Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lectins, Leaky Gut & Celiac Disease - The Connection
0

4 posts in this topic

I was diagnosed with celiac disease in March of this year (2012) after experiencing an on-set of the following symptoms:

-EDEMA (extreme tissue swelling all over the body that never seemed to subside)

-SINUS CONGESTION and SCRATCHY THROAT

-Achiness

-Fatigue

-Anemia (falling asleep all of the time)

-Severe cravings/constant hunger

I immediately eliminated ALL gluten. I felt better for a few weeks, then I felt progressively worse. I've toyed with elimination diets of all sorts for the past six months. I have been able to pinpoint some problematic foods, but what throws me for a loop, is that some herbs, and possibly some vegetables seem to bother me.

I've recently discovered that many celiacs are sensitive to all lectins when they have a leaky gut. I have felt better cutting these well-known lectins from my diet

-legumes

-dairy

-all nuts

-soy

-nightshades & citrus

However, I feel there are some other things lingering in my diet that contain high lectin levels. Is it true that garlic and onion are high in lectin? Are there any fruits and veggies that are known for high lectin content??

0

Share this post


Link to post
Share on other sites


Ads by Google:

From my reading and experience most lectin-intolerant people are not intolerant to all lectins, but rather specific groups of lectins. You have listed most of the groups up there. Soy and peanuts belong with the legumes, or at least I put them in the same class. I avoid the peanuts not because of trialling them but because I do not tolerate soy. I have no problems with any dairy lectins at this point. I do not know the lectin content of garlic and onion and they do not give me a problem; they are, however, quite high in salicylates which many celiacs have a problem with. I tolerate all tree nuts. One of my big no-no's is corn and the outer skin of the corn kernel is very high in lectins to prevent insect predation. Corn was my first identified reaction to food. And it was a revelation to me when I found out about lectins :) It explained so many things.

Have you actually individually trialled all those food groups, i.e., challenged each one individually? Because if not you may not need to eliminate them all. It is good to eliminate them all to start with (I would include the corn - and that is a hard one ) and then do an individual challenge of each group? If one food of a group is okay, then try another in the same group the following week, eating small amounts of it each day. Continue testing until you know your response to each group or you may eliminate things unnecessarily.

Have you addressed the issue of healing your leaky gut? Because, as I found to my detriment, until you do you may continue to "lose" other foods which infiltrate your blood stream the same way gluten does.

I would be happy to discuss this some more with you.

1

Share this post


Link to post
Share on other sites

I was diagnosed with celiac disease in March of this year (2012) after experiencing an on-set of the following symptoms:

-EDEMA (extreme tissue swelling all over the body that never seemed to subside)

-SINUS CONGESTION and SCRATCHY THROAT

-Achiness

-Fatigue

-Anemia (falling asleep all of the time)

-Severe cravings/constant hunger

I immediately eliminated ALL gluten. I felt better for a few weeks, then I felt progressively worse. I've toyed with elimination diets of all sorts for the past six months. I have been able to pinpoint some problematic foods, but what throws me for a loop, is that some herbs, and possibly some vegetables seem to bother me.

I've recently discovered that many celiacs are sensitive to all lectins when they have a leaky gut. I have felt better cutting these well-known lectins from my diet

-legumes

-dairy

-all nuts

-soy

-nightshades & citrus

However, I feel there are some other things lingering in my diet that contain high lectin levels. Is it true that garlic and onion are high in lectin? Are there any fruits and veggies that are known for high lectin content??

Do not overlook the obvious: What is your position on alcohol. For me it was #1 contributor.
0

Share this post


Link to post
Share on other sites

Ditto what Mushroom said, except I am currently intolerant of ALL the high lectin groups with the exception of onions and garlic for which I am very grateful - they add flavor to almost everything I eat.

Eggs also contain high lectin count -- I thought I was fine with them after elimination trials -- turns out I was wrong -- the reaction was not as sudden as with my other intolerances, but when I had a major flare/setback I finally thought what foods are left that I haven't removed -- removed eggs two months ago - have improved greatly -- but it's a combination of removing eggs and finding that one of my worst intolerances is high histamine foods. If you bloat after eating foods that are normally safe for you -- like leftovers of a meal that was safe or bananas or red wine bother you -- take a look at the high histamine list too.

Hang in there -- this silly food puzzle seems impossible to figure out at times -- but it is doable.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,411
    • Total Posts
      917,650
  • Topics

  • Posts

    • Weeks in and feeling no better
      Following my official diagnosis of celiac disease I went gluten free many weeks ago, but I have noticed absolutely no improvement in my health since.  I still get a plethora of muscle aches and pains almost constantly, I still feel tired, I still get lots of headaches and I still feel very foggy.  Is this normal? I see health sites suggesting some symptoms go within a few days of the diet while others take a bit longer but I have had no improvement whatsoever.  Thanks
    • Villous atrophy with negative tTG IgG/IgA, high Gliadin IgA!
      According to endoscopy report, i'm parasites free. but i have high IgG to candida albican, which may indicate recent or current infection with it. i spoke with my doctor, his reply was like forget about candida or SIBO (small intestine bacterial overgrowth, they only appear in immunocompromised patients! 
    • Italian pasta
      Hi! You will have no problems to eat safe in Italy! Food labeling is much better in Europe  (you can fully rely on labels, they list everything). The only wheat celiacs can have is gluten free wheat starch, used in Schär products and many swedish ones. As italian cuisine is based on pasta and bread, there are a lot of gluten free options, most restaurants are aware of celiacs. All kids age 6 in Italy are screened for celiac. You will find lots of options on glutenfreeroads.com   Enjoy your trip!!
    • Continued Symptoms
      Since she is back on the charts her doctor is generally pleased with her condition. I don't know that I've made it clear enough how persistent and ongoing some of this is for her. She improved so dramatically when we made her gluten free, but there are these couple of nagging issues. I'm beginning to wonder if she has some other food sensitivity... Regarding the speech - we homeschool, will the public schools evaluate her anyway?
    • Italian pasta
      My wife and I are traveling to Italy in October and will be eating authentic food over there obviously. I'm extremely sensitive to gluten and extremely celiac. I have heard rumors that people that are celiac don't have the reaction to the wheat pasta in Italy due to the processing of the wheat is different than that of the states. I am curious how much truth to this there is and if anyone has had any experience with this issue or recommendations as to what to avoid. I've never been outside the states and am fearful that I won't be able to eat over there haha
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,543
    • Most Online
      1,763

    Newest Member
    Sally888
    Joined