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Six Natural Foods That Work For Me. For Those Scared To Eat Anything.
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6 posts in this topic

These make me feel good, nourish me, or just fill my body safely.

salmon

fennel bulb

almonds

eggs

pork

cucumber

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Good list, and thank you for sharing it. It would be great if anyone else with only a handful of foods they can eat without problems could post their safe foods, too, to give everyone else ideas. I'm going to go try fennel now!

A cousin of a friend has severe fructose malabsorbtion, and your list is very close to his. He can eat: exclusively grass-fed bison; rice; fennel; and one other thing I forget. He has only four foods he can eat total, apparently.

For what it's worth --

My list:

rice (soaked overnight)

soaked polenta (soaked overnight)

tuna

almond milk

Wow! gluten-free baked goods

homemade pickles

ginger

-- I tried supposedly "wild Pacific salmon" and that didn't work out at all...but it was smoked with a glaze, so maybe that was why.

-- Almonds are difficult on my system, but almond milk is OK and I'm planning to try soaking the nuts to see if that helps with digestion.

-- Eggs cause malabsorbtion and so does bacon -- I think it's the fat (not allergic).

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I don't have severe food problems anymore, but the foods I used to consider safe are:

Sweet potatoes

chicken

avocado

oranges

apples

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mine seem to be:

bananas

apples

clementines

eggs

chicken

salmon

asparagus

homemade soup

salad

gluten free rice cakes

natural peanut butter

natural jelly w/no added sugar

gluten free/lactose free cheese

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My youngest daughter had such an extreme celiac beginning... she spent more than a year eating nothing but:

eggs

white rice

cauliflower

plain chicken and salmon

apples

And this list took her months to figure out. She reacted to every class of veggies, most fruits, and anything processed. She's finally able to eat lots more foods, but will always have a lot of intolerances... no dairy, several veggie and fruit classes, and others. But she's doing so well and is so healthy now!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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