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Mouth Sores
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hello,

this is my first post.

have been gluten free for almost 2 months. I tried this because of extreme fatigue, gas, anxiety and mouth sores. I have tested negative for celiac but was already gluten free for 5 weeks when tested.

I have had times felt almost normal ? I dont have to worry about the gas anymore- thank goodness, dont need to come home and immediately use the bathroom. I have been very careful about what I eat, checking everything. am starting to worry about cross contamination.., The mouth sores havent been as bad but just had an outbreak and it has me upset....

my dad was just tested for celiac and waiting for results, he has had ibs, takes 4 immodium daily and has neuropathy, he is now starting to go gluten free. I am taking my son in tomorrow to get tested as he has diarrhea regularly with fatigue and anxiety and he is willing to go gluten free?

I just was really hoping these mouth sores would go away?

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Mouth sores can be a symptom of B vitamin deficiency (esp B2). Mine just showed up after four months gluten-free. From what I hear, this is a pretty common deficiency due to malabsorption that I guess (hope) gets better with time. Hopefully others with more experience will chime in here...

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For me ,,mouth sores are a reaction to corn,, especially high fructose corn syurp

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Mouth sores (and fatigue) are commonly found in other AI diseases too. A few months back I had some sort of AI flare up with deep fatigue, arthritic joints and hair loss... when it first started I thought I was getting sick because of the fatigue, aches and pains, and a sore throat but it wasn't a sore throat, it was a round of big mouth sores (mostly on top of mouth). I had been 2-3 months gluten-free at that point so I know it wasn't diet. It was either thyroid linked of some other AI disease.

If you determine that it isn't food linked, you could consider other causes.

Hop[e you feel better.

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For me ,,mouth sores are a reaction to corn,, especially high fructose corn syurp

I saw that you had quite a few posts, I have never really done forums so this is all new to me and not really sure how it all works? would love to be able to email someone directly and just ask some questions? is that a possibility?

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I saw that you had quite a few posts, I have never really done forums so this is all new to me and not really sure how it all works? would love to be able to email someone directly and just ask some questions? is that a possibility?

There is a protection on this forum that does not allow new members to personal message other members. It is to prevent spam. Ideally, this forum works best when you post your questions and allow many others to answer with their experiences and info. It is likely others have the same questions you do. When you start to gain knowledge and experience, you can help others. You can learn a lot by reading other people's questions and answers, too.

You might want to start by reading this thread :

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Mouth sores can also be a symptom of Crohn's. Not to scare you, as mouth sores could also appear for less serious reasons. Point is, you should see a physician if you have not already done so and see if they will run some tests across the board.

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Before my celiac diagnosis I was getting mouth sores almost constantly.  If I ate anything contaminated with gluten I'd get blood filled blisters (immediately) while eating.  The worst were McDonald's hash browns (but only from certain McDonald's) and knarly artisan bread.  When the sharp edges of the bread poked my mouth a sore would develop.  The blisters would pop in a day or so, then the fun begins.  I'd suffer from the raw sore ulcer for several days to a week.  

 

I've been gluten-free for almost two years, but I still get these occasionally.  The most recent was after having work done on a tooth in prep for a crown.  

 

When they are bad, the outside of my face also hurts, like a burning nerve pain.  This latest has made the left side of my face hurt from my jaw to my eye.  

 

Besides taking tylenol or advil, what can I do to ease the pain or speed the recovery?  I've tried adding peroxide to mouthwash, but can't tell if this really helps or not.  

 

Anyone?  :(

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Are you using a toothpaste without SLR?  I started using one when I suffered from canker sores before my diagnosis based on a recommendation from a dentist.  It helped some so I still use it (I believe Pronamel is what I use).  I only get them occasionally now and they are far less severe! 

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For me, mouth sores are the first symptom that appears whenever I have ingested gluten. If I continue eating it, the blisters get bigger and bigger and are soo sore!

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There's a script you can get from your GP, it's friendly name is 'Swish and Swirl".  It will also temporarily numb the area.  It's good stuff.

 

Colleen

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I can get mouth sores within an hour after getting some gluten accidentally. 

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lysine  is  good for  mouth  sores....I hope  you  find  once  on the  gluten free for  many months  the mouth  sores  will become  less & less... But  do  take  probiotics  & digestive  enzymes..

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    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
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