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What Is The Deal With Quinoa? Gluten Free Or Not?
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I was under the impression that quinoa is gluten free. At our last CSA support group te leader mentioned that there is a new study out saying many varieties of quinoa are now found to have gluten in them. She is out ofte country kow for the next couple of meetings but I'm curious if anyone has heard of this or has any info? I love quinoa and quinoa pasta but have put off purchasing any until I'm educated further.

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Really??? Are you sure it's not just down to manufacturing? I've been eating quinoa since diagnosis nearly every other day and I have had no gi problems? Like you, I also hope it's gluten free! Apparently it's not even a grain, so we should be ok!

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I eat quinoa pastsa and have never has any problems with is and had never heard of bad gluten being in it.

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If you wish to be technical, yes it does have gluten in it, just not the type that celiacs react to.

I believe i heard something about that. Some strands may be cross contaminated or something. One of the other members on here would know more.

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Biologically, "gluten" refers to the prolamine protein in a grain--any grain. Grains are members of the grass family, Poaceae, also known as Gramineae. This family includes the grains we refer to as gluten: wheat, barley and rye. Oats are also in this family.

Quinoa is not a true grain. It is a member of the Amaranthaceae family. As such, it does not contain gluten in either sense of the word.

Contamination with a gluten grain is possible. I eat quinoa with no problems.

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If you wish to be technical, yes it does have gluten in it, just not the type that celiacs react to.

I believe i heard something about that. Some strands may be cross contaminated or something. One of the other members on here would know more.

Yes. A lot of people get stuff like that wrong. When my daughter tested as intolerant not only to wheat but gluten, I remember the Dr. going off on me when I questioned him about the gluten thing. He told me that a lot of food has gluten in it, including corn. Which it does. But again, not the same gluten that people here have to avoid. Unless of course they have other issues with corn. But he himself was very confused and told me to feed her spelt. Which I did and of course she got sick. Because not only is spelt a form of wheat but it contains the gluten we refer to here! Another Dr. told me that she could have sprouted grains because once they were sprouted they became a live food. And yes, she got sick from that too.

Sadly she is now intolerant to quinoa! Corn and quinoa pasta was a favorite for making pasta salad.

AFAIK there is none of the gluten that needs to be avoided in quinoa unless of course it is cross contamination from the way it is grown, processed or packaged.

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I know that's she was talking about cross contamination on a regular basis, I am just not sure which brands or types of quinoa. She will be back I'm January and I will definitely ask for the info that she had found.

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I saw a story on this on this very website. http://www.celiac.co...iet/Page1.html. I was wondering if this would raise a discussion. Could have started the thread myself, but I'm not particularly fond of quinoa.

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Quinoa is safe and gluten-free. Some of us have problems with other foods - the extremely high lectin in quinoa is the reason my damaged gut can not digest it now - I hope to add this nutritous food back into my diet at some point.

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Quinoa is safe and gluten-free. Some of us have problems with other foods - the extremely high lectin in quinoa is the reason my damaged gut can not digest it now - I hope to add this nutritous food back into my diet at some point.

The linked abstract says that 2 types ("cultivars" as it puts it, whatever that means) of quinoa activate T cell responses like gluten does in labortary cultured tissue taken from celiacs.

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The linked abstract says that 2 types ("cultivars" as it puts it, whatever that means) of quinoa activate T cell responses like gluten does in labortary cultured tissue taken from celiacs.

Perhaps...I have heard of this T-cell response in Celiac Disease with other foods, but cannot find any science to back this up right now. What I know for certain is many foods that are high in lectins are difficult for my damaged gut to process - quinoa is one of these items for me.

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Well, this AJCN study report is enough science to give me pause. This conclusion says two varieties of quinoa could trigger an immune response in some celiac patients.

http://ajcn.nutrition.org/content/early/2012/06/28/ajcn.111.030684.abstract

Since I'm still in the early, super-sensitive stages, I'm staying away for now (like I do with oats).

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I agree with gatita, after so many accidental glutenings and setbacks last year I always prefer to be safe rather than sorry. I don't even consider oats. I have had quinoa pasta with no issues three times in the past year and a half but this definitely gives me pause. The leader of our CSA support group said that you could call the manufacterer to see what strains of quinoa they use but I don't see the guilty parties listed so I wouldn't know what to compare it to anyway.

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not sure...think I'm being misunderstood -- I am not dismissing the cited journal -- I meant I could not take the time right now to look up the other research I have seen that agrees with proteins other than wheat/barley/rye causing T-celll reactions in some with Celiac Disease.

sorry for any confusion -- my main laptop crashed so i will refrain from discussing such matters for now.

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I had a bad reaction when I ate Quinoa. I did find an article that although it is gluten-free it is not recommended for Celiacs.

I know I cannot eat Quinoa.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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