Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Fading Fast. And I'm Just Getting Started :(
0

14 posts in this topic

Please help! I was just diagnosed a few weeks ago and officially started my gluten free diet about 2 weeks ago. I noticed a difference immediately, which was very comforting. I've been extremely careful to avoid all sources of gluten and am trying my best to avoid cross contamination. Im just getting used to all of the ingredients i need to avoid to remain gluten free and its taken a lot of work and getting used to. I thought I was finally getting the hang of it, but I just discovered that I also have a reaction to corn! I started looking up ingredients that contain corn and the list is overwhelming! I am getting very discouraged as I didn't even know anything about celiac 2 months ago. I was really looking forward to my DH, bowel issues, anxiety, insomnia, irritability, brain fog, and dizziness going away for good but now I feel like I'm climbing Everest! Do I have to avoid all corn products in order for all of my symptoms to clear up? If so....what can I eat?!? It seems as though there is gluten or corn in everything! This is a lot to handle and my doctors aren't being much help. I feel like I'm alone in this!

0

Share this post


Link to post
Share on other sites


Ads by Google:

You are new here and I feel for you. After all, I was asking the same question about 6 months back when I was 2-3 weeks into my diet. . Many of us have had to go grain free to recover. I did a classic gluten free diet before I went grain free. I remember the dismay when I learned I needed to cut out more foods. I went through renewed withdrawl symptoms. Yet, I have plenty of good stuff to eat. I use nut flours, coconut flour, and bean flours as substitutes. My favorite is almond flour. It almost seems like the more foods I cannot have the larger variety I get in my diet. I just find more things I consider eating. You are going to learn alot more. It is very overwhelming and part of that is withdrawl symptoms. Your body is working very hard to recover. It will tell you more and more clearly what it cannot tolerate.

For me, meat and eggs have been my body's favorite food. These are gluten free and I hope you can eat them. I have really learned to enjoy beans.

I hope you will have some down time, and some time to learn some new tricks. This is a great place to learn how to put things into action into your own life.

Get well, and keep learning. Give yourself time to recover.

0

Share this post


Link to post
Share on other sites

From the middle of my Freshmen year of high school to almost the end of my Senior year of high school I was corn free (along with gluten free--have been since I was 2 yrs old), corn is MUCH harder to cut out than gluten, but it can be done. I would suggest doing the corn and gluten free thing for a while, then slowly start trying small amounts of corn (for me it was non-processed corn on the cob that I had for a while before being able to eat any sort of processed corn products). The big problem with corn is HFCS (high fructose corn syrup) and other corn syrups that are in most processed foods. I would suggest doing meats, veggies, rice, potatoes, beans, fruits etc. for the time being, it's going to be a lot of cooking but it'll give your intestines time to heal before you start introducing more of the processed foods that could be causing you problems.

Good Luck!

0

Share this post


Link to post
Share on other sites

flagbabyds is right--avoid processed foods for now. Then you don't even have to worry about reading the ingredients. Concentrate on eating only natural foods: meats, nuts, dairy, eggs, fruits, and veggies. Yes, lots of cooking.....but you'll feel better sooner. Someday you may be able to reintroduce corn into your diet. Until then, stick to natural foods--you won't be sorry!

0

Share this post


Link to post
Share on other sites

Yep, sometimes going only gluten-free doesn't work :/ I'm on a grain-free diet, besides a few other minor intolerances (coffee, citrus, honey, peanuts). Basically I eat fruit, meat, veggies, beans, meat, potatoes, meat and nuts. Two times a month I bake myself a cake using flaxseed flour or almond flour, but there are plenty other flours not made out of grains, as well. Two other times I make nut butter.

I have a very sensitive leaky gut, but I can see improvement. My symptoms when eating something my gut didn't like went down from D, light cramping and just general uncomfortableness to bloating, some gas and rough bowel movements.

It gets better, and soon you will be able to add more foods back in (:

0

Share this post


Link to post
Share on other sites




Thank you so much guys. I'm slowly but surely accepting this new reality. It's just hard. But it's great to have people here who understand and who have already been going through it all :)

0

Share this post


Link to post
Share on other sites

Hi Cderbogh,

You may be able to eat corn starch, but not corn protein. But that is something you will have to test to find out. All you have to do is put some corn starch in a glass of water and drink it. Many people who have reactions to foods react to the proteins, not the starch part.

Like someone said, if you stick with whole foods, you don't need toworry about it. Except for vtiamin pills and such, as they use corn starch or some other starch as a carrier.

0

Share this post


Link to post
Share on other sites

Thank you so much guys. I'm slowly but surely accepting this new reality. It's just hard. But it's great to have people here who understand and who have already been going through it all :)

I am in the same boat with you. I just started after fighting to accept it for months. Now that I am on the right track I am seeing more and more foods that are harsh on my system. I wonder though if it is because of the extensive damage to the small intestine? I have stuff come out whole that I ate the day before :( I take supplements though and that seems to be managing my nutrients for the most part :) This whole thing is like one massive head game! I think that even though I have had a rough time physically it has been equally hard mentally and emotionally.

0

Share this post


Link to post
Share on other sites

I am in the same boat with you. I just started after fighting to accept it for months. Now that I am on the right track I am seeing more and more foods that are harsh on my system. I wonder though if it is because of the extensive damage to the small intestine? I have stuff come out whole that I ate the day before :( I take supplements though and that seems to be managing my nutrients for the most part :) This whole thing is like one massive head game! I think that even though I have had a rough time physically it has been equally hard mentally and emotionally.

Hi,

You may have low stomach acid. You could try some Betaine HCL and some pro-biotics to see if that helps. When the gut is irritated and food moves through too quickly it sometimes isn't digested completely. Digestive enzymes may help also. It seems like our guts are often irritated at first on the gluten-free diet. All the bacterial changes could be part of that.

0

Share this post


Link to post
Share on other sites

Hi,

You may have low stomach acid. You could try some Betaine HCL and some pro-biotics to see if that helps. When the gut is irritated and food moves through too quickly it sometimes isn't digested completely. Digestive enzymes may help also. It seems like our guts are often irritated at first on the gluten-free diet. All the bacterial changes could be part of that.

Thanks very much! Before I was experiencing such high acidity that my guts (not really my stomach) were on fire all the time until it would end in diarrhea Now that I am not eating gluten, and a whole host of other things, I don't have that problem! Although I have swung in the complete opposite direction. As I has constipation now. Which is not great but it is a welcome change after what it's been like!
0

Share this post


Link to post
Share on other sites

Thanks very much! Before I was experiencing such high acidity that my guts (not really my stomach) were on fire all the time until it would end in diarrhea Now that I am not eating gluten, and a whole host of other things, I don't have that problem! Although I have swung in the complete opposite direction. As I has constipation now. Which is not great but it is a welcome change after what it's been like!

Celiac disease can cause gut paint, I wonder it that was the cause instead of high acid levels? Celiac attacks the villi lining of the small intestine, so it can damage a large surface area of tissue. That can hurt. Since your pain resolved after going gluten-free, it seems ilkely gluten was the cause, IE celiac disease or gluten intolerance perhaps?

0

Share this post


Link to post
Share on other sites

Oh honey, I feel your pain! I had the same thing happen... after going "gluten free" I also noticed I reacted to other grains.

I'd bet money that you react to rice, sorghum, all grains. We all do, it's just that some of us notice and some of us don't.

And that includes the starch... it's best to stay away from all forms of the foods you react to. Continuing the inflammation in your gut will continue to damage your health.

I highly recommend going on a paleo-ish diet. (I say "ish" because you can make some modifications depending on what you're specifically sensitive to, like for instance I can eat goat cheese just fine, so I do.) My doc put me on this diet, and it seriously saved my health. There are many gut-irritating foods that you might not suspect as well, including beans, nuts, and seeds. You don't have to cut them all the way out of your diet forever, but if you do for awhile, it will excelerate your healing process. (you can read more about it here: http://articles.merc...ks.aspx?np=true )

This supplement is also great for soothing your gut and helping it heal:

http://www.ovitaminp...repairvite.html

Don't fret! You can still enjoy many, many yummy amazing foods, and there are ways to easily modify existing recipes to fit your diet. :)

These are some recipe sites that I love:

http://www.againstallgrain.com

http://www.health-bent.com

http://nomnompaleo.com

All the best to you, and I hope you're feeling lots better soon. :)

0

Share this post


Link to post
Share on other sites

Thank you thank you! I think I am going to try the paleo-ish diet bc another week in and I'm having trouble with dairy. It gives me terrible insomnia too �� Seems like I'm reacting to someone new every week! Hopefully just cutting it all out will help and then I won't really hafta second guess everything. I just wish I could fast forward to a time when I have this all figured out. Thanks for the help and encouragement! I'm gonna check out those recipe websites too! :)

0

Share this post


Link to post
Share on other sites

I feel your pain. I went gluten-free, thought, hey, this is no big deal! Then the realization of the corn, dairy, then soy.....

In my case, just avoiding the actual corn, corn meal, corn starch, etc is not enough. Even the itsy bitsiest bit of citric acid in something makes me gain 10 lbs overnight and takes three weeks to go away. :( So discouraging! I was healthy two months out of 10, and that was when I only ate from my garden. No garden now.... ugh.

To address constipation, for those who have it.... make sure you get enough magnesium. That helped me. Then I got a fiber called Heathers Tummy Powder. Nothing like psyllium (which my body began to reject), it actually feels soothing to the guts, instead of violent. Also, I began ground flax meal daily trying to get Omega 3s, and that is helping also.

I also had to cut out all dairy for 6 months. I got brave enough to try butter again, and have not reacted to it or whipping cream. (the fat of the dairy)

For insomnia.... this was a duh moment for me. I always slept 10-12 hours a night, before I stopped grains. I now realize I only need 5 hours of sleep at night. I set my alarm to wake me up at 5 am, so I don't oversleep and cause trouble the next night... and I go to bed at midnight. My tossing and turning has stopped, I now sleep when I am in bed. Ahhhh......

Hang in there, everyone! It has GOT to get better. At least I am hoping it all will.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,755
  • Topics

  • Posts

    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
    • I admit, my blood panel was "mildly positive" with only the DPG IGA being the positive, yet I had a Marsh Stage IIIB (pathologist report) though my visual on the endoscopy was fine.  celiac disease can be hard to diagnose, that is for sure.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,688
    • Most Online
      3,093

    Newest Member
    AbuBakar
    Joined