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Mouth Sores
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hello,

this is my first post.

have been gluten free for almost 2 months. I tried this because of extreme fatigue, gas, anxiety and mouth sores. I have tested negative for celiac but was already gluten free for 5 weeks when tested.

I have had times felt almost normal ? I dont have to worry about the gas anymore- thank goodness, dont need to come home and immediately use the bathroom. I have been very careful about what I eat, checking everything. am starting to worry about cross contamination.., The mouth sores havent been as bad but just had an outbreak and it has me upset....

my dad was just tested for celiac and waiting for results, he has had ibs, takes 4 immodium daily and has neuropathy, he is now starting to go gluten free. I am taking my son in tomorrow to get tested as he has diarrhea regularly with fatigue and anxiety and he is willing to go gluten free?

I just was really hoping these mouth sores would go away?

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Mouth sores can be a symptom of B vitamin deficiency (esp B2). Mine just showed up after four months gluten-free. From what I hear, this is a pretty common deficiency due to malabsorption that I guess (hope) gets better with time. Hopefully others with more experience will chime in here...

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For me ,,mouth sores are a reaction to corn,, especially high fructose corn syurp

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Mouth sores (and fatigue) are commonly found in other AI diseases too. A few months back I had some sort of AI flare up with deep fatigue, arthritic joints and hair loss... when it first started I thought I was getting sick because of the fatigue, aches and pains, and a sore throat but it wasn't a sore throat, it was a round of big mouth sores (mostly on top of mouth). I had been 2-3 months gluten-free at that point so I know it wasn't diet. It was either thyroid linked of some other AI disease.

If you determine that it isn't food linked, you could consider other causes.

Hop[e you feel better.

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For me ,,mouth sores are a reaction to corn,, especially high fructose corn syurp

I saw that you had quite a few posts, I have never really done forums so this is all new to me and not really sure how it all works? would love to be able to email someone directly and just ask some questions? is that a possibility?

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I saw that you had quite a few posts, I have never really done forums so this is all new to me and not really sure how it all works? would love to be able to email someone directly and just ask some questions? is that a possibility?

There is a protection on this forum that does not allow new members to personal message other members. It is to prevent spam. Ideally, this forum works best when you post your questions and allow many others to answer with their experiences and info. It is likely others have the same questions you do. When you start to gain knowledge and experience, you can help others. You can learn a lot by reading other people's questions and answers, too.

You might want to start by reading this thread :

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Mouth sores can also be a symptom of Crohn's. Not to scare you, as mouth sores could also appear for less serious reasons. Point is, you should see a physician if you have not already done so and see if they will run some tests across the board.

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Before my celiac diagnosis I was getting mouth sores almost constantly.  If I ate anything contaminated with gluten I'd get blood filled blisters (immediately) while eating.  The worst were McDonald's hash browns (but only from certain McDonald's) and knarly artisan bread.  When the sharp edges of the bread poked my mouth a sore would develop.  The blisters would pop in a day or so, then the fun begins.  I'd suffer from the raw sore ulcer for several days to a week.  

 

I've been gluten-free for almost two years, but I still get these occasionally.  The most recent was after having work done on a tooth in prep for a crown.  

 

When they are bad, the outside of my face also hurts, like a burning nerve pain.  This latest has made the left side of my face hurt from my jaw to my eye.  

 

Besides taking tylenol or advil, what can I do to ease the pain or speed the recovery?  I've tried adding peroxide to mouthwash, but can't tell if this really helps or not.  

 

Anyone?  :(

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Are you using a toothpaste without SLR?  I started using one when I suffered from canker sores before my diagnosis based on a recommendation from a dentist.  It helped some so I still use it (I believe Pronamel is what I use).  I only get them occasionally now and they are far less severe! 

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For me, mouth sores are the first symptom that appears whenever I have ingested gluten. If I continue eating it, the blisters get bigger and bigger and are soo sore!

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There's a script you can get from your GP, it's friendly name is 'Swish and Swirl".  It will also temporarily numb the area.  It's good stuff.

 

Colleen

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I can get mouth sores within an hour after getting some gluten accidentally. 

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lysine  is  good for  mouth  sores....I hope  you  find  once  on the  gluten free for  many months  the mouth  sores  will become  less & less... But  do  take  probiotics  & digestive  enzymes..

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    • gluten intolerance, dairy intolerance and fructose
      I've never gone fructose free so can't help much with that.  But any fruit is probably a problem.  If you are serious about avoiding fructose you could do a search and print out a list of foods to avoid. http://www.mayoclinic.org/fructose-intolerance/expert-answers/faq-20058097 Yes, it very possible to have multiple food intolerance issues.  Many people have multiple food intolerances.  It might help to avoid any foods that are sweet for now.  Meat and most veggies are probably the way to go.  You may want to get some jerky to eat for snacks.  Peanuts might be ok but you'll need to verify that.  Boiled eggs are probably ok.  Most soda would be a no-no.      
    • Help
      Hi Courtney, You asked about dairy, and RMJ got it right.  Celiac disease destroys the villi lining of the small intestine.  Those villi make the lactase enzyme we need to digest dairy. Sigmoid colon thickening could be related to diverticulitis.  Which according to Wiki is a fairly common condition but doesn't always cause symptoms.  Diverticulitis can cause a problem if there is an infection though.  The sigmoid colon is part of the large intestine.  Celiac disease affects the small intestine, so celiac isn't likely involved.  I am not sure why the resident suggested celiac, unless there were some other reason to do so.  Possibly the weight loss, which could be explained by celiac disease.  Thickening of the colon may happen with Crohn's disease also.  And I'm not sure about UCD (ulcerative colitis disease) but it might cause that also, not sure https://en.wikipedia.org/wiki/Diverticulosis https://en.wikipedia.org/wiki/Sigmoid_colon http://biology-pages.info/G/GITract.html#pancreas http://www.ccfa.org/what-are-crohns-and-colitis/what-is-ulcerative-colitis/
    • So I've been glutened....
      Hi JMG, Since it's easy, and always fun, I'd blame your sister. That's what I do.  But seriously, if it's an ongoing problem, rather than an isolated incident stick with your first guess.  Then test it.   So get rid of the oat bread or the sister (her food) or anything that is a consistent part of your diet and you suspect could be the problem.  Of course processed foods are the most likely issue always. It's easy enough to drop back to a very few foods for a few days and see if things improve.  Eating with celiac isn't about having the most exciting diet, it's about eating a medically safe diet.  So it can be boring sometimes.  That's ok, being in pain is exciting but not so fun.   Boring is fine. You might ask your sister what brands of flour she used, and other ingredients.  Then check on those products for possible gluten issues.  If they turn out to be possible problems, make a note of it so you can avoid them in the future. My own sister has been gluten-free for years but she has made me sick several times with her "creations".  It really is best to trust your own cooking and nobody else's for at least 6 months as you are getting used to the diet and healing.  Then slowly branch out and add things in maybe 1 new item in a week.  Slow and controlled diet changes are the way to go.  Boring but safe.  Happy but slow.    
    • So I've been glutened....
      Jmg I am sorry to hear you are unwell. You have been so kind and helpful to me on the boards here. You deserve the time to rant too.   Everyone's suggestion of probiotic is helpful. I have taken them since the 1990's in spurts as needed but was told by my DC after this March glutening I should take it daily "for life". My local store ran out, (I buy the type that must be refrigerated so the manufacturer does not ship direct to customer.) I was ok first day without it but by day 3 I knew I had to locate some for the probiotic/ enzyme blend was necessary for me. I have still not healed well enough yet to be without. As others said it could be cc from sis or the food  industry. Within the food industry even with parameters in place errors can be made- hopefully not too often.  Often rare though especially if not designated facility.  It is hard to know some days what it was. I do hope you get better soon. Yes I do think it can affect the brain/mood. Happens to me a large amount can be immediately,  but a smaller amount by day 2 after glutening. I want to ban gluten everywhere in my environments, unrealistic I know,  but have only been able to do that at home.  Be kind and patient with yourself at this time as you would tell me. ((((((Hug)))))
    • So I've been glutened....
      Yeah I did all the bone broths and sauerkraut after my challenge. Although I wasn't very good at making sauerkraut... Its summer here now so I've eased up on the bone boiling, plus my local butcher is struggling to obtain them. As you say healing to the point where microscopic cross contamination doesn't get you would be a big win.  I was ok with coffee until last few days. I drank decaff black and would have several cups a day without issue. I'll be gutted if I can't handle it any more. I hadn't realised you could get gluten-free miso soup. Will have to look for that    
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