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Questions For You All? Leaky Gut?
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Hello everyone! I've been gluten-free, nut free, soy free and tomato free. I still have bloating in the evenings. Sometimes more than others. It seems I cannot eat raw veggies or anything raw, it is worse then. I love fresh veggies and fruit, but can only do berries. My bloat seems to come on at the same time of night with mild cramping. Am I totally crazy or does this sound familiar. Any ideas or suggestions welcomed!

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Two years in, I was in much the same place as you, minus a few more foods. It was suggested I still had a leaky gut and I dismissed the idea after all I had done and all the foods I had eliminated and all the supplements I had taken. Nevertheless, on expert advice, I went on a fairly involved supplementation program, the most important of which I believe was the probiotic VSL#3. Since that time I have not "lost" any more foods, can tolerate corn starch and potato starch (just keep me away from the lectins) and soy lecithin, which has simplified my life a lot. And funnily enough, since this past summer when I was on a nasogastric feeding tube being fed something my husband approved as safe for me (some kind of non-corn, non-gluten slurry :P ) my residual bloating and belching seems to have gone away :ph34r: Touching wood whilst keying that in. VSL#3 is expensive, but for me I believe it is what worked to finally heal me up.

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After 18 months on a strict gluten-free diet and still having problems, a doctor recommended that I put one scoop of Metagenics UltraClear Sustain Medical Food into my smoothie every day. After two weeks, I felt as though I'd never had celiac. Life was good...and my digestion was great.

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Rosetapper, what is in your product and where do we get it? Where do we get VSL #3 as well?

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Rosetapper, what is in your product and where do we get it? Where do we get VSL #3 as well?

VSL#3 can be ordered online. Just google it.

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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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