Hello everyone! I've been gluten-free, nut free, soy free and tomato free. I still have bloating in the evenings. Sometimes more than others. It seems I cannot eat raw veggies or anything raw, it is worse then. I love fresh veggies and fruit, but can only do berries. My bloat seems to come on at the same time of night with mild cramping. Am I totally crazy or does this sound familiar. Any ideas or suggestions welcomed!
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6 replies to this topic
#1
CarolinaKip
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Posted 28 November 2012 - 06:54 PM
How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life you will have been all of these.
George Washington Carver
Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10
George Washington Carver
Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10
#2
mushroom
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Mushroom
Posted 28 November 2012 - 07:35 PM
Two years in, I was in much the same place as you, minus a few more foods. It was suggested I still had a leaky gut and I dismissed the idea after all I had done and all the foods I had eliminated and all the supplements I had taken. Nevertheless, on expert advice, I went on a fairly involved supplementation program, the most important of which I believe was the probiotic VSL#3. Since that time I have not "lost" any more foods, can tolerate corn starch and potato starch (just keep me away from the lectins) and soy lecithin, which has simplified my life a lot. And funnily enough, since this past summer when I was on a nasogastric feeding tube being fed something my husband approved as safe for me (some kind of non-corn, non-gluten slurry 
) my residual bloating and belching seems to have gone away 
Touching wood whilst keying that in. VSL#3 is expensive, but for me I believe it is what worked to finally heal me up.
) my residual bloating and belching seems to have gone away Touching wood whilst keying that in. VSL#3 is expensive, but for me I believe it is what worked to finally heal me up.
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#3
rosetapper23
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Posted 28 November 2012 - 09:24 PM
After 18 months on a strict gluten-free diet and still having problems, a doctor recommended that I put one scoop of Metagenics UltraClear Sustain Medical Food into my smoothie every day. After two weeks, I felt as though I'd never had celiac. Life was good...and my digestion was great.
#4
mommyto2kids
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Posted 29 November 2012 - 04:37 PM
Rosetapper, what is in your product and where do we get it? Where do we get VSL #3 as well?
#5
CarolinaKip
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Posted 29 November 2012 - 05:14 PM
thanks for the ideas!
How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life you will have been all of these.
George Washington Carver
Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10
George Washington Carver
Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10
#6
mushroom
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Mushroom
Posted 29 November 2012 - 09:07 PM
Rosetapper, what is in your product and where do we get it? Where do we get VSL #3 as well?
VSL#3 can be ordered online. Just google it.
Neroli
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
------------
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
#7
rosetapper23
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Posted 29 November 2012 - 10:19 PM
Here's a link that explains what's in it and where to order it:
http://www.professio...urer=Metagenics
http://www.professio...urer=Metagenics
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