My eight year old son received a positive blood (TTG) IgA test of >100 about a month ago after I called his pediatrician and asked he get the test due to our family history and some recent symptoms we had that led me to suspect we might both have the disease. When the results came in the doctor's nurse called me right away, gave me the number of a Pediatric Gastroentonologist, and instructed me to continue him on a gluten diet for now. I did so, and his appointment is tomorrow.
Just last week I also tested positive. My nurse practioner had me make an appt to come in to get the results (mine was 96) and expressed her concern at the high number and it's potentional negative health effects. She gave me a referral for a gastroentronolgist (actually called and made an appt for me next week) and also wanted me to go get a full blood panel and a bone density test (which she also scheduled for me as I sat in her office). She just called and told me that my bloood panel showed my Iron was very low (10!) and prescribed an iron supplement that I'm supposed to start right away. My bone density test will be back in time for my appt next week with the gastroentronologist.
I'm impressed with my nurse practioners response, and now that I've seen it, I am wondering if my sons pediatrician shouldn't have ordered similar testing (blood panel, bone density) for him before his follow up appt with the pediatric gastroentronologist. I am assuming the pediatric gastroentronologist will order the tests now, so I'm waiting to talk with him, but I'm a little annoyed, and wondering if I should be getting my son a new pediatricain. Am I being too harsh? It is more typical for general practioners to order folowup testing prior to the Gastroentronologist appt, as my nurse practioner did, or leave it to the Gastroentronologist as my sons pediatrican did?
On a side note, my son's pediatrican actually has celiac disease! Which to me makes it more strange that she seemed to take the whole thing as seriously as my nurse practiorner has.
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