Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Wheat + Sleep = No Pain?! I Think I Found My Cure! (Possibly?)
0

10 posts in this topic

Hi it's me again, yes I know, I've been up to challenging wheat again... I know, I'm stubborn... but I finally figured something out.

For the last month I ate danishes (made from wheat) every morning for a month and then went straight back to bed to nap, and an hour later there was no pain!!

I did that because I thought that my body was low on serotonin (a neurotransmitter) when my Carcinoid urine test (for some other condition) came back low (but not clinically significant low) on serotonin by-product.

I'm now up to eating two wheat danishes every morning, normally that would send me to the ER, but I go immediately back to sleep and there is no pain.

Has anyone else heard of being NCGI and then trying to sleep more and then being able to eat wheat again? Could I have just been low on serotonin all this time?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi it's me again, yes I know, I've been up to challenging wheat again... I know, I'm stubborn... but I finally figured something out.

For the last month I ate danishes (made from wheat) every morning for a month and then went straight back to bed to nap, and an hour later there was no pain!!

I did that because I thought that my body was low on serotonin (a neurotransmitter) when my Carcinoid urine test (for some other condition) came back low (but not clinically significant low) on serotonin by-product.

I'm now up to eating two wheat danishes every morning, normally that would send me to the ER, but I go immediately back to sleep and there is no pain.

Has anyone else heard of being NCGI and then trying to sleep more and then being able to eat wheat again? Could I have just been low on serotonin all this time?

please tell me you are joking .
0

Share this post


Link to post
Share on other sites

In so many ways, that does not make sense. There are plenty of ways to get more serotonin without eating wheat.

0

Share this post


Link to post
Share on other sites

As far as I can tell by your signature, there is no reason for you not to eat whatever you want. If wheat doesn't bother you, good for you.

0

Share this post


Link to post
Share on other sites

Have often thought that responses here are occasionally aggressive, patronizing and just plain mean especially to some poor soul who fell off the cart and made the mistake of eating some gluten.

However, can't make head nor tail of this post and would like to say I'm speechless (except obviously not)!

At the end of the day a danish each morning (or two ?) is not healthy eating for anyone and I'm sure it's not 'the answer' to anything either.

0

Share this post


Link to post
Share on other sites




Sandra, since all of your testing--up to and including a pillcam--plus the most telling of all, the diet challenge are negative, it seems to me that it is safe to say that you don't appear to have a problem with gluten. Perhaps you might consider that your symptoms are due to other issues?

I reiterate this because the title of this thread--"I Think I Found a Cure" is misleading.

0

Share this post


Link to post
Share on other sites

I would agree that gluten is not your problem, if you feel the need to sleep and have mood swings after consuming carbs I would say you are more on the line of diabetic. If you had a gluten intolerance NOTHING but eliminating the food will alleviate your symptoms, the reason why many people are here is because there was no relief to any symptoms which lead to a confirmed celiac or NCGI diagnosis.

I guess the reason why some responses can seem hostile is because many people here have been through A LOT, a lot more than you think and through all the B.S (not anything against you) they have a certain exterior defence and have a low tolerance for things that are not factual in the basis of celiac and NCGI. Please don't take offence to any of the responses, everyone here has good intentions at heart but can sometimes come across as mean because of their low tolerance for the non-factual info that lead them to be undiagnosed for so many years.

If you truly believe that you have a gluten intolerance and uphold that you feel you have found what works for you than do what you have to do. Unfortunately the information you have provided does not lead members to believe you have either issues (and trust me if they thought you did they wouldn't lie to you) and we believe that you may be better off looking at other issues and considering the placebo effect in a case such as yours.

If you need any specific info please continue to post or if you feel more comfortable send me a private message, I will help you out to the best of my ability and knowledge.

Edit- Oops, just noticed that you were not the one who commented on the hostility, I will leave the comment there anyway, it is important to remember for anyone who feels that some responses can be heated.

0

Share this post


Link to post
Share on other sites

The suggestion to look at blood sugar makes sense to me. You may be getting sleepy after eating the danish due to the amount of sugar in it and the carbs. You can get a blood glucose test kit at a pharmacy and check your own levels. It isn't hard to do. You should test right before you eat, an hour after eating, and 2 hours after eating. Don't eat anything else in the time period when you are testing. That will give you an idea of how your body responds over time.

0

Share this post


Link to post
Share on other sites

I know this sounds bizare, and it's very frustrating, maybe it's not a total "cure" but I found something at least.

I just know that if I force myself to sleep after eating wheat, there is considerably less pain. If I do not sleep much and eat wheat, then I have severe pain, thrashing, ER, etc, etc... (I don't feel particularly sleepy after eating danishes)

So that's all I know so far, and I'm just trying to figure out what could this be, I have to find an explaination to what I have.

0

Share this post


Link to post
Share on other sites

Gluten makes me tired. Or it can make my heart race and make me swell and still tired. These are immediate reactions. Now if you are dealing with pain and sugar and wheat are making you better it is because you are getting high off of it. I believe it's more a Dopamine issue than a Serotonin issue but I am not a doctor. I do know you can become addicted to sugar and the very things that are killing you like Gluten so temporarily you will not only feel ok but better. However, if you are Celiac you will have intestinal damage symptomatic or not, but again I am not a doctor. Good luck to you.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined