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Six Natural Foods That Work For Me. For Those Scared To Eat Anything.
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6 posts in this topic

These make me feel good, nourish me, or just fill my body safely.

salmon

fennel bulb

almonds

eggs

pork

cucumber

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Good list, and thank you for sharing it. It would be great if anyone else with only a handful of foods they can eat without problems could post their safe foods, too, to give everyone else ideas. I'm going to go try fennel now!

A cousin of a friend has severe fructose malabsorbtion, and your list is very close to his. He can eat: exclusively grass-fed bison; rice; fennel; and one other thing I forget. He has only four foods he can eat total, apparently.

For what it's worth --

My list:

rice (soaked overnight)

soaked polenta (soaked overnight)

tuna

almond milk

Wow! gluten-free baked goods

homemade pickles

ginger

-- I tried supposedly "wild Pacific salmon" and that didn't work out at all...but it was smoked with a glaze, so maybe that was why.

-- Almonds are difficult on my system, but almond milk is OK and I'm planning to try soaking the nuts to see if that helps with digestion.

-- Eggs cause malabsorbtion and so does bacon -- I think it's the fat (not allergic).

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I don't have severe food problems anymore, but the foods I used to consider safe are:

Sweet potatoes

chicken

avocado

oranges

apples

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mine seem to be:

bananas

apples

clementines

eggs

chicken

salmon

asparagus

homemade soup

salad

gluten free rice cakes

natural peanut butter

natural jelly w/no added sugar

gluten free/lactose free cheese

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My youngest daughter had such an extreme celiac beginning... she spent more than a year eating nothing but:

eggs

white rice

cauliflower

plain chicken and salmon

apples

And this list took her months to figure out. She reacted to every class of veggies, most fruits, and anything processed. She's finally able to eat lots more foods, but will always have a lot of intolerances... no dairy, several veggie and fruit classes, and others. But she's doing so well and is so healthy now!

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    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
    • I do not struggle with this and I was brought up the same way as you. I don't struggle because for many years off & on we didn't have a bathtub, only showers as well as this being therapy or medicinal for the skin - heck even for the muscles as I age. I figure I've earned my right to luxuriate or medicate with baths any time I've a mind to. My husband saw just how bad my dh got & NEVER begrudges me a nice long soak in the big soaking tub we now have.
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