mind if the questions have been asked here before. And remember, there is no such thing as a stupid question. We love to help. :)

I definitely feel welcomed :) I thought about adding a probiotic as well. I did that way back when this first started and they helped. It's nice to know there are others who have been through similar issues. I think I can spend all day reading all the info these forums have.

0

Share this post


Link to post
Share on other sites

You just discribed me before i went gluten free. Mine started badly after i had a nasty case of the flu (missed a full week of college classes, no fun), an allergic reaction a week later, and finally my gallbladder starting to go on me. I think its the combo of these three things that Celiac decided to rear its little head. Mind you, before this i had IBS for years. I always had to know where the bathroom was and i almost always had to take peptobismol before i went out. When it did hit me, it was massive cramping, sweats, and "D" really bad. After that period of sickness, I was having "D" daily as well as vomiting several times a week. The cramping became normal and it got to the point where walking and such was a constant state of pain. My axiety shot up and i'd have panic attacks and hyperventialation. I have GERD as well and during that time it was out of control.

It was also during this time when i loaded down fully on gluteny things because i was afraid to eat much of anything else (my diet, i kid not, was lunch meat, whatever plain gluteny thing that was available, plain salad mix, some sort of canned fruit). I lost about 40lbs the first month of this mess. I'd go and eat something, and then it was not uncommon for it to come back up.

I constently went to the doctor ("its all in your head!" "Deal with it like an adult") and they more often than not didn't believe me. Finally i got to see a nurse practitioner who put me through the paces with a full body exam (something i hadn't had prior to all this mess). She decided to test me for an ulcer, to see if my appindix was working correctly, and the long shot....celiac disease. Can you guess which one came back positive? I'm not a normal case, i suppose, only my IGA TTG came back positive along with the genetic testing, the rest of it negative. But as far as i'm concerned, I have it.

Do you live on campus of your university? If so, it will make things difficult for ya as the eateries are massive places of crosscontamination.

We all come in different shapes and sizes, as such not everyone on this board has the same test results or symptoms. If it makes you feel better, go for it. Do be careful though, your boyfriend will have to brush his teeth before he sees ya :) (due to crosscontamination issues).

Yes, I was diagnosed with IBS after I had the colonoscopy. I wanted to cry when the physician told me I was completely fine. This is the exact reason I haven't focused too much on getting insurance, I saw 2 specialists and recieved no answers. I was tired of feeling like no one took me seriously. I actually had a Dr. that told me I probably just had bad gas and wrote my a prescription for the children's dose of an acid reducer. A bubblegum flavored tablet that disolved in my mouth.

Anywho, I use to keep a Pepto bottle by my pillow at night although it didn't do much to calm my symptoms. I did not even think to consider my boyfriend and cross contamination! OoOo no , lol.

0

Share this post


Link to post
Share on other sites

While you're healing, try to avoid soy and oats--many people with celiac can't tolerate them. I'd like to echo all of the advice you've already been given.

Thanks for the tip, I regularly order soy at Starbucks to add a rich flavor.

0

Share this post


Link to post
Share on other sites

Welcome Rae!

Many here are self diagnosed and feel quite comfortable with that. If you choose to forgo testing, start simple. Meats, seafood, rice, veggies, potatoes and fresh fruit. No need for processed foods at the moment, or keep them to a minimum.

I would be as strict as possible for over a month or so. If you have a possitive dietary response, you can conclude you have Celiac Disease or some level of a gluten sensitivity. Both are rx'd by a gluten free diet. Some find relief immediately, others take longer. I would concentrate on removing gluten for now. And if you don't feel better, you may look into other foods as a problem. But, do take one step at a time.

As a college student, there is no need to deprive youself...there are several adult beverages available :rolleyes:

Take a walk around here. It's a great place for information and support. :) Once you get use to what you can eat, you will find that your sacrifices are only small ones. I do not feel deprived.

Yes, adult beverages were a concern of mine :)

0

Share this post


Link to post
Share on other sites

welcome to the group! I'm on my way out the door soon but just wanted to add -- remember to watch for hidden gluten in malt products, soy sauce, beer. And most of all become a label reader.....& many of us become intolerant of other things/foods as well.....I try to avoid all of the eight major allergrens........

The bad news it takes time to learn all there is to know about the gluten free lifestyle, mishaps will happen.... Good news is we now have great gluten-free choices so no need now to feel deprived of your favs...

You will find a wealth of info here......

0

Share this post


Link to post
Share on other sites

http://www.celiac.co...ages/Page1.html

Some suggestions that are safe. Wine is a safe option. But watch out for your tolerance, it will change. Go slow. ;)

Tolerance can change? Thats interesting, I wonder if it will. I haven't drank any wine or liquor since starting my gfd. I drink moderately but have always seemed to have an unusually high tolerance. Could that possibly have anything to do with this? I suppose I'll find out

welcome to the group! I'm on my way out the door soon but just wanted to add -- remember to watch for hidden gluten in malt products, soy sauce, beer. And most of all become a label reader.....& many of us become intolerant of other things/foods as well.....I try to avoid all of the eight major allergrens........

The bad news it takes time to learn all there is to know about the gluten free lifestyle, mishaps will happen.... Good news is we now have great gluten-free choices so no need now to feel deprived of your favs...

You will find a wealth of info here......

I was craving a choco malt earlier too! I checked online first and was disappointed to learn I couldn't have one. boo :/

http://www.celiac.co...ages/Page1.html

Some suggestions that are safe. Wine is a safe option. But watch out for your tolerance, it will change. Go slow. ;)

Tolerance can change? How interesting. I've always had an unusually high tolerance for being a small woman. I wonder if that has anything to do with this. I suppose I'll find out.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,757
  • Topics

  • Posts

    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,692
    • Most Online
      3,093

    Newest Member
    EllianaEthan
    Joined