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An Interesting Story And Introduction


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52 replies to this topic

#16 foam

 
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Posted 15 December 2012 - 12:39 AM

I made an error today, after feeling really great for days and days. I ate 3 pears and a bulk load of potato with skins.. I take back what I said before about potato with skins being good lol. Meat and veggies was working well, I'll go back to that although I am going to take a banana smoothie today with egg yolks. Hopefully todays failures wont interrupt my neck node shrinkage too much, because it had been gently but consistently improving again these last few days. I'm just going to have to bite the bullet and do a month straight on meat and veggies it seems. I think I'll get off the diflucan, seems like it's done all it's going to do. Might just take a once a week capsule to give a little helping hand without so much stress on my body.
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#17 foam

 
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Posted 19 December 2012 - 06:57 AM

So the plot thickens.. I'm currently taking a course of antibiotics against Helicobacter pylori.

This is something I've taken before a couple of years ago and I had assumed this wasn't the issue since nothing changed. However I have noticed over the years that antibiotics made the node in my neck smaller and did so pretty quickly. Now the more and more I've learnt about how the eosonphilia levels and the neck node size are directly related to my eosonphil count. I've also noted that the more protein I eat the more the eosonphil, this part must be related to small intestine damage and leaky gut.

Now in theory antibiotics can not change your white cell count, it even says so on the pamplet, this leads me to believe and I can't see any other option than I have a persistent bacterial infection.. which I've already more or less proven since my tongue which is continuously white cleared up one day into this treatment. I'm not confident this course of antibiotics will work as it's only 7 days and 7 days is only JUST enough time for your eosonphil count to drop, no matter how much protein I eat it drops and drops totally, pity it's not long enough for your gut to heal and I figure I'm getting reinfected before I can tolerate the bacteria either from an external source (I don't have the best water quality as it's from a tank) or from residue bacteria that hasn't been 100% killed off. It would be quite amazing if all my health problems have been caused by this little pain in the ass bacteria all along. The only other thing could the SIBO Small intestinal bacterial overgrowth which they say almost everyone with irritable bowel and allergies etc has. Which causes which I don't know. My neck absolutely shrinks every time my wife makes her famous green juice with a ton of ginger in it for a couple of days in a row, I never put the two and two together before (the ginger component that is), suspicious.....

On October 29th I got this Helicobacter pylori kit and took it for one day until my wife reminded me I've already taken that. So I got off it as I was trying to build my intestinal flora, I've got enough antibiotics to replace the missing pills from the course so that's ok. Anyway it was on November 5th that my node started rapidly shrinking for no apparent reason and on about November 10th I received a decent WBC with lowish eosonphilia for the first time in at least 6 years. At the time I thought my simple potato diet was curing me...
By late November My count was back up to very high levels.....

Now I can't say this is definitely a case of Helicobacter pylori but it seems definitely bacterial and given my food intolerences and stomach/small intestine burning on eating sugar or salt you would almost have to say it's highly likely. I've not so long ago had a stool test and thought they would have tested for that, maybe they only looked for true parasites. It will be awesome if that's the problem and if it is that might be of considerable interest to a lot of people on here. If my immune system wasn't so reactive to this and developed the neck "tumour" I would have had ZERO idea at all because I wouldn't have even had a WBC count done and would have just figured I had ever worsening food intolerances.

The diflucan seemed to improve my overall health so I figure I had some mild Candida problem at the same time.
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#18 foam

 
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Posted 27 December 2012 - 02:18 AM

I've got a blood test coming up tomorrow, will do a standard white cell count and see where I'm at. Prediction based on my neck is... 1.7 maybe 1.5. I'm on Zyrtec to lower my antibody levels.. long story but after reading a few medical journals it seems Zyrtec (http://en.wikipedia.org/wiki/Cetirizine) is more than capable of dropping your IgE levels hence making you non-allergic to things within a few months of taking it daily. It's even "cured" chronic asthma no problem at all. For me that's a much safer and better option than steroids, it just wont work as quickly.

The antibiotics seem to induce a "pause" in my problems, not sure why but think it's a side effect because of having bacterial imbalance in my damaged gut. Anything thing I've noted, sauerkraut is probiotic wise, much more powerful than Yoghurt, especailly when you are a bit dodgy on milk protiens, get that stuff into you. It's cheap, good, powerful, way cheaper than capsules etc.
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#19 foam

 
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Posted 30 December 2012 - 10:03 PM

So brothers and sisters of the leaky guts. I've had my blood test and I also had the antibody test for Helicobacter incase this is the root cause of my problems and Strongyloides (incase I need to go on immune suppressants).

I will have results of all three in a week or so. In the meantime I've been taking Zyrtec daily for about a week. This is some pretty amazing stuff... It's really limited the allergy reaction I have to foods, so much that I've gained 3kg in the last week!. I can still make myself sick by doing as I did today.. eating handfulls of nuts for a test to see how far I could push it. I certainly found the limit.... ouch. The node in my neck is only about 1/4 the size it was pre Zyrtec already. Bad news is my white tongue returned :( but that's just a side effect of a dodgy gut, I'll deal with that later.

It seems to me that eating the normal foods that keeps me stable at 30% eosonphillia, well with the Zyrtec I believe I'm running at about %15 esonphillia but the test will prove exactly what difference it makes. I plan I taking Zyrtec for several months and also once I gain enough weight going back on a very very low allergy diet. If I can keep that up for a few months, possibly 6 months I should be able to get myself into a position where my IgE levels have come down enough that I'm about half as allergic to foods as I was.. and with the Zrytec cutting the reactions from that point on I should be able to cure all my allergys quite soon after that.

I have an appointment with a specialist on jan 31st where I expect I'll have the immunocap antibody test and then I'll know my major allergies printed out in real numbers in black and white and then I'll know what to especailly avoid so I can heal my gut. Another effect of the Zyrtec is that I no longer have crazy itchy skin! first time in at least 20 years I haven't been tearing myself apart... I said to my Father.. if this is how it feels to be a normal Human, I've really been missing out..... Hope I get a hit on the Helicobacter antibodies really as that would make life easier if these a common root cause to all this.

Anyway if you want some relief I would highly recommend an antihistamine and especailly Zyrtec or something else with Cetirizine in it as I've thought back in time it's been the high levels of Histamine that have been giving me pain ever since I was a small kid
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#20 Juliebove

 
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Posted 31 December 2012 - 01:02 AM

I'm glad the Zyrtec worked for you. Didn't do a think for my daughter or I except for me to cause insane hives. I have never itched so much in my life than when taking that stuff. And then when I tried to stop it the itching got worse! Took about two weeks to get it all out of my system.
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#21 foam

 
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Posted 09 January 2013 - 05:12 PM

HI guys bit of an update, negative on helicobacter but my eosonphil count post 5 days on Zyrtec came back 1.8 (I predicted 1.7) down from 2.2 last time on my normal non starvation diet. So that's good, the Zyrtec continues to hold my levels lower than that now after about 20 days on it, I've thinking it's holding me in the 1.2-1.5 range which is very good for me when eating normally and gaining weight. I haven't had any digestive problems or stomach pain etc since I've been on it and my itching skin and sores are totally "cured". But I was after some advice on something else I noticed on my blood results (kidney results actually). my bicarbonate levels are quite high, just slightly out of range on the alkaline side of high, I understand this means your blood and body as a whole is very alkaline and as I understand the chemistry of the gut, you need things to be neutral or even acidic for beneficial bacteria to grow well and that candida and fungus is general love alkaline environments. Have any of you tried before to alter your body's PH and if so how did you go about it?. As I mentioned before until very recently I've been on a highly alkaline vegetarian diet for more than 20 years with no alcohol, added sugar or salts. I've got bicarbonate results from 2006 and now and it's been persistently high, I'm looking to try and bring that down into the middle of the normal range if possible (without going crazy and turning into a junk food eating beer drinker :!)
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#22 mushroom

 
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Posted 09 January 2013 - 05:29 PM

Maybe try to limit tomato. People I know of people who are alkalizing who drink V8 for the potassium, and take magnesium supplements along with it.
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#23 foam

 
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Posted 09 January 2013 - 06:31 PM

I haven't eaten tomato much in a while but I did used to eat a few of them per day in the past no doubt. I was reading something about a chloride salt to acidify yourself, my bicarbonate levels are constantly 31-33, it seems 24 is much more ideal for good health?. From what I read anything over 29 is not so good at all. I'll need to do some more reading into this to see what exactly is going on. Of course I guess this could be somehow related to having super high histamine levels all my life without realising it. Although after having been to the dentist last year for the first time in 25 years and having found no cavities or damage other than slight wear in the enamel from brushing you would have too say I've been quite alkaline for a long time
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#24 foam

 
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Posted 09 January 2013 - 10:01 PM

GFinDC, I do have something for you regarding the Thyroid too, but all I have is this

Thyrotropin : 2.14 mU/L reference range (.30-4.00)
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#25 GFinDC

 
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Posted 10 January 2013 - 06:17 AM

Hi Foam,

I am not an expert on thyroid issues but it seems your thyrotropin (TSH) level is good, it is in range.

I am kind of a skeptic on the alkaline/acid idea myself. Our stomachs have hydrocloric acid in them to help digest the food we eat. That acidic food mixture gets dumped into the small intestine. The liver (gall bladder) injects chemicals into the small intestine to nuetralize the acid. I think it is somewhat common for people to have too little or low stomach acid. One treatment for that is Betaine HCL.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#26 foam

 
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Posted 24 January 2013 - 01:32 AM

Hey guys I've been running a pretty tight ship diet wise the last couple of weeks and am doing pretty well, my eosonphilia is down quite a bit. I took another course of Mebendazole but took a fairly heavy dose of it this time to knock out anything suss like Giardia, I read Mebendazole is also a very powerful antifungal too, much more effective than Diflucan against candida at least invitro apparently so whatever I took 200mg 3 times a day for 3 days which is supposed to be enough to knock off Gairdia without knocking myself off :0. Whatever it does it had a positive effect, I think against fungus as for the first time in a long time my tounge is 50% pink.

I'm making pro biotic Soy yoghurt now because I'm sure Milk protein is a major issue for me, I have been able to digest yoghurt but I still think I have considerable antibodies against and I'm sure I have less (but still some) against soy protein so choose between to evils, I'm going with the soy, I've not been able to find another way to culture biotics yet but am about to try Rice milk which if it works will be even better. Other than that I'm eating TONS of cabbage which I can tell is a really really a good thing. I'm still taking a daily Zyrtec and still having next to no itching and my skin everywhere is quite smooth and healed up as a result. I haven't had any antibody level test since I've been on the Zyrtec but I will have one in the beginning of February to see if I've made some improvement.

I'm going to see the immunologist/allergist in a week for his opinion, apparently there will be no testing done at first, I'm just presenting him with all my history and paperwork for him to consider things first. Hopefully soon I'll be able to find the root cause of my problems, whether it's permeable gut, chromosome error, parasite or all three ?? I'm reasonably sure there are no (common) parasites unless you count candida and other yeasts which I'm sure are a major part of the story. Until I can seen the result of an IgE test that shows huge amounts of antibodies to some food/s I'll always be suspect there's a mystery non gut parasite but until then I can't do anything more about that so will continue to run a tight diet food allergy wise.

So my good things of the month are Mebendazole, Cabbage, Ginger, Soy probiotics and Coconut oil which is amazing stuff against whatever it is I'm fighting against lol, because my best least allergic high calorie food seems to be potato soaked in oil, I'm going through half a litre of coconut oil a week :/ . Red meat is good, fish so-so, Chicken I think is a failure. Red meat seems to do a couple of things other meats don't 1) digest very easily, 2) increase my stomach acids power ALOT. Other than the soy milk based yoghurt, the only grain I've eaten the last couple weeks was a little rice because I went out for dinner and vindaloo seemed the safer option of anything on the menu.
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#27 foam

 
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Posted 30 January 2013 - 04:52 AM

Hello! Well today is the day when I finally might get some help from an expert. I'm going to see a specialist Immunologist/Allergist doctor about my problems. I've got a heap of paper work with me to give him some idea of what I've been dealing with and I'm hoping we can get to the bottom of this. I am very much leaning towards an immune reaction to Candida/SIBO at this time as well as many many mild multiple food allergies and probably dust mites as well. I don't really know what he's going to suggest I do but from what I've read he's a fan of hardcore exclusion diets. As this suspected "disease" in my neck is often associated with Candida I expect I'll be going sugar free too. I had to go off my Zyrtec because I'm going to be doing some allergen testing... oh man the histamine itch, how I had forgotten about you.. :P can't wait to get back on the Zyrtecs actually, I have a 50 pack here ready to go
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#28 mommida

 
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Posted 30 January 2013 - 09:34 AM

Foam,
Interestng "mystery non-gut parasite" would seem to connect to eosinophils that you mentioned "eosinophilic folliculitus". Eosinophils are usually reserved to fight parsites and the egg stage is free roaming in the host.
Keep me informed if you find something out!
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#29 foam

 
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Posted 30 January 2013 - 01:03 PM

mommida, the mystery parasite certainly does fit in the picture.. the problem with it is... I lived a very isolated life early on. Well not isolated but I got sick before I was exposed to many people or different areas of the world where I could have picked up a large enough mystery parasite to cause eosinophillia. On the other hand it's not terribly uncommon to have all the symptoms of a mystery parasite when you are atopic + have leaky gut because as far as your body is concerned food proteins ARE parasites. So while the bodies reaction is identical in both numbers and IgE levels the cause isn't real. But yes my entire problem is either one or the other, as I do have food allergies and gut problems first stop is the immunologist but I can't rule out going to see an infectious disease specialist next. Now that I've finally got in the specialist loop I'm at least getting somewhere, it is also possible I'm just highly reactive to food allergies and THEN got a mystery parasite in Mexico and am in double trouble, who knows but I don't even have helicobacter so you wouldn't think I have much parasite load... there's also the theory that I don't have ENOUGH parasites. Anyway I'm awake and ready to leave. It's a 5 hour drive each way to see him.
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#30 foam

 
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Posted 01 February 2013 - 03:50 PM

Ok I'm back!. I don't think the guy really knew what to make of me at the moment. But from the tests he's asked me to do he's thinking Celiac induced auto immune with possible parasite involvement?. I had zero reaction to any common allergen skin prick tests, although the following day and today two of the test sites became very slightly inflamed and have remained so, but it was a delayed reaction and no more than a mild mosquito bite. He did say gut food problems often don't show up. He said the antibody test to helicobacter is totally useless and I have to do the breath test. Meanwhile I continue to improve on Zyrtec ! and fairly rapidly the last few days despite going off it for a few days for the skin testing. Gees the itch I got after 3 days off it was getting unbearable. I don't know how I lived like that all my life... I guess you get used to it but I totally couldn't handle it now.

He's asked me to do the following tests and then come back. In the order he thought of them, they are.
1)Genotype for Celiac
2)IgG, IgG to Gliadin
3)Endomysial and Transglutaminase Ab antibody
4)Helicobacter breath test
5)FBE
6)ESR
7) ANA
8)Vit D
9) Faeces + ova+ cysts + C. difficile
10) Thyroid antibodies + Thyroid function
11) RAST for staph enteroctopus A+B


I guess this is some very extensive diagnostics ! hopefully it gets me closer to seeing what is going on
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