Another update, few weeks ago my bloods were 2100 IgE and 1.0 Eosinophil levels. The best yet. Not only that I totally fixed my low Neutrophil levels, which went from a consistent 1.4-1.8 to 2.9 !, the highest I've ever recorded and smack into the normal range.
I also went to a new specialist to see about getting a more solid diagnosis on the Kimura's disease and ended up booked in for a bone marrow biopsy and core biopsy's of my neck :! and a ton of DNA and gene testing... great :S. Providing that shows up nothing I'll probably be sent to a rare disease specialist they mentioned. In any case I don't really need any of those tests because I'm learning lots and very close to smashing this away without any further doctor help.
My recent discoveries and learning are that ecinacea is POWERFUL. I am blaming it 100% for fixing my neutrophil levels.
I had to take a few more Metronidizole's because my SIBO came back, but it took more than a month to return and came back less aggressive than before so I plan to attack it again before it comes back next time, plus I want to do a course of Rifaximin, maybe combined. I've realised I need to fight this from multiple fronts, numbing the immune response (here I'm using zyrtec and claratyne which seem the most effective over the counter anti IgE agents), cleansing the system of "wrong for human bacteria species" that become the normal population in your gut after years of eating grain and then re-population of the right bacteria. It seems to me that simply trying to overcrowd one bacteria with another doesn't work, they have changed their environment (your gut and immune system) too much for a normal population to thrive. It's got to be a combination of killing them and healing and re-population.
I'm trying to get hold of some suplatast tosilate which is an anti inflammatory / anti allergy drug which acts on the cytokines which recruit Eosinophils and also works against IgE, certainly not easy to find outside of Japan but I think I'll be able to import some for a test.
Multple food intolerances last 25 years
High Eosinophilia last 20 years
Suspicious cervical lymph node 2006
Gluten free 2010
Grain free 2012
Started long term 10mg Zyrtec for anti-IgE, also taking 20mg Loratadine for IL-4 suppression.
Ongoing 2006 node confirmed Kimuras disease 2013
DQ2 positive, DQ5 and DQ8 negative.
IgE level 4100 in Oct 2012, currently 1900 in Feb 2013