Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Fatigue And Muscle Weakness
0

6 posts in this topic

Morning y'all!

Battling fatigue and muscle weakness this morning. It's been coming and going over the past couple weeks. I've been gluten-free for over a month, and I know its still early, but it feels like I wax and wane a bit. Some days I can make it through to the end of the day before I get wore out, other days like today I'm exhausted right out of bed. The good news is that the headaches, brain fog and light headedness have all disappeared. I'm doing very well watching what I eat, just trying to learn how to cope with the fatigue which seams to be the worst symptom.

Anyone else feel like no matter how many hours of sleep you get enough, you never feel rested when you wake up? Or just feel off?

Also (tell me if I'm sharing too much) my bowel movements seem to be much more normal. No more pebbles, "C" or floaters. Is this a good sign?

Have a great day everyone!

0

Share this post


Link to post
Share on other sites


Ads by Google:

BMs welcome here!

Sounds great if they are more normal, seems to happen for quite a few of us.

Tiredness along with insomnia are the slowest to improve for me.

I am 3 months gluten-free now and definitely was up and down to start. A few weeks in I felt better than I had for maybe 7 years. Maybe 80%. I got glutened and dropped from that, but I would say I regularly am at 60% now with regular higher peaks. I used to be about 40 to 50%.

I don't get all over muscle problems, but I have had huge improvement to hand arm neck and back pain and plantar fasciitis (foot pain under heel).

I wasn't sure if it was real until I got glutened and the foot pain came back.

I don't know if it would be helpful for you, but I wrote out a list of symptoms I used to have, and then every few weeks I go back and revisit. I have found it useful to see the progress, especially if I am a bit down.

I have also added to my original list as I find symptoms I didn't even realize weren't normal and remembered things from the last 20 odd years and that people have mentioned here.

I gave these lists to my GI and he found it very helpful in giving me a diagnosis of NCGI cannot rule out celiac (I was unable to complete a gluten challenge).

Your enthusiasm comes through, it is great to see you have improvements

2

Share this post


Link to post
Share on other sites

You're getting there! It took me probably 4-5 months for the excessive sleeping to stop. I was sleeping excessively before (12-14 hours a night), so for me it felt like it would never end.

I can now set my watch to my BMs. I have found I am more regular than non-celiacs, and have fewer digestive issues than non-celiacs, as long as I avoid the gluten. Hopefully, you'll get there, too.

1

Share this post


Link to post
Share on other sites

Great idea on the lists, I've often thought about doing that as well.

I find that as the day goes on the fatigue tends to go away a bit and I feel a little better, especially after I eat. But usually by the late afternoon I'm so tired that I can barely walk. Then i get a small second wind later at night.

Question for everyone, does getting more than 8 hours of sleep help any?

BMs welcome here!

Sounds great if they are more normal, seems to happen for quite a few of us.

Tiredness along with insomnia are the slowest to improve for me.

I am 3 months gluten-free now and definitely was up and down to start. A few weeks in I felt better than I had for maybe 7 years. Maybe 80%. I got glutened and dropped from that, but I would say I regularly am at 60% now with regular higher peaks. I used to be about 40 to 50%.

I don't get all over muscle problems, but I have had huge improvement to hand arm neck and back pain and plantar fasciitis (foot pain under heel).

I wasn't sure if it was real until I got glutened and the foot pain came back.

I don't know if it would be helpful for you, but I wrote out a list of symptoms I used to have, and then every few weeks I go back and revisit. I have found it useful to see the progress, especially if I am a bit down.

I have also added to my original list as I find symptoms I didn't even realize weren't normal and remembered things from the last 20 odd years and that people have mentioned here.

I gave these lists to my GI and he found it very helpful in giving me a diagnosis of NCGI cannot rule out celiac (I was unable to complete a gluten challenge).

Your enthusiasm comes through, it is great to see you have improvements

0

Share this post


Link to post
Share on other sites

Are you taking some B vitamins, or have you found you are deficient in anything? My fatigue improves by better nutrition. I haven't ever tried sleeping for as long as my body wanted ,, because I perceive I would still feel the fatigue if it was there. I also have responsibilities to perform as most of us do. The fatigue goes away and comes back spontaneously, so I don't think that more sleep would solve it.

I hope you will find a way to improve your energy level.

Diana

1

Share this post


Link to post
Share on other sites




I second the nutritional supplements. Besides the B vitamins, I'd suggest magnesium, and a separate methylcobalamin B12 sublingual tablet. These have made a world of difference for me. I've heard good things about CoQ10, and its importance in energy production, so I'm thinking of trying that too.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,313
  • Topics

  • Posts

    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,122
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined