Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hi All
0

7 posts in this topic

Hi all,

My name is Ben, I'm 27 years of age.

Going back a couple of years now, I started to notice that I had a bout of diarrhea pretty much the moment I had finished eating my lunch at work. At first I put it down to some sort of sickness or - heaven forbid - simply signs of age! The diarrhea would never last (like when you get a proper illness) - it would pretty much vanish the moment I had been to the toilet.

Two years later I'm still experiencing it. I noticed that it was always after I had eaten my lunch. I also noticed that I didn't tend to get the same problems over the weekend (which I realised could possibly because I don't eat the things I eat on a weekday, over the weekend [i.e. sandwiches etc] as I tend to have cooked meals on the weekend).

Recently however, I have started having the same problem but in the morning - when I prepared my sandwiches/lunch for work!

I have no idea why it has taken me as long as it has to do anything about it, but this morning I decided to "Google it".

My first search bought up lactose intolerance. Reading that, some symptoms did make it sound a possibility. Then it had a link to IBS. This sounded less like my issue in all honesty. Finally I seen a link to Celiac Disease. By the time I had read the article I was 99% sure this is what I suffer from.

Going by the sypmtoms, I should probably consider myself quite lucky. My symptoms are literally limited to diarrhea. I don't get many headaches so those that I do get are unlikely (well, I think) to be as a direct result of Celiac Disease. I am however tired ALL the time - so I guess this could very well be a symptom related to it also.

However - and I'm not sure if this is possible - as I mentioned earlier, I've now started getting a bout of pretty much instant diarrhea the moment I even TOUCH bread!?!? For around the last 6 months (maybe a little longer) I get a bout come on the moment I start to prepare my sandwiches. I know it might sound insane, but I definitely don't eat anything when I'm preparing them so it's all that I can think of?! Is this known/common??

Given the above, do you think it sounds likely I suffer from Celiac Disease?

I guess I should probably still see a doctor just in case, but from what I've read I personally think it seems as though I am a sufferer.

I must admit, it's a fair daunting thought as it's pretty much a lifechanging condition. Obviously all of you will know exactly what it feels like but - yeh - did it feel this daunting to many of you?!

Thank you so much for taking the time to read. Hopefully I'll hear some of your replies shortly.

Many thanks,

Ben

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome Ben!

You certainly could have Celiac Disease or Non-Celiac Gluten Intolerance.

It is VERY important to have your doctor order a full celiac blood panel BEFORE you remove gluten from your diet. The antibodies measured in these tests are produced in reaction to gluten ingestion.

Also a good idea to be tested for nutritional deficincies - celiac can cause malabsorption issues.

Hang in there - make sure all tests are completed and then remove ALL gluten for at least three monts as elimination is the only test for NCGI.

0

Share this post


Link to post
Share on other sites

Welcome Ben!

You certainly could have Celiac Disease or Non-Celiac Gluten Intolerance.

It is VERY important to have your doctor order a full celiac blood panel BEFORE you remove gluten from your diet. The antibodies measured in these tests are produced in reaction to gluten ingestion.

Also a good idea to be tested for nutritional deficincies - celiac can cause malabsorption issues.

Hang in there - make sure all tests are completed and then remove ALL gluten for at least three monts as elimination is the only test for NCGI.

Thank you for the reply Lisa :)

I'll take your advice and get a doctors appointment asap! I will also continue with my current diet until I've see the doctor.

Thanks again!

0

Share this post


Link to post
Share on other sites

Welcome to the board. I agree that getting tested is a good idea. It may not be the making of the sandwiches that is getting you every morning it may be the timing. There are some of us that will have D every morning on gluten, after any gluten meal, alternating C and D or even just C. Do give the diet a good strict try after all celiac related testing is done as false negatives are not uncommon.

0

Share this post


Link to post
Share on other sites

Greetings Ben,

I sure hope you have discovered the solution to your problems before it got to bad. Please let us know what happens for your testing. I have reacted to having barley flour in the same room, so I don't think it is impossible to have problems when preparing sandwiches. After testing maybe you can bring a thermos full of warm food for lunches.

Get well,

Diana

0

Share this post


Link to post
Share on other sites




Yes, I found it daunting when I went through the list of symptoms! It explains 20 odd years of symptoms.

It does start to get manageable, and you have some time to read and prepare while you get testing done. Someone will be along with a good list for you soon...

The folks here are great for any wobbly moments as well as great advice.

Welcome and good luck with some answers

0

Share this post


Link to post
Share on other sites

Here's the list of the celiac tests to be done:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

Do get all of them (insist) because sometimes you end up positive on only one or two - but that's all it takes. :)

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,500
  • Topics

  • Posts

    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined