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Can't Keep Food Down
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I was diagnosed about 5 months ago and have been doing much better now that I've cut out all gluten related foods. There are still those times that I slip up and don't realize it (did you know chilis uses the same oil to cook their chips as the rest of their food!?). However these last two weeks I've been unable to keep any food down. A couple days after Thanksgiving I started feeling queasy after eating anything. I just ignored it since I'm not used to eating as much as I did on Thanksgiving since going Gluten-Free.

However since Monday 11/26 I haven't been able to keep any food down. No matter what food I try it just comes back up 5 minutes later. I've been writing down everything I eat to see if there's any kind of pattern in ingredients and can't find anything. It's gotten to the point where extremely strong food smells make me throw up. At this point it's been a week since I've kept anything down and have moved to a liquid diet of Gatorade/Pedialyte to stay hydrated and out of the hospital. I have no stomach pain or any other symptoms, I feel completely fine until I eat something.

I've met with my regular doctor and went through a list of possibilities. There's no stomach bug to speak of. He gave me some anti-nausea medicine that hasn't helped at all. I've got an appointment with a GI specialist Wednesday but I'm curious if anyone else has had this problem related to Celiac.

Edited by Tyler
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My daughter had symptoms that caused her to vomit up to 5 times a day. It seemed like she was having a gluten reaction. (She was diagnosed with Celiac when she was 17 months old and did vommit a lot as well as "D". She was diagnosed with Eosinophilic Esophaitus when she was 6. There is a knwon connection between EE and Celiac.

I also had gall bladder issues after being on a gluten free diet for years. That caused a lot of nausea and vommiting until I had it removed.

For diagnosing EE a scope with biopsy was done. (this can also rule out or diagnose a lot of issues that present with the same symptoms). For diagnosing a gall bladder problem a HIDA scan, gallbladder function testing was done.

My thoughts and prayers go out to you for a speedy diagnoses and recovery!

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It could be a lot of different things but for some short term relief I would ask your doctor about sublingual Zofran, it's the antinausea medicine that he/she may have prescribed for you but it'll dissolve under your tongue instead of you having to swallow it, it'll enter your bloodstream and since it's not entering your GI system should actually help with some of your symptoms (when I'm in the same place that you are the meds I take I just throw them back up...)

It is possible it is just an AWFUL reaction to gluten (I've had ones like this that last up to 2 weeks...) but it's good that you are seeing a GI doc.

Hope you start feeling better soon!!

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If you really aren't keeping anything down, they can give you a shot of it. It has really helped my daughter a few times. (kept her from needing an IV)

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Thanks for the help. I actually just got back from the ER :(

Got some much needed IV fluids which has helped a lot for the night. They did a CT scan to rule out any neurological problems, and found evidence of an Arnold Chiari Malformation, however they don't think that is causing this as it's just a small malformation.

So they gave me a prescription for protonix to see if that'll help with my symptoms and try to treat a possible Ulcer.

I do have my appointment with my GI specialist tomorrow so hopefully I'll learn something.

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    • I agree, it's very unlikely she doesn't have celiac disease.  Can you find a local celiac group to get a doctor recommendation from?  They might have the best idea of a local doctor who is familiar with celiac disease.  There is also a doctors sub-section of this forum which might help find one.  http://www.celiac.com/gluten-free/forum/6-celiac-disease-doctors/
    • Hi I'm newly diagnosed with coeliacs only 5 days ago so I have had 4 days gluten free , I felt more energised pretty quick but today have gone back to that sluggish feeling lethargic, could this be a withdrawal effect also did anyone have swelling whilst on gluten ?
    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
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