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Withdrawals? Please Help.
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4 posts in this topic

I've been "gluten free" for over a year now. I only say "gluten free" because I still had intermittent bouts of illness and only recently found the final source of gluten in my life. I'd attributed my illness to accidents until I read about Rice Dream and their controversial barley enzymes.

Holy crap! I've been drinking that for a while. Before I even knew what gluten was. Why didn't I look that up?

Anyway, I changed milk brands 5 days ago and rejoiced in slaying the final bit of gluten in my life.

After a day or so, my stomach was constantly in discomfort. I was gassy, had some mean D, and even more rampant dehydration with it. A day later, the symptoms were still there, along with a headache and the feeling that I was going to pass out. I felt week, I couldn't understand what was going on. Then it clicked and searched online for Gluten withdrawals.

I just want some advice, because I had no idea it was going to get so much worse before it got better! I've slept with the garbage next to my bed for the last 3 nights.

I'm already taking probiotics and doing my best to hydrate myself... I've seen people say it lasted weeks, even months! Should I expect a quicker recovery since I was ingesting a relatively small amount of gluten, rather than an average gluten-filled diet? Is there anything else I can do to make this go even slightly quicker?

Thank you!

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Oh, so sorry to hear you have suffered that. I also have a gluten intolerant friend that uses rice dream consistently. Could you tell me where you found the information about barley in Rice Dream? I take it it is not on the label? I can't tell how long it will take to get better, but you can help your body by getting plenty of water and sleep. Take some down time if you can. Watch out for gluten in everything.

Get well soon,

Diana

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Oh, so sorry to hear you have suffered that. I also have a gluten intolerant friend that uses rice dream consistently. Could you tell me where you found the information about barley in Rice Dream? I take it it is not on the label? I can't tell how long it will take to get better, but you can help your body by getting plenty of water and sleep. Take some down time if you can. Watch out for gluten in everything.

Get well soon,

Diana

You'd do a great, great service to your friend by telling him/her about this. Thanks for the good wishes.

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http://www.celiac.co...970-rice-dream/

http://www.celiac.co...luten-free-now/

You'd do a great, great service to your friend by telling him/her about this. Thanks for the good wishes.

One of those threads is 6 years old and the other 4 years old. You might want to check with the company for any up to date info on a product.

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    • Thanks for replying. You've been very helpful and given me some ideas of trying a few foods in small amounts. I wish I had rotated food months ago then it might not have got so bad. Thanks again and I wish you well.
    • Until my recent blood test results I've been having cinnamon and mint tea in the mornings, which seemed to have a positive effect calming the digestive system (and tastes good too!)  After the first step of diagnosis with high Iga TTg I took at look at the cinnamon sticks I make the tea with and it says "packed in a factory that may contain wheat, corn etc. etc." so that I guess would sound alarm bells for many I reckon. That said I'd imagine the way most of these herbs and spices are harvested isn't exactly gluten-free friendly yet I've seen quite a few recipes using it. How are people getting around this as I can't see any specific gluten-free certified cinnamon products out there? Really could do with my tea back P.S. I also have chamomile tea using the raw flowers which may have a similar background but seem to be less of a risk somehow?
    • If I do have to go back on gluten for a bit it'll at least be a temporary relief from the withdrawal symptoms (or at least what I hope are just withdrawal symptoms). Today's returning malady is acid reflux, something I'd thought I'd seen the back of recently. Really need that to calm down as PPIs the doctor gave before were evil medication and caused 10x more problems, possibly the worst I've ever felt whilst on those so won't be going back there! Although the scales seem to have stabilised in terms of weight loss in myself I feel like I'm wasting away at present, what with the random pulling sensations in muscles and tender head area I'm just scared for what other illnesses may be laying in wait related to the celiac genes  Think I'll head back for the ESR and CRP blood tests next week as the shoulder and temple pains are really worrying me right now, could just be the gluten intolerance but the other options are terrifying if not caught early. So much uncertainty, apart from the fact that none of this ever gets fully better (if at all)...
    • You're welcome! Good luck! And if you get nowhere there, remember, the higher you go, the nicer they get. Skip straight up to the top brass.
    • I'm sorry you've been having such a rough time.  I'm thinking you may have accidentally ingested something containing gluten, and that's what caused your reaction.  A lot of people will react quite severely to even a tiny bit of gluten.  That's why there is so much on here about avoiding cross contamination.  Even though you've been diagnosed with NCGS, you still need to live as though you have actual celiac disease, and be very careful not to cheat.  Your body will punish you for it.  :/  In the meanwhile, nurture yourself kindly and gently, just as you would after a severe bout of food poisoning or intestinal infection.  Comfort foods, like broths and soups and smoothies.  You might want to avoid lactose for a few months too.  Sometimes we lose our ability to digest lactose when our intestines are damaged and vulnerable like yours is right now.   And remember healing takes time.  So does learning the gluten free lifestyle.  Expect some setbacks occasionally.  You WILL get better!
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