Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hypothyroidism Is Changing With Gluten-Free Diet - New Poster
0

9 posts in this topic

25 years ago I was diagnosed with Hypothyroidism and have been taking Synthroid in increasing dosages. The last level was 1.25mcg.

Last Nov 2011, I found out by accident that I was having an immune system response to gluten. I did a comprehensive stool analysis looking for information on what was happening in my gut. I was squarely focused on probiatics, yeast, infection. Gluten wasn't even on my radar. I did the test because I had been diagnosed with diverticulosis and had 3 infections in my colon in 18 mths. I figured the antibiotics (nasty tasting) had blown out all the good bacterium.

The conclusion was that I needed serious probiotics to repopulate my intestinal tract but I was also showing a non-celiac immune response to gluten at 3x the normal levels. The Doc recommended that I eliminate it completely....forever. To say that I was floored is an understatement, I honestly didn't know where to start. But, I went with it.

The first pleasant surprise was within a week of my new gluten-free diet was the persistent sinus drip in the back of my throat vanished. The next almost immediate thing was the regular bloaty feeling I always lived with vanished. I was thrilled beyond belief. This coupled with intensive probiotic treatment was that gastric processes resembled something akin to normal for the first time in years and years.

Fast forward a whole year now, and something even more miraculous has occurred. My thyroid bloodword started changing around the end of the summer in the direction of being over medicated with Synthroid. By October, I had weaned myself off it completely. The medical journals I read said it would take about 6 months gluten-free to see a difference in symptoms and it was almost that to the day that my blood work started to show a shift.

I've been Synthroid free for over a month and have never felt better. The most notable changes are the quality of my skin, nails & hair. My thinning hair is actual thickening up. I even see new growth in my eyebrows. My hypo pals will understand that one. My energy levels have never been higher. The constant yawning throughout the day...gone! I would LOVE LOVE LOVE to believe that my hypothyroid diagnosis of decades ago had to do with an undiagnosed gluten intolerance.

However, before jumping up and down (which I have the energy to do these days), I am checking back in with my Doctor. Not sure if she will believe me about the gluten/thyroid connection but she will do a thyroid panel to see what my stats are at this point. I'm hoping for a Xmas miracle that my thryoid has healed itself and can manage without hormone supplements.

This post is not so much a question as an "I needed to share my joy" moment with people I know would understand.

Thanks :)

1

Share this post


Link to post
Share on other sites


Ads by Google:

25 years ago I was diagnosed with Hypothyroidism and have been taking Synthroid in increasing dosages. The last level was 1.25mcg.

Last Nov 2011, I found out by accident that I was having an immune system response to gluten. I did a comprehensive stool analysis looking for information on what was happening in my gut. I was squarely focused on probiatics, yeast, infection. Gluten wasn't even on my radar. I did the test because I had been diagnosed with diverticulosis and had 3 infections in my colon in 18 mths. I figured the antibiotics (nasty tasting) had blown out all the good bacterium.

The conclusion was that I needed serious probiotics to repopulate my intestinal tract but I was also showing a non-celiac immune response to gluten at 3x the normal levels. The Doc recommended that I eliminate it completely....forever. To say that I was floored is an understatement, I honestly didn't know where to start. But, I went with it.

The first pleasant surprise was within a week of my new gluten-free diet was the persistent sinus drip in the back of my throat vanished. The next almost immediate thing was the regular bloaty feeling I always lived with vanished. I was thrilled beyond belief. This coupled with intensive probiotic treatment was that gastric processes resembled something akin to normal for the first time in years and years.

Fast forward a whole year now, and something even more miraculous has occurred. My thyroid bloodword started changing around the end of the summer in the direction of being over medicated with Synthroid. By October, I had weaned myself off it completely. The medical journals I read said it would take about 6 months gluten-free to see a difference in symptoms and it was almost that to the day that my blood work started to show a shift.

I've been Synthroid free for over a month and have never felt better. The most notable changes are the quality of my skin, nails & hair. My thinning hair is actual thickening up. I even see new growth in my eyebrows. My hypo pals will understand that one. My energy levels have never been higher. The constant yawning throughout the day...gone! I would LOVE LOVE LOVE to believe that my hypothyroid diagnosis of decades ago had to do with an undiagnosed gluten intolerance.

However, before jumping up and down (which I have the energy to do these days), I am checking back in with my Doctor. Not sure if she will believe me about the gluten/thyroid connection but she will do a thyroid panel to see what my stats are at this point. I'm hoping for a Xmas miracle that my thryoid has healed itself and can manage without hormone supplements.

This post is not so much a question as an "I needed to share my joy" moment with people I know would understand.

Thanks :)

I am thrilled for you as having thyroid disease for that long rarely ends up with your results after going gluten free. You may not have Hashi's thyroid, which is autoimmune so this could explain your results. I totally get the eyebrow thing too! ;) I have had Hashi's for over 20 years and now that I am gluten free (7 years ago), my thyroid function is better and more stable but I still am on thyroid replacement hormone. I was an older, diagnosed celiac so the damage was pretty bad but it has gotten worlds better due to the gluten free diet. And yes, gluten is a HUGE aggravator to the thyroid gland.

Please make sure you have blood work done to make sure things are good but judging from your improvement with thyroid related stuff (nails, skin and hair) you already know that!

I hope it continues to improve for you!

0

Share this post


Link to post
Share on other sites

Thank you for posting this! I am a thyroid-diseased person, too, though mine is certainly an autoimmune condition. It is the reason why I am trying to eat gluten-free, even if the blood panel found nothing. Let us know how it goes!!!

0

Share this post


Link to post
Share on other sites

I will certainly post updates to my situation. I don't believe my hypothyroid was ever diagnosed as Hashi's. The doctor described it as more non-specific hypothyroidism. Always bugged me at some level not to know "why" I was being diagnosed. Only seems to have taken a quarter century to find out. I'm really hoping that all those years of untreated gluten responses haven't caused permanent damage. I've always been a good healer generally so I'm keeping the faith and saying a prayer on this one.

The one thing I have found as I have gotten older is how entrenched the medical profession is in information they consider facts that are actually no more than anedoctal dogma passed down from the historical past. The "you will forever be on hormone replacement" idealogy is something I would love to stand back and say "HAH!"

I'm a medical rabble rouser that way. I drive my Doc crazy with "I read an article about..... and what do you think?" :P

0

Share this post


Link to post
Share on other sites

The "you will forever be on hormone replacement" idealogy is something I would love to stand back and say "HAH!"

I understand this. I have been hyperthyroid for about 6 months (though I need to wait for blood tests in a few weeks to see where I am at), and have refused to take Tapazole or RAI or beta-blockers, as they wanted me to do back in August. I am changing my life-stye and things are slowly getting under control. I am lucky that my doctors think that I may actually recover, and are willing to look after me in my attempt to manage this naturally for as long as it is reasonable. For now, what I have been doing has kept under control the main hyper symptoms I have had: eliminating gluten and grains is significantly curbing my gut symptoms, meditation has got me rid of 99% of my manic moments, and exercise has turned my heart rate back into a safe range. I'm just taking it one day at a time.

0

Share this post


Link to post
Share on other sites




Hi

I have hashi's - took thyroxine (150mcg) for 30 years - (slowly stopped the thyroxine due to hyper symptoms from anemia caused by blood loss) -then nothing for about a year (till seriously hypo) then slowly onto natural thyroid hormone (ERFA) 2-3 grains now.

Had suffered palpitations for as long as I can remember (had lots of heart tests at one time - nothing wrong) took beta-blockers at one time - couldn't function at all with them. Docs conclusion 'you get palpitations'. I assumed they were in some way something to do with thyroid.

Well, turns out they're caused by gluten - presumably, my system goes into a flat spin when ingesting gluten!

Happy to report I only get palps now if cc'd!! They arrive at the same time my stomach starts to object - about 15 - 20 mins.

0

Share this post


Link to post
Share on other sites

I agree with everyone. My philosophy is we have to be an active participant in our own health. Our medical system is really not so much "healthcare" as "disease management" and then only symptoms. The science has improved over the centuries but what we don't know is still beyond huge. I don't think throwing chemicals at the problem and hoping for a good outcome is always the best course of action. Behavior & food modification is much preferred in many an issue. Patients need to be informed and utilize their medical professional as the subject matter expert/consultant. I'm not minimizing the Doc here in any measure. They have wonderful information and training. However, in the end, all they can really do is make recommendations. The final decision is ours which is why we need to be our own advocate.

Stepping off the soapbox now.... :D

0

Share this post


Link to post
Share on other sites

I agree with everyone. My philosophy is we have to be an active participant in our own health. Our medical system is really not so much "healthcare" as "disease management" and then only symptoms. The science has improved over the centuries but what we don't know is still beyond huge. I don't think throwing chemicals at the problem and hoping for a good outcome is always the best course of action. Behavior & food modification is much preferred in many an issue. Patients need to be informed and utilize their medical professional as the subject matter expert/consultant. I'm not minimizing the Doc here in any measure. They have wonderful information and training. However, in the end, all they can really do is make recommendations. The final decision is ours which is why we need to be our own advocate.

Stepping off the soapbox now.... :D

No soapbox.....alll I have to say is AMEN to that! :D

0

Share this post


Link to post
Share on other sites

You all, people - you are making me cry :) It is the first time I find a bunch of others in my situation that believe in what I believe.

I love these boards.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,880
    • Total Posts
      919,455
  • Topics

  • Posts

    • Depression / anxiety issues
      Thanks for the advice Irene. I will look into that book. I know I'm a long away from healed but I got my hopes up when I felt better in that first week, it's just constantly a battle. I am hoping and praying that I get better soon 
    • Celiac - How many symptoms can there be?
      Do you take digestive enzymes and probiotics? That may help. Have you met with a dietician for help figuring out how you're getting glutened?
    • Depression / anxiety issues
      You should read the book' Jennifer's Way" you might find her story similar.  You will find better health- but be patient- it's an up and down road and takes a long time! For me it's been 7-8 months and I'm not well but slowly improving I hope
    • Celiac - How many symptoms can there be?
      Hi Everyone I am new here and wanted to see if anyone else is experiencing the same thing I am.  I was diagnosed positive for celiac in 2/2016 via biopsy from an endoscopy.  I was negative for blood work because I self-eliminated gluten 9 months prior; so I guess I had not antibodies register in my lab work.  Prior to 2/2016 I was having symptoms for almost an entire year.  Despite cutting out grains in general for 9 months, I would have a gluten attack at least once a month.  I have had a history of sinus, bronchial infection.  I remember as young as 17 getting sick but I always bounced back and was active in sports and working out.  But in the past year I developed the following symptoms - Sudden desire to pass out, nausea, headaches, heart palpitation, crashing exhaustion as if I was recuperating from the flu, wheezing in my chest. I was bounced around to an allergist at this and was told I was asthmatic and I had food sensitivities to dairy, nuts, corn or corn derivatives (including corn syrup) and grains.  so I cut everything out!  Despite cutting everything out I was still have episodes at least monthly, possibly cross contamination.  In April 2015 I traveled to the Carribean for 2 weeks,  I became very ill with a urinary tract infection, stomach bug and severe back pain with constant fever.  I was treated with antibiotics (Bactrim) for 10 days which did clear up the situation. I came home and dismissed everything to a coincidence.  Six weeks later the GI distress woke me up in the middle of night.  The pain was so excruciating that when I sat on the toilet thinking I had to go, I almost past out from the pain.  I lay myself down on the floor until it subsided.  The next day I contacted my primary and was immediately seen.  She referred me to a GI specialist but the appointment was not until August.  Then 2 weeks before my GI appointment they called and rescheduled for late September.  I saw him and by then I was feeling better; no epsides for almost 2 months.  So we did nothing.... boy did I talk to soon.  Immediately after the appointment I had an attack.  These were the symptoms: Nausea, crashing fatigue (as if I was hit with the flu), diarrhea, dizziness,, loss of appetite,  lower back pain, specifically in the middle; intestinal discomfort and body aches which lasted 10 days!! and abruptly disappeared, thank God.
      . I had to wait to see the GI until 1/2016.  Once I saw him he did labs which were all normal.  He checked my liver, kidney, pancreas, blood count which was all normal.  He also scheduled the endo/colonoscopy for end of 1/2016.  Speeding forward in time....since the Endo/Colonscopy procedures, I had attacks January through March which last 7-10 days each time.  I finally had a break for 2 months and today as I type this I am on day 6 of another episode.  What I wanted to see if anyone has experience the following.  For me each episode is getting worse with the following symptoms: Nausea (horrible), back pain on the left side both in the rib cage (the front and back) at times this pain also gravitates toward my left hip.  I also get diarrhea, bloating, intestinal distress, crashing fatigue and loss of appetite.  What really hits me hard is the rib cage pain that is in the front and back on my left side.  I will be seeing the GI doctor in August; but I am hoping to see him sooner Any input in reference to symptoms is appreciated.    
    • Depression / anxiety issues
      Hi all  10 weeks ago i was diganoised with celiac with blood work and a endoscopy. I have had the worst 2 years of my life that started with blood being in my stool everyday. I have always suffered with anxiety for as long as I can remember but I always just pushed trough it. I then I started having panic attacks, insomnia and major depression that I could not handle, I could not function, I lost my job because I could not leave my bed, I shaked as I lay in bed everyday uncontrollably. I met with a doctor who put me on lexapro (antidepressant) I finally gave in after 6 months and started taking them, they made me worst than I already was so I had to stop after 14 weeks. Fast forward to 15 months later and the symptoms still persists including the bloody stools, I was in and out of hospital every week and told I had all sorts of conditions, then the blood work and endoscopy Finaly discovered the celiac. I have been on the diet now for 10 weeks, the first week my anxiety went away, the horrible knot in my stomach that I have had everyday, the hot flushes, the tingling I had run trough my legs. This all left but only for a couple of days then it came back, the depression also lifted but has now came back, I have been more than strict with the diet, I check everything twice before I eat it, me and the misses have thrown away everything from our kitchen and replaced it with new things. I had my Vitiam levels checked and I'm deficient in b12, Vit D, all B vitiams. It's like one step Foward 2 steps back in tearms of healing, I know these anxiety / depression feelings are not me but I've had them for so long that I can't seem to see light at the end of the tunnel. The couple of days that they left me when incredible I felt human and alive. Just wondering if any of this has happened to anyone else with celiac or gluten intorlance. Any advice or hope In tearms of healing or am I to feel like this for the rest of my life (I'm 28) by the way. Thanks a lot   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,924
    • Most Online
      1,763

    Newest Member
    sealy-yak
    Joined