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Food For 9 Day Bus Trip
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I was diagnosed in October 2012 and am finding I'm feeling a little hopeless. I had been planning a 9 day bus trip from Mn to New York in April. Having done this in the past I know all the stops for meals are at fast foods like McDonald's. how can a person with celiac possibly.do this? We had been planning this before my diagnosis but know think I should cancel. Any suggestions that could make this still possible? Thanks!!

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We have talked about traveling food often. Here is one

Find out what hotels you will stay at. Call and see if you can use a microwave. Mention " medical necessity". Ask if there are grocery stores nearby to restock. The bus should be able to let you keep a cooler in the luggage hold near the door for easy access. Then you can take gluten-free bread ( freeze it) cold cuts, cheese, yogurt, fruit, salad, etc. precook chicken for salad. Freeze it to last longer. You can get more salad and cold cuts at a grocery. If the hotels have microwaves you can bring gluten-free soups or noodle bowls or even frozen chili from home.

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If I were you, I would pack a lot of stuff that you can eat. Like trail mix. You might have to make your own, customized to what you can eat. I managed to live for a few years eating little more than that and salad. Most fast food places will have salad that should be safe. Unless of course there is cross contamination. McDonalds would have hamburger patties and sliced apples. Both should be safe. If you stop at a Wendy's, the chili and baked potatoes should be safe.<p> %

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Oh dear. I had posted more than that. But it's not showing. I said that if it were me, I wouldn't take that trip. Because I wouldn't want to take the chance of getting sick on a bus.

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Thank you for your help. I've lived on gluten-free bread and gluten-free yogurt for a period of time to feel better, I think I can do it again. It's a trip with my mom and the memories are so worth it.

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Thank you for your help. I've lived on gluten-free bread and gluten-free yogurt for a period of time to feel better, I think I can do it again. It's a trip with my mom and the memories are so worth it.

I've been thinking on the same lines. I have decided that celiac disease is not going to change my life: if necessary I will fast rather than stop travelling. Rice and grilled meat or fish are normally safe, and if you can have boiled potatoes or roast potatoes provided that they have not been floured... Of course cross contamination is always a risk. However for a long trip with stops mostly at fast foods I would pack frozen gluten-free bread and rely on salads and grilled meat when you can find it. Also crackers. Can you have cheese? If yes, that is going to be a HUGE help. Moreover, a word to the wise: I am lactose intolerant but Parmesan cheese if more than 30 months old has no lactose. It's easy to find it in Italy, I guess it's going to be more difficult in the US, but if you can find it is a very good snack, especially with carrots or celery or apples or grapes.

Bottom line though, I do not think we should be stopped by celiac disease. I have been gluten-free since the beginning of December and have been two days in Naples (almost fasting), one week in the mountains (in a celiac disease friendly hotel) and two days in Amsterdam (tea and boiled egg for breakfast, boiled rice and plain meat at Thai and Tibetan restaurants, no soy sauce). I got glutened, as far as I can tell, only back in Rome at a friend's house...

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I've been looking into thermal cooking, especially for breakfast, since I'm so picky about what I eat first thing in the morning. If you can eat instant oatmeal or if you like instant grits, you're probably fine for breakfast. But you can always carry along any grain you like (like quinoa, rice, or oatmeal) and put it overnight in a thermos with boiling water to get a cooked breakfast in the morning. You can also cook grains or pasta like this during the day to make for a salad for lunch or dinner. With some travel-friendly cheese and salami, you can have something in reserve in case you can't get to the grocery store. There are soup recipes, too.

If you can eat (and like) beans, you can also cook beans and rice this way (it takes about 8 hours, and you need to leave room to let them expand in the thermos).

There's more information on it here and many other places online: http://www.thermoscooking.com/

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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