Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Mouth Sores
0

13 posts in this topic

hello,

this is my first post.

have been gluten free for almost 2 months. I tried this because of extreme fatigue, gas, anxiety and mouth sores. I have tested negative for celiac but was already gluten free for 5 weeks when tested.

I have had times felt almost normal ? I dont have to worry about the gas anymore- thank goodness, dont need to come home and immediately use the bathroom. I have been very careful about what I eat, checking everything. am starting to worry about cross contamination.., The mouth sores havent been as bad but just had an outbreak and it has me upset....

my dad was just tested for celiac and waiting for results, he has had ibs, takes 4 immodium daily and has neuropathy, he is now starting to go gluten free. I am taking my son in tomorrow to get tested as he has diarrhea regularly with fatigue and anxiety and he is willing to go gluten free?

I just was really hoping these mouth sores would go away?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Mouth sores can be a symptom of B vitamin deficiency (esp B2). Mine just showed up after four months gluten-free. From what I hear, this is a pretty common deficiency due to malabsorption that I guess (hope) gets better with time. Hopefully others with more experience will chime in here...

0

Share this post


Link to post
Share on other sites

For me ,,mouth sores are a reaction to corn,, especially high fructose corn syurp

0

Share this post


Link to post
Share on other sites

Mouth sores (and fatigue) are commonly found in other AI diseases too. A few months back I had some sort of AI flare up with deep fatigue, arthritic joints and hair loss... when it first started I thought I was getting sick because of the fatigue, aches and pains, and a sore throat but it wasn't a sore throat, it was a round of big mouth sores (mostly on top of mouth). I had been 2-3 months gluten-free at that point so I know it wasn't diet. It was either thyroid linked of some other AI disease.

If you determine that it isn't food linked, you could consider other causes.

Hop[e you feel better.

0

Share this post


Link to post
Share on other sites

For me ,,mouth sores are a reaction to corn,, especially high fructose corn syurp

I saw that you had quite a few posts, I have never really done forums so this is all new to me and not really sure how it all works? would love to be able to email someone directly and just ask some questions? is that a possibility?

0

Share this post


Link to post
Share on other sites




I saw that you had quite a few posts, I have never really done forums so this is all new to me and not really sure how it all works? would love to be able to email someone directly and just ask some questions? is that a possibility?

There is a protection on this forum that does not allow new members to personal message other members. It is to prevent spam. Ideally, this forum works best when you post your questions and allow many others to answer with their experiences and info. It is likely others have the same questions you do. When you start to gain knowledge and experience, you can help others. You can learn a lot by reading other people's questions and answers, too.

You might want to start by reading this thread :

0

Share this post


Link to post
Share on other sites

Mouth sores can also be a symptom of Crohn's. Not to scare you, as mouth sores could also appear for less serious reasons. Point is, you should see a physician if you have not already done so and see if they will run some tests across the board.

0

Share this post


Link to post
Share on other sites

Before my celiac diagnosis I was getting mouth sores almost constantly.  If I ate anything contaminated with gluten I'd get blood filled blisters (immediately) while eating.  The worst were McDonald's hash browns (but only from certain McDonald's) and knarly artisan bread.  When the sharp edges of the bread poked my mouth a sore would develop.  The blisters would pop in a day or so, then the fun begins.  I'd suffer from the raw sore ulcer for several days to a week.  

 

I've been gluten-free for almost two years, but I still get these occasionally.  The most recent was after having work done on a tooth in prep for a crown.  

 

When they are bad, the outside of my face also hurts, like a burning nerve pain.  This latest has made the left side of my face hurt from my jaw to my eye.  

 

Besides taking tylenol or advil, what can I do to ease the pain or speed the recovery?  I've tried adding peroxide to mouthwash, but can't tell if this really helps or not.  

 

Anyone?  :(

0

Share this post


Link to post
Share on other sites

Are you using a toothpaste without SLR?  I started using one when I suffered from canker sores before my diagnosis based on a recommendation from a dentist.  It helped some so I still use it (I believe Pronamel is what I use).  I only get them occasionally now and they are far less severe! 

0

Share this post


Link to post
Share on other sites

For me, mouth sores are the first symptom that appears whenever I have ingested gluten. If I continue eating it, the blisters get bigger and bigger and are soo sore!

0

Share this post


Link to post
Share on other sites

There's a script you can get from your GP, it's friendly name is 'Swish and Swirl".  It will also temporarily numb the area.  It's good stuff.

 

Colleen

0

Share this post


Link to post
Share on other sites

I can get mouth sores within an hour after getting some gluten accidentally. 

0

Share this post


Link to post
Share on other sites

lysine  is  good for  mouth  sores....I hope  you  find  once  on the  gluten free for  many months  the mouth  sores  will become  less & less... But  do  take  probiotics  & digestive  enzymes..

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,364
    • Total Posts
      920,549
  • Topics

  • Posts

    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
    • Hi Beachgrl, We have had members with microscopic colitis before, usually in addition to celiac disease.  Have you been tested for celiac disease?  The reason I ask is, it is much better to be tested for celiac before starting the gluten-free diet.  The primary tests for celiac are to detect antibodies to gliaden in the bloodstream.  Those antibodies start to decline when a person stops eating gluten, so the tests become useless. There is no reason a person can't have more than one digestive system disease.  So it is smart to be tested for celiac disease if you can get the testing arranged.  Any change in symptoms after stopping gluten is an indicator that gluten is causing a reaction of some kind.  It could be celiac, or it could be non-celiac gluten intolerance, (NCGI).  There aren't any reliable tests for NCGI yet. Welcome to the forum!
    • I have microscopic colitis. Having a bad flare of D.  On Budesonide for first time for this. It's helping some- only on it a week. Do you think gluten free would help even if tested negative a few years ago?  Was gluten free yesterday and no BM changes. Even had cramps this AM that wasn't really having before. Thank you!!
    • Do you want to tell us the name of it ans where it is located.  maybe someone else will be looking for a restaurant there. Also, it is very helpful if you go to Find me Gluten Free and review it.
    • Hi. Im currently under consultants at my hospital,  and have just been for a blood test to test for celiacs. My symptoms are.... Low weight (8stone and 5ft6tall) Joint pain,particularly my hips and lower back  Severe pain in my gall bladder area which happens spontaneously... Especially after eating foods containing gluten.  When i have foods with wheat in i pain in my  right side just under my bottom rib, i become a bit spaced out and cant focus on anything. Also get diahorrea aswell. I recently contracted C-Diff and was in hospital for 4 days very poorly. Im 29years old (female) and the doctors r trying to work out what is wrong with me. I have always struggled to gain weight,  even after having 2 children i am still only 8stone. I was just wondering if u think i could have celiacs?  The pain in my side has been on and off for 7years! And the last 3years its been severe. And it definitely comes on as soon as i have gluten/wheat.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined