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Teeth Problems
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Hi my daughter is getting her 6 year molars in and I just looked at them and they are coming in soft and a brown grey color. Now when I say soft, I mean if I take a fork and rub it on the tooth seems to disintigrate.

Has anyone here seen anything like that? My daugther does not have an official diagnosis of celiac, but I have enough suspicions that she is strickly gluten free and dairy free right now. She has only been Gluten free for the last year though and I know these molars have been in the making for a lot longer than a year.

I am taking her to the dentist as soon as I can get in - they are closed today.

I am a little freaked out about this knowing these are her first permenant teeth. Is this confirmation of Celiac? and is there anything I need to be doing for her now or is too late for her teeth?

FYI - my kids rarely get juice and she always brushes her teeth well ( or I do ).

thanks

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My mother, son, and I all have celiac disease. One thing that we all have in common is that our tooth buds did not form properly in utero. Our dentist explained this to us, and he said that this caused our molars to disintegrate from the inside out. I thought I could "fix" the situation with my son and had his molars bonded at the very moment they cleared his gums. When he developed cavities in these very same molars, I complained to his pediatric dentist, saying that the bonding apparently didn't hold. He assured me that the bonding wasn't the problem--he said that there was something congenitally wrong with my son's teeth. That's when I began taking him to my own dentist, who concluded that my mother, son, and I all had some type of inherited auto-immune disease that caused the tooth buds to form improperly in utero. Unfortunately, my dentist retired 10 years ago, so I was never able to inform him that it turned out that he was right. All of us have celiac, and that is the reason for our disintegrating teeth. I'm missing two of my upper molars, which shattered so badly, they had to be pulled...and the rest all have crowns (and many of them had root canals, too). My teeth continue to shatter--I usually break 1-3 teeth per year, even though I'm very careful.

Thankfully, I have great dental insurance--otherwise, I'd be working just to pay the dentist.

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I had to have my teeth capped as a child, horrible silver metal caps. They said it was milk rot but I now think it was the celiac. My son, with celiac, has bad staining on his teeth and weakness from the time they've come in. Good luck for your daughter!

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So today I took her to the dr because I suspected a uti. Well it turns out I was right - but not only did they find that she had a uti, but also an ear infection and pink eye! I just don't understand how this could be since she has just recently been on antibiotics for a double ear infection. She has always been a fairly healthy child. When we got home she informed me that she had bad D.

I am trying not to let this upset me but it is freaking me out a bit.

Thanks for your help.

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Well, I had had undiagnosed celiac for sometime before my first child was born. I had 5 children, which are all between 24 and 15.. Each one has good teeth. There must be more to it then just undiagnosed celiac. My son's dentist told him that he had inherited good teeth, but both my husband and I have had troubles. I thought I needed to post this, so mother's don't get to fretting about this too much. It might be your trouble, but it might not.

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Remember, celiac can be triggered at any time. It appears that in my family we tend to be born with the disease already active. For instance, I was born with Rickets, which indicated a Vitamin D deficiency--I believe I was probably deficient for my entire life. I wasn't diagnosed with celiac until I was 47, and I only recently (at age 55) found a Vitamin D product that I can absorb well.

You might check your child's Vitamin D level--if it's low, she can end up with infections very easily. My entire childhood was rampant with infections and viruses--every kind (UTIs, strep, ear infections, tooth infections--you name it!). If she needs to take Vitamin D, the only product that works for me is Country Life Natural Vitamin D. It contains Vitamin A, as well, since every cell has two receptors for A for every receptor of D. It also contains medium-chain triglycerides, which help people with celiac absorb both the A and D. This product was recommended by a speaker at a recent celiac conference in Seattle, and, believe it or not, it only contains 400 iu's of Vitamin D, which your daughter's pediatrician would be fine with.

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My daughter was diagnoised when she was 2yr old and her teeth went in the same way they said it was because she wasnt getting enough Calcium and her body was taking the calcuim for her teeth and bones.

She ended up getting her baby teeth takin out, but since i got her diet under control and gave her extra calcium supplements to get her back to normal. the good thin is her big teeth have came through all ok

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I just wanted to add:

Don't be surprised if your dentist knows NOTHING about Celiac Disease. When my younger son was diagnosed 2 years ago, I immediately suspected my older son had it too, based on his discolored teeth. Over the years, the doctors noticed the discoloration, but no one ever figured out a cause. Our pediatric dentist had never even heard of the connection between teeth and celiac.

Anyway, his blood tests were negative, he had ZERO other symptoms, but based on the teeth alone, our Celiac doctor was concerned enough to do an endoscopy. It was negative too. I was told to watch him and bring him in again if he shows any symptoms. If there are no symptoms, he is to get re-tested every two years.

It will be difficult to have your daughter tested for celiac after being gluten free for a year.

Good luck to you.

Cara

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If your dentist is unaware of celiac, there are informational handouts available through various resources. I know that the Gluten Intolerance Group of North Americas has such a handout. Their website is www.gluten.net.

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My youngest son's 6 year molars are just like you described. Just the bottom two though. He has fillings in both of them because he got cavities (one came in with a cavity already there) because of the the enamal defects. He cut the bottom two several months after he turned 6, the one top one when he was 7 and is just now cutting his last one at age 8. This last one is VERY delayed coming in. He was diagnosed just before he turned 6 when he was in kindergarden. However, in hindsite based on his issues as a baby, I think he has been celiac since he was an infant. The dentist and I believe his enamal issues are from the undiagnosed celiac(his testing was negative at 3 years old after I was diagnosed so he continued on a regular diet) and him taking a lot of antibiotics as a baby.

He has lost only two teeth, his bottom front incisors, and the permanant teeth look fine and are healthy thank goodness.

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Thank you for all your replies. I just wanted to send an update to my question. It is now 3 1/2 months after my dd 6year molars emerged. When I took her to the dentist in Dec. they sealed the tooth and told me I had no worries. It just looked funny and it would be just as strong as any other tooth. Unfortunately it has been causing her pain and we found out today that, just as I suspected the tooth was chipping off and the inner tooth was exposed and decaying. The dr. seemed very surprised. He filled the tooth and told me,again, not to worry, this tooth should be fine and normal. Honestly, I don't really believe what he said, and I am going to try to supplement her with some things that MAY help strengthen all her teeth.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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